PFF Patient Registry Milestone
Announcing our new app!
PFF Clinical Trial Finder
Life With Pulmonary Fibrosis
The Trusted PF Resource
The Pulmonary Fibrosis Foundation mobilizes people and resources to provide access to high quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier lives.
Health care professional resources available. Call 844.TalkPFF or email the PFF Patient Communication Center.
Find a clinical trial near you with our PFF Clinical Trial Finder. This tool is intended to increase awareness and participation.
Host an event, engage legislators, or distribute educational materials about pulmonary fibrosis.
Find experienced pulmonary fibrosis medical professionals and support services through our Care Center Network.
Create an online tribute page to honor the memory of a loved one or show your support for a friend.
You are your most important advocate. Learn how to maintain a healthy lifestyle while living with pulmonary fibrosis.
The Pulmonary Fibrosis Foundation (PFF) announced that it has achieved its enrollment goal for the initial phase of the PFF Patient Registry with participation of 2,002 patients. The Registry, launched in 2016, is a collection of comprehensive anonymized data from patients living with pulmonary fibrosis (PF), a group of fatal lung diseases which cause progressive scarring in the lungs.
The Pulmonary Fibrosis Foundation strongly opposes the E.P.A.'s proposed Significant New Use Rule for asbestos that would be harmful and potentially deadly to the pulmonary health of American citizens.
For more than one million people living with serious lung conditions, such as pulmonary fibrosis (PF), a prescription for supplemental oxygen therapy can seem overwhelming. Questions like which oxygen delivery system to use, how to manage various flow settings, or how to ensure safety sometimes cause confusion and stress with the oxygen process.
The Pulmonary Fibrosis Foundation (PFF) and monARC Bionetworks have partnered to create the mobile app, PF Health, for individuals living with pulmonary fibrosis (PF). PF Health, now available on Apple App Store (iOS 9.0 or later is required) and Google Play (Android 8.0 and up is required) enables patients to track and report their symptoms to their healthcare providers.