PFF In The Media

Surviving 9/11 Took a Physical and Mental Toll – and Helped Some Grow

Many survivors of the Sept. 11 attacks on the World Trade Center and the Pentagon developed lung or heart issues from breathing in dust and other particles from the collapsed buildings.

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Round Rock triathlete Melissa Wheeler raising awareness of pulmonary fibrosis

The 61-year-old Round Rock resident, who has been a runner since 2010, said she noticed she was fatigued and had developed a persistent cough, so she decided to visit a pulmonologist.

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Former NYPD detective diagnosed with 9/11-related terminal illness speaks out

It may have been 20 years ago, but 9/11 is still impacting first responders. Tom Frey, a former New York Police Department detective, spoke with Fox News about his experiences on that day, along with the impact it’s had on his health since.

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Inaugural ILD Day Brings Awareness for Interstitial Lung Disease

It’s very possible you’ve never heard of interstitial lung disease (ILD), despite the more than 200 types of ILD that affect over 250,000 Americans. That’s why nine patient advocacy organizations have partnered to raise awareness for ILDs with the first-ever ILD Day, September 15, 2021.

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Pulmonary Fibrosis, Ethnicity, and the Need for Organ Donation

This year marks the 25th anniversary of National Multiethnic Donor Awareness Month, created to educate multiethnic communities about organ, eye, and tissue donation and transplantation, and encourage donor registration and family conversations about donation.

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Focus on “Growing Stronger” for Pulmonary Fibrosis Awareness Month in September

Newswise — September is Pulmonary Fibrosis Awareness Month, presented by the Pulmonary Fibrosis Foundation (PFF) as a way to drive awareness of pulmonary fibrosis (PF). PF is a progressive, debilitating disease characterized by scarring in the lungs that affects more than 250,000 people in the U.S.

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Tony Awards recognize Julie Halston for her pulmonary fibrosis advocacy

Broadway actor Julie Halston is a Tony Award winner — earning an honor from the American Theatre Wing for her advocacy efforts. Halston and her husband, Ralph Howard, founded Broadway Belts for PFF after he was diagnosed with the lung disease.

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Accurate and Timely Diagnosis Crucial for Those With Pulmonary Fibrosis

Pulmonary fibrosis is a progressive, debilitating lung disease that scars the lung tissue, and affects more than 200,000 Americans. A timely diagnosis is crucial for treatment.

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Diagnosis Can Be Missed When Breathing Is the Issue

Valeria Hatcher knew something was wrong when she began getting winded just walking short distances and going up stairs, so the 48-year-old went to see her doctor. But like many individuals with PF, Hatcher’s journey with the disease began with a misdiagnosis.

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Clinical Trials Day: Empowering Patients to Participate in Active Pulmonary Fibrosis Trials

Clinical trials continue to serve as a critical component in drug development — especially in the PF sector.

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The Role of Air Pollution in Pulmonary Fibrosis

To mark Clean Air Month, the Pulmonary Fibrosis Foundation aims to increase public understanding of the role air pollution has in the development of interstitial lung diseases (ILD) such as pulmonary fibrosis, including how polluted air can make you sick and the telltale signs to be aware of.

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National Pulmonary Fibrosis Foundation Walk approaches

Take one step forward in the search for a cure and walk with us! Join patients, families and friends from coast to coast and bring the spirit of the PFF Walk to your community on National Walk Day on Sept. 25.

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West Hartford Residents and Local Educators Walk a Million Miles for Pulmonary Fibrosis Research

West Hartford resident Mal Doyle and his daughter, Valerie Hansen, raised more than $11,000 – and counting – from their recent Steps for Better Breathing Walk in support of Mal and the Pulmonary Fibrosis Foundation.

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The Deadly Lung Disease You've Probably Never Heard Of

Pulmonary fibrosis (PF) is an uncommon and frequently fatal lung disease, and the road to diagnosis can be long and difficult.

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Early Diagnosis for Pulmonary Fibrosis is Key

Pulmonary fibrosis (PF) continues to be relatively unknown among the public, making awareness and education critically important.

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Local pulmonary fibrosis ambassador goes to Washington

On March 10, Debbie Herndon, Boise resident and ambassador for the Pulmonary Fibrosis Foundation, traveled (virtually) to Washington, D.C., with a group of fellow advocates from around the country to drive awareness and research funding for the disease.

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Learn the Symptoms of Pulmonary Fibrosis this Rare Disease Day

One in 20 people will live with a rare disease at some point in their life*. Rare Disease Day, celebrated annually on February 28, provides an opportunity to raise awareness for diseases that are not well known, such as pulmonary fibrosis (PF).

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My Breath, Made Possible by Another: Lung Transplants and Pulmonary Fibrosis

According to the Organ Procurement and Transplantation Network, a patient in need of a life-saving organ transplant is added to the national waiting list every 9 minutes*.

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