Share Your Story

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Portraits of Pulmonary Fibrosis

We welcome everyone in the PF community to share their stories as a part of our Portraits of Pulmonary Fibrosis series on social media.

The first form is intended for anyone who has been personally affected by pulmonary fibrosis. The second form is intended for healthcare professionals who wish to talk about their work in the PF or ILD field.

Use one of the forms below to begin writing about your experience with pulmonary fibrosis. Full submissions should be a total of 500 words. Your submission may be subject to editing for use on social media. The PFF reviews every submission and will work with you to tailor your story for specific awareness purposes.

Submit your story

Patients, caregivers, lung transplant recipients, friends and family, and those who have lost a loved one may fill the form below.

*First Name

*Last Name

*Email Address

Phone Number

Street Address

*City

*State

*Zip Code

*Who Has/Had PF?

*Approx. date of diagnosis

*In about 300-500 words, tell us your story

*Please attach a photo (up to 4)

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What is the one truth you would like to tell others about your experience with PF/IPF?

How has your life changed since learning of this diagnosis?

Have there been any good changes in your life since learning of this diagnosis?

Is there something you or your loved one aren't able to do since learning of this diagnosis that makes living with PF/IPF more challenging than people realize?

Share a moment of kindness that moved you during this journey. Perhaps someone showed compassion or kindness when you needed it most.

Moving forward, how do you plan to remain engaged with the PF/IPF community?

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For healthcare professionals working in the PF and ILD field, please fill the form below.

Your Name and Title

Name of your PFF Care Center Network Site

Email

City and State

Describe how your medical site takes care of PF patients.

Describe your medical site's specific research interests.

Describe the importance of your medical site to the pulmonary fibrosis community.

How has COVID-19 affected your work?

Describe your overall experience working in the ILD field.

Describe how your medical site has been able to provide coordinated care for individuals living with pulmonary fibrosis.

Describe any unique programming or research your site is currently offering or involved with.

Describe your experience as a support group leader (if applicable).

Please describe what makes your core care team unique.

Please upload a photo (minimum of one). Consider uploading your headshot, a photo of yourself on the job, or a group photo with you and your colleagues. Feel free to get creative! If you do not have a photo, consider snapping a selfie in your workspace, asking a colleague to take your photo, or gathering your care team to take a group photo. Regrettably, we cannot share stories without photos.

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