PFF In The Media

Angiotensin-converting enzyme inhibitor use before IPF diagnosis lowers mortality risk

Chronic fatigue is a common symptom of idiopathic pulmonary fibrosis (IPF), and may affect as many as 95 percent of all individuals living with this condition. Fatigue can have a significant impact on quality of life, and it generally stems from several factors including difficulty breathing, disrupted sleep, anxiety and depression, and medications used to treat IPF.

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6 Tips for Managing Chronic Fatigue with IPF

Chronic fatigue is a common symptom of idiopathic pulmonary fibrosis (IPF), and may affect as many as 95 percent of all individuals living with this condition. Fatigue can have a significant impact on quality of life, and it generally stems from several factors including difficulty breathing, disrupted sleep, anxiety and depression, and medications used to treat IPF.

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DOD-funded study explores metformin as potential therapy for IPF

A clinical study led by Fernando Martinez, M.D., vice chair for clinical and translational research and academic chief of the Division of Pulmonary, Allergy and Critical Care at UMass Chan Medical School and funded by the Department of Defense (DOD) is targeting idiopathic pulmonary fibrosis (IPF).

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4 Hidden IPF Triggers in Your Living Space

Idiopathic pulmonary fibrosis (IPF) is a chronic and progressive lung disease that causes scarring (fibrosis) of the lungs. The most common symptoms are shortness of breath and cough, and the progression of the disease varies considerably from person to person.

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5 Ways to Manage Breathlessness and Anxiety in IPF

Breathlessness (also known as dyspnea) and anxiety are common symptoms experienced by individuals with idiopathic pulmonary fibrosis (IPF). They are also linked together in a “dyspnea-anxiety cycle.” Feeling short of breath can trigger anxiety, which can worsen your breathing and make you feel even more breathless.

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From Her New Mexico Home, Karen Smoot Advocates for Fellow Patients With IPF

Trim and athletic her entire life, Karen Smoot—a nonsmoker—was still running triathlons in her early 60s. That’s why she was surprised when, in 2011, she began having trouble walking up to the fourth floor of the office where she worked.

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ILD Pulmonary Care Outcomes Don’t Depend on Distance

Individuals in close proximity to care for interstitial lung disease (ILD) did not have significantly improved outcomes than those at a greater distance, based on data from more than 1600 individuals and presented at American College of Chest Physicians (CHEST) 2025 Annual Meeting.

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Small changes in lung CT scans linked to declining lung function

Whether change in fibrosis on high-resolution CT is associated with near- and longer-term outcomes in patients with fibrotic interstitial lung disease (fILD) remains unclear, prompting a new study by researchers led by Matthew Koslow, M.D., of the Center for Interstitial Lung Disease, Division of Pulmonary and Critical Care Medicine at National Jewish Health in Denver, and colleagues.

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Celebrating 25 years of the Pulmonary Fibrosis Foundation: driving awareness, research, and support

The Pulmonary Fibrosis Foundation (PFF) is marking a major milestone in 2025: 25 years of progress in improving the lives of those affected by pulmonary fibrosis (PF). Since its founding in 2000, PFF has become a leading voice in patient support, education, research funding, and advocacy.

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PFF Urges Patients to Use Only FDA-Approved Oxygen Delivery Devices

The Pulmonary Fibrosis Foundation has issued a position statement on non-prescription supplemental oxygen. Patients living with pulmonary fibrosis should have a prescription for oxygen from their healthcare provider and should only use FDA-approved oxygen delivery devices.

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PFF Urges Patients to Use Only FDA-Approved Oxygen Devices

The medical advisory board of the Pulmonary Fibrosis Foundation (PFF) has issued a position statement on non-prescription supplemental oxygen, advising the patient community to use only FDA-approved oxygen delivery devices as prescribed by their doctor.

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PFF Issues Warning About Non-Prescription Supplemental Oxygen

The PFF warns that patients should not purchase an oxygen supply device without a prescription from a health care provider because doing so may lead to serious health problems. It also warns non-FDA approved oxygen delivery systems may not reliably deliver oxygen.

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Pulmonary Fibrosis Foundation’s latest registry offers research opportunities

The PFF Community Registry collects self-reported data from patients, nonprofessional caregivers and biological family members via a secure online portal. Participation is voluntary.

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The Internet Is a Valuable Tool for PF Information, but Always Be Cautious

One of the first sources of reliable information about pulmonary fibrosis (PF) I found was the Pulmonary Fibrosis Foundation (PFF) website. The PFF had curated a collection of resources for patients, caregivers, and the medical community that I found useful.

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Being Idiopathic: Solving the Mystery of My Diagnosis

I’ve spent much of my working life conducting investigations. As a special agent for the Air Force Office of Special Investigations and in a second career providing security and investigative services under contract to the federal government, the cases all had similar objectives.

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Community Registry Grows Research Abilities Of Pulmonary Fibrosis Foundation

In July, the Pulmonary Fibrosis Foundation (PFF) launched the PFF Community Registry to begin collecting data directly from patients in the U.S. with pulmonary fibrosis (PF) and interstitial lung disease (ILD)—together with their nonprofessional caregivers and biological family members—as well as lung transplant recipients previously diagnosed with PF or ILD.

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First-time Pulmonary Fibrosis walk planned in honor of Sand Springs man

A Sand Springs woman is hosting a Pulmonary Fibrosis awareness walk in September in honor of her late husband. Stephanie Hagar wears her husband Michael’s ashes and wedding ring around her neck and has a tattoo in his honor on her wrist.

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Keck Medicine’s Center for Advanced Lung Disease designated as pulmonary fibrosis care center

Keck Medicine of USC’s Center for Advanced Lung Disease has been designated as one of 74 sites included in the Pulmonary Fibrosis Foundation Care Center Network. These sites are recognized for their efforts in diagnosing, treating and providing support to those living with pulmonary fibrosis (PF), a life-threatening lung disease that currently has no cure.

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