PFF In The Media

Treatment options expanding for progressive fibrosing ILD

A speaker at the PFF Summit highlighted recent trials and therapeutic updates for progressive fibrosing interstitial lung disease. Read more to learn about the latest news about treatment options for ILD.

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Air pollution has various effects in fibrotic ILD

There is evidence to indicate that airborne pollutants are associated with preclinical ILD — in other words, interstitial lung abnormalities and possibly the incidence of idiopathic pulmonary fibrosis.

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Four potential pulmonary fibrosis therapies to watch

The drug development landscape in idiopathic pulmonary fibrosis is changing rapidly. “There are probably 30 or 40 different compounds in development,” said Dr. Toby Maher, a presenter at the Pulmonary Fibrosis Foundation (PFF) Summit held last month.

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The Insidious Interstitial Lung Disease

Interstitial lung disease (ILD) is an umbrella term for a large collection of connected lung problems that affect the interstitium, the tissue surrounding air sacs, blood vessels, and airways in the lungs.

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Accurate and Timely Diagnosis Crucial for Those With Pulmonary Fibrosis

Pulmonary fibrosis is a progressive, debilitating lung disease that scars the lung tissue, and affects more than 200,000 Americans. A timely diagnosis is crucial for treatment.

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Diagnosis Can Be Missed When Breathing Is the Issue

Valeria Hatcher knew something was wrong when she began getting winded just walking short distances and going up stairs, so the 48-year-old went to see her doctor. But like many individuals with PF, Hatcher’s journey with the disease began with a misdiagnosis.

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Clinical Trials Day: Empowering Patients to Participate in Active Pulmonary Fibrosis Trials

Clinical trials continue to serve as a critical component in drug development — especially in the PF sector.

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West Hartford Residents and Local Educators Walk a Million Miles for Pulmonary Fibrosis Research

West Hartford resident Mal Doyle and his daughter, Valerie Hansen, raised more than $11,000 – and counting – from their recent Steps for Better Breathing Walk in support of Mal and the Pulmonary Fibrosis Foundation.

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Talk of Alabama - Pulmonary Fibrosis Awareness

PFF. Ambassador Glenda Rouland and Dr. Tracy Luckhardt share information about pulmonary fibrosis and events taking place during Pulmonary Fibrosis Awareness Month in September.

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9/11 first responder diagnosed with cancer, then pulmonary fibrosis

Tom Frey, 54, is a retired New York Police Department detective who was diagnosed with Hodgkin’s lymphoma linked to the time he spent at the World Trade Center site and the Staten Island landfill after the 9/11 attacks.

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Deaths of 9/11 first responders from ground zero-related illnesses are on the rise — and some diseases are just beginning to take their toll

Like most first responders, former New York City detective Tom Frey is a master of understatement — even when it comes to talking about the World Trade Center terror attacks on 9/11, the most devastating assignment of his life.

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The battle to beat the deadly pulmonary fibrosis

Pulmonary fibrosis is a disease that comes with a prognosis of death in just a few years after severe scarring of the lungs.

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PFF Summit Awards Highlight PF Research

A record-breaking international attendance of 950 pulmonary fibrosis (PF) patients, healthcare professionals, caregivers and scientists honored researchers at the Pulmonary Fibrosis Foundation’s recent PFF Summit in San Antonio.

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Clinic pitches unproven treatments to desperate patients, with tips on raising the cash

By the time he called the Lung Health Institute, Ed Garbutt was desperate. The Dallas computer parts salesman could barely walk the length of his house without gasping for breath. Unable to work, Garbutt, 64, was going broke paying for trips to the emergency room.

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Improving Diagnostics for Pulmonary Fibrosis

New diagnostic methods address a source of common urogential health problems.

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West Hartford Resident Lobbies Legislators to Drive Disease Research

In late March, West Hartford resident Malcolm “Mal” Doyle held meetings to educate Connecticut legislators about pulmonary fibrosis (PF) – a progressive, debilitating lung disease that causes scarring in the lungs.

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Why Pulmonary Fibrosis Is Underdiagnosed

Results of the annual Pulmonary Fibrosis Foundation (PFF) National Awareness Survey this year showed a quarter of 2000 US adults have never even heard of the disease.

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Effect of COVID-19 on Pulmonary Fibrosis Clinical Trials: Expert Interview

For patients with chronic diseases such as pulmonary fibrosis, coronavirus disease 2019 (COVID-19) represents a threat beyond the immediate risk of infection.

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