PFF In The Media

My Journey with Pulmonary Fibrosis

Texan, triathlete, wife, mother and survivor – those are just a few words I use to describe and define myself. Some would add “pulmonary fibrosis (PF) patient” to that list, but I’ve chosen not to let my diagnosis and life with PF define me.

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Woman walking 1,400 miles to raise awareness for pulmonary fibrosis passes through Peoria

A Wisconsin woman is walking 1,400 miles to raise awareness for pulmonary fibrosis. Mary Hesch said she lost her mother to the lung scarring disease 25 years ago. She said she is walking to honor her mother’s legacy and raise money for pulmonary fibrosis research.

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Julie Halston - Pulmonary Fibrosis Awareness

September is Pulmonary Fibrosis Awareness Month, and actress and activist Julie Halston is promoting awareness and advocacy for the disease, which affects over 250,000 Americans, with 50,000 new cases each year.

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Local resident to 'Take Steps Towards a Cure for Pulmonary Fibrosis'

Boise resident Debbie Herndon is joining patients, families and friends across the country for the virtual National Pulmonary Fibrosis Foundation (PFF) Walk Day, taking one step closer to a cure for pulmonary fibrosis, a debilitating, incurable lung disease that causes scarring in the lungs and affects more than 250,000 Americans.

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Actress Julie Halston given special Tony Award for her work with pulmonary fibrosis research

Julie Halston may be known for starring in comedies on and off Broadway. But the award that she just received was bestowed to her for her work as an advocate for pulmonary fibrosis research and treatment.

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Pulmonary Fibrosis Foundation Position Statement Recommends Addressing Palliative Care Early in Patient Journey

The Pulmonary Fibrosis Foundation (PFF) has issued a position statement that recommends healthcare providers address the incorporation of palliative care early in the medical journey of patients living with pulmonary fibrosis (PF).

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West Hartford Man Makes It His Goal to Make a Difference After Devastating Diagnosis

Nobody wants to learn that they have a life-threatening disease, but when one West Hartford man got that news, he not only decided to fight, but also took action to help others. This week, Mal Doyle will participate in the PFF Summit 2021.

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Sterling Heights man to speak at Pulmonary Fibrosis Foundation summit

Gary Cunningham, who suffered from idiopathic pulmonary fibrosis, a common type of pulmonary fibrosis, will speak at the Summit on Nov. 13, the final day of the event. Cunningham’s only treatment option was to receive a double lung transplant, which he received in July 2019.

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Couple speaks out on pulmonary fibrosis experiences, caregiving

Gary Cunningham and his wife, Marianne Sarazin, are spreading the word about pulmonary fibrosis and how to manage it. The couple recently gave presentations at the Pulmonary Fibrosis Foundation’s virtual summit.

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Treatment options expanding for progressive fibrosing ILD

A speaker at the PFF Summit highlighted recent trials and therapeutic updates for progressive fibrosing interstitial lung disease. Read more to learn about the latest news about treatment options for ILD.

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Air pollution has various effects in fibrotic ILD

There is evidence to indicate that airborne pollutants are associated with preclinical ILD — in other words, interstitial lung abnormalities and possibly the incidence of idiopathic pulmonary fibrosis.

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Four potential pulmonary fibrosis therapies to watch

The drug development landscape in idiopathic pulmonary fibrosis is changing rapidly. “There are probably 30 or 40 different compounds in development,” said Dr. Toby Maher, a presenter at the Pulmonary Fibrosis Foundation (PFF) Summit held last month.

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The Insidious Interstitial Lung Disease

Interstitial lung disease (ILD) is an umbrella term for a large collection of connected lung problems that affect the interstitium, the tissue surrounding air sacs, blood vessels, and airways in the lungs.

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Accurate and Timely Diagnosis Crucial for Those With Pulmonary Fibrosis

Pulmonary fibrosis is a progressive, debilitating lung disease that scars the lung tissue, and affects more than 200,000 Americans. A timely diagnosis is crucial for treatment.

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Diagnosis Can Be Missed When Breathing Is the Issue

Valeria Hatcher knew something was wrong when she began getting winded just walking short distances and going up stairs, so the 48-year-old went to see her doctor. But like many individuals with PF, Hatcher’s journey with the disease began with a misdiagnosis.

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Clinical Trials Day: Empowering Patients to Participate in Active Pulmonary Fibrosis Trials

Clinical trials continue to serve as a critical component in drug development — especially in the PF sector.

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West Hartford Residents and Local Educators Walk a Million Miles for Pulmonary Fibrosis Research

West Hartford resident Mal Doyle and his daughter, Valerie Hansen, raised more than $11,000 – and counting – from their recent Steps for Better Breathing Walk in support of Mal and the Pulmonary Fibrosis Foundation.

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Talk of Alabama - Pulmonary Fibrosis Awareness

PFF. Ambassador Glenda Rouland and Dr. Tracy Luckhardt share information about pulmonary fibrosis and events taking place during Pulmonary Fibrosis Awareness Month in September.

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