Meet the PFF Registry Team

The PFF Registry is developed and managed by a dynamic team comprised of medical experts, PFF staff, and a data coordinating center working in partnership with the Care Center Network across the United States.

Joyce-Lee

By leveraging the data in the Registry and partnering with our Care Center Network sites, we can really start to figure out what are important and essential elements to patient care and learn from one another. I truly believe that we will be able to figure out what care elements/factors will help our patients live better and longer lives with their pulmonary fibrosis.

Joyce Lee, MD, MS
University of Colorado Anschutz Medical Campus,
PFF Senior Medical Advisor, Research and Health Care Quality

Joe-Lasky

Researchers are eager to study the causes, treatments, and impact of pulmonary fibrosis and interstitial lung disease. The Registry follows thousands of people for as long as they are able to participate. This means huge amounts of data are available for researchers to test.

Joseph Lasky, MD
PFF Chief Medical Officer
Tulane University Medical School


Cathie-Spino

Our patients living with pulmonary fibrosis, their families who support them, and the health care providers who care for them all deserve high-quality comprehensive data that informs their health decisions. We at the data coordinating center never forget that there is a real person behind every statistic in the PFF Registry, and that knowledge drives us forward every day.

Cathie Spino, ScD
Director of Statistical Analysis of Biomedical and Educational Research (SABER) School of Public Health, University of Michigan

PFF Registry Staff 

Misha Cadet, MPH, PMP, Project Manager, PFF Registry *SRC 

Kevin Flaherty, MD, MS, Steering Committee Chair PFF Registry

Amy Case, MD, FCCP, Senior Medical Advisor, Education and Awareness *SC

Sonye Danoff, MD, PhD, Senior Medical Advisor, PFF Care Center Network *SC

Joyce Lee, MD, MS, Senior Medical Advisor, Research and Health Care Quality 

Jessica Shore, PhD, RN, Senior Vice President, Clinical Affairs & Quality

Scott Staszak, Interim Chief Executive Officer, Chief Operating Officer, PFF *SC

Seth Klein, Chief Development Officer, PFF *SC

 SC= Steering Committee    SRC= Scientific Review Committee

 

PFF Registry Steering Committee

Nishant Gupta, MD, Care Center Network Investigator, Director, University of Cincinnati Interstitial Lung Disease program

Lisa Lancaster, MD, Care Center Network Investigator, Associate Professor of Medicine, Vanderbilt Health

Tracy Luckhardt, MD, MS, Care Center Network Investigator,  Associate Professor, University of Alabama at Birmingham Medicine

Sydney Montesi, MD, Care Center Network Investigator, Assistant Professor of Medicine, Massachusetts General Hospital

David O'Dwyer, MB, PhD, University of Michigan

Anna Podolanczuk, MD, MS, Weill Cornell

Meredith Broderick, PharmD, Director of Medical Affairs, United Therapeutics

Cindy Burg, PharmD, BCPS  Senior Medical Science Director, Genentech

 

PFF Scientific Review Committee

Mary Strek, MD, Interim Chair, Co-Director, Interstitial Lung Disease Clinic, University of Chicago Medicine 

Aman Pande, MD, Cleveland Clinic

Kerri Aronson, MD, Cornell Weil

Srihari Veeraraghavan, MD, Emory University

Brand Bemiss, MD, Loyola University of Chicago

Chao He, MD, University of Alabama at Birmingham

Tejaswini Kulkarni, MD, University of Alabama at Birmingham

Said Chaaban, MD, University of Kentucky

Chad Newton, MD, University of Texas Southwestern

Giselle Kolenic, MA, DCC Director of PFF Registry, SABER

More information

The PFF Patient Registry is administered at participating PFF Care Centers across the United States. The Care Center Network (CCN)  is a group of medical centers dedicated to improving the lives of those living with pulmonary fibrosis (PF).

Data Coordinating Center

The data coordinating center (DCC) at the Statistical Analysis of Biomedical and Educational Research (SABER) at the University of Michigan provides statistical expertise, project management and study coordination, database development and management, and regulatory support of the PFF Registry.