PFF In The Media

The battle to beat the deadly pulmonary fibrosis

Pulmonary fibrosis is a disease that comes with a prognosis of death in just a few years after severe scarring of the lungs.

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$22M NIH Grant Supports Precision Medicine for Pulmonary Fibrosis

The National Institutes of Health and Three Lakes Partners, a philanthropic family organization, has awarded a $22 million grant to support precision medicine research for idiopathic pulmonary fibrosis (IPF).

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Deaths of 9/11 first responders from ground zero-related illnesses are on the rise — and some diseases are just beginning to take their toll

Like most first responders, former New York City detective Tom Frey is a master of understatement — even when it comes to talking about the World Trade Center terror attacks on 9/11, the most devastating assignment of his life.

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9/11 first responder diagnosed with cancer, then pulmonary fibrosis

Tom Frey, 54, is a retired New York Police Department detective who was diagnosed with Hodgkin’s lymphoma linked to the time he spent at the World Trade Center site and the Staten Island landfill after the 9/11 attacks.

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Ailing 9/11 First Responder Revisits Site of Terror Attacks

Tom Frey returned to the site known at one time as Ground Zero for just the third time since he rushed down to help on 9/11, this time bringing with him an oxygen canister — a result of a cancer diagnosis that triggered pulmonary fibrosis. NBC 4 New York’s David Ushery reports.

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September Marks Pulmonary Fibrosis Awareness Month

September has been designated Pulmonary Fibrosis Awareness Month — a time during which researchers and clinicians aim to improve the public’s knowledge about the disease.

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Patient Group Advances Clinical Trials, Diverts Patients From Unregulated Therapies

For a patient with a debilitating disease, such as pulmonary fibrosis (PF), moments of hope can be few and far between.

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Three Lakes Partners And Pulmonary Fibrosis Foundation Partner In Fight Against Pulmonary Fibrosis

The Pulmonary Fibrosis Foundation (PFF) and Three Lakes Partners today marked September’s National Pulmonary Fibrosis Awareness Month with the announcement of a major partnership in the fight against pulmonary fibrosis (PF).

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Charlotte pastor turns near-death experience into chance to help community

A Charlotte pastor is turning his near-death experience into an effort to help his community.

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September is Pulmonary Fibrosis Awareness Month and Dr. Amy Case joined Sasha Rionda to share more about this debilitating lung disease

September is Pulmonary Ffibrosis Awareness Month and Dr. Amy Case joined Sasha Rionda to share more about this debilitating lung disease.

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He Was a First Responder on 9/11—Why He’s Telling His Story Now

Tom Frey spent years recovering victims of the 9/11 attacks. His time working to bring families answers resulted in his own poor health.

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https://www.nytimes.com/2019/06/10/health/stem-cells-fda.html

A judicial ruling this month that will stop questionable stem-cell treatments at a clinic in Florida is widely seen as a warning to a flourishing industry that has attracted huge numbers of patients, who pay thousands of dollars for unproven, risky procedures.

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Pulmonary Fibrosis Foundation Warns Against Stem Cell Infusions

In response to an uptick in direct-to-consumer advertising for stem cell therapies by for-profit centers, the Pulmonary Fibrosis Foundation (PFF) has issued an updated warning against any type of stem cell treatment of pulmonary fibrosis (PF) outside of an approved clinical trial.

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See Julie Halston, Lilli Cooper, Santino Fontana, and More at Broadway Belts for PFF!

The Pulmonary Fibrosis Foundation hosted their annual Broadway Belts for PFF! on February 25, hosted by Broadway legend Julie Halston, who will appear on Broadway later this season in Tootsie.

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Pulmonary fibrosis organization creates registry for research

The Pulmonary Fibrosis Foundation has launched its first phase of a patient registry with 2,000 patients on board.

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West Hartford Spreads Awareness of Pulmonary Fibrosis, Delamar Turns Fountain Blue

For several days during the last week of September, the water bubbling out of the fountain in front of the Delamar West Hartford Hotel glowed blue, as the hotel joined other buildings and structures throughout the country in raising awareness for pulmonary fibrosis.

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Interview with Amy Kozyra

Help support those living with pulmonary fibrosis by joining the PFF Walk Chicago on September 15 in Lincoln Park in recognition of Pulmonary Fibrosis Awareness Month.

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After Hours with Rick Kogan: The Pulmonary Fibrosis Foundation

Tonight on the show, Rick is joined by Dorothy Coyle, Amy Kozyra with Dr. Daniel Dilling to talk about the Pulmonary Fibrosis Foundation.

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