PFF In The Media

Health Literacy Month: Educating the PF Community on Health-Related Decisions

For more than 20 years, October has been recognized as Health Literacy Month, allowing hospitals, health centers, professional associations, and other groups to work collaboratively to help patients advocate for their own health.

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Cross country trek of 1,400 miles brings woman to Springfield for a cause

After a nearly 15 mile walk through Central Illinois, Mary Hesch is taking a breath of fresh air as she gears up to take on the rest of her 107 day journey across the nation.

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Pulmonary Fibrosis Foundation Position Statement Recommends Addressing Palliative Care Early in Patient Journey

The Pulmonary Fibrosis Foundation (PFF) has issued a position statement that recommends healthcare providers address the incorporation of palliative care early in the medical journey of patients living with pulmonary fibrosis (PF).

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Sept. 11 united America. Twenty years later, the nation stands divided.

Twenty years later, John Feal, a construction worker turned activist, still mourns the loss of that fleeting moment of national unity that arose after the twin towers of the World Trade Center fell.

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I feel like 'a scab has been ripped off': Ground zero first responder on 9/11 anniversary

MSNBC's Craig Melvin is joined by 9/11 first responders, former NYPD detective Tom Frey, Arlington County Fire Department captain Justin Tirelli and former Shanksville fire chief Terry Shaffer to share their memories of that day.

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September is pulmonary fibrosis awareness month

The Retirement Systems of Alabama buildings in Montgomery and Mobile are being lit up blue this month. The recognition is for a lung disease that affects 250,000 people nationwide.

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Star raises awareness for pulmonary fibrosis

Some of the leading lung diseases include asthma, COPD, and lung cancer, but there’s another one that can be deadly serious. It’s called pulmonary fibrosis, which affects roughly 50,000 people each year.

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National Pulmonary Fibrosis Foundation Walk approaches

Take one step forward in the search for a cure and walk with us! Join patients, families and friends from coast to coast and bring the spirit of the PFF Walk to your community on National Walk Day on Sept. 25.

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My Journey with Pulmonary Fibrosis

Texan, triathlete, wife, mother and survivor – those are just a few words I use to describe and define myself. Some would add “pulmonary fibrosis (PF) patient” to that list, but I’ve chosen not to let my diagnosis and life with PF define me.

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Woman walking 1,400 miles to raise awareness for pulmonary fibrosis passes through Peoria

A Wisconsin woman is walking 1,400 miles to raise awareness for pulmonary fibrosis. Mary Hesch said she lost her mother to the lung scarring disease 25 years ago. She said she is walking to honor her mother’s legacy and raise money for pulmonary fibrosis research.

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Julie Halston - Pulmonary Fibrosis Awareness

September is Pulmonary Fibrosis Awareness Month, and actress and activist Julie Halston is promoting awareness and advocacy for the disease, which affects over 250,000 Americans, with 50,000 new cases each year.

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Local resident to 'Take Steps Towards a Cure for Pulmonary Fibrosis'

Boise resident Debbie Herndon is joining patients, families and friends across the country for the virtual National Pulmonary Fibrosis Foundation (PFF) Walk Day, taking one step closer to a cure for pulmonary fibrosis, a debilitating, incurable lung disease that causes scarring in the lungs and affects more than 250,000 Americans.

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Actress Julie Halston given special Tony Award for her work with pulmonary fibrosis research

Julie Halston may be known for starring in comedies on and off Broadway. But the award that she just received was bestowed to her for her work as an advocate for pulmonary fibrosis research and treatment.

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Pulmonary Fibrosis Foundation Position Statement Recommends Addressing Palliative Care Early in Patient Journey

The Pulmonary Fibrosis Foundation (PFF) has issued a position statement that recommends healthcare providers address the incorporation of palliative care early in the medical journey of patients living with pulmonary fibrosis (PF).

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West Hartford Man Makes It His Goal to Make a Difference After Devastating Diagnosis

Nobody wants to learn that they have a life-threatening disease, but when one West Hartford man got that news, he not only decided to fight, but also took action to help others. This week, Mal Doyle will participate in the PFF Summit 2021.

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Sterling Heights man to speak at Pulmonary Fibrosis Foundation summit

Gary Cunningham, who suffered from idiopathic pulmonary fibrosis, a common type of pulmonary fibrosis, will speak at the Summit on Nov. 13, the final day of the event. Cunningham’s only treatment option was to receive a double lung transplant, which he received in July 2019.

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Couple speaks out on pulmonary fibrosis experiences, caregiving

Gary Cunningham and his wife, Marianne Sarazin, are spreading the word about pulmonary fibrosis and how to manage it. The couple recently gave presentations at the Pulmonary Fibrosis Foundation’s virtual summit.

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Treatment options expanding for progressive fibrosing ILD

A speaker at the PFF Summit highlighted recent trials and therapeutic updates for progressive fibrosing interstitial lung disease. Read more to learn about the latest news about treatment options for ILD.

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