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PFF Help Center

For those living with pulmonary fibrosis, obtaining the most accurate and current information can be a challenging and frustrating task. Let us help you find your answers.

The PFF Community Registry: Open for enrollment!

The Pulmonary Fibrosis Foundation is leading the fight by funding promising research and we need your help. 

One of our key research programs is the PFF Community Registry. We invite eligible participants to join by completing a series of simple surveys. Your survey responses will be used by researchers to better understand how PF and ILD progress over time, respond to treatments, and how the diseases affect individuals. The more individuals who join and provide responses, the closer we come to a cure.

Eligible participants include:

  • Patients living with PF and ILD
  • Lung transplant recipients who have had PF or ILD
  • Caregivers and biological family members of patients with PF or ILD, including those who have passed away

Enrolling in the PFF Community Registry is entirely online. All you need is internet access. Learn more about this groundbreaking program by visiting the PFF Community Registry homepage

Have you already enrolled? If so, you can log in to access your account.

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Be part of
something special

Find an event and connect with others in the PF community. 

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  • Jun
    21
    2024

    Robert Wood Johnson – Trinitas Pulmonary Fibrosis Support Group

    Join the Trinitas Pulmonary Fibrosis Support Group virtual meeting on Friday, June 21 from 2:00 - 3:00 p.m. Eastern Time. To receive the virtual meeting information, please contact Jennifer H Singley, MEd, NCC at jennifer@wescoe.org or call 484-553-6340.

    2:00 PM - 3:00 PM EST
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  • Jun
    25
    2024

    St. Luke's University Health Network Lung Transplant Mentorship

    Join the St. Luke's University Health Network Lung Transplant Mentorship virtual meeting Tuesday, June 25 from 2:00 pm - 3:00 pm Eastern Time. To receive the virtual meeting information, please contact Jennifer H Singley, MEd, NCC at jennifer@wescoe.org or call 484-553-6340.

    2:00 PM EST
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  • Jun
    25
    2024

    PFF Lung Transplant Community Support Group Meeting

    The PFF Lung Transplant Community Support Group is intended for those who have had or are awaiting a lung transplant due to pulmonary fibrosis. Our goal is to have an open discussion and dialogue around transplant-related challenges and celebrations.

    Virtual
    1:00 PM - 2:00 PM CST
    View Full Details
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Clinical Trials

Pulmonary fibrosis patients may find several advantages to joining a clinical trial. Participants may obtain access to a potential new PF medication and receive valuable education about improving their health.

Get involved with the PFF Walk

Join us this year as we walk together toward a cure in Pittsburgh, the NYC Metro area, the San Francisco Bay Area, Chicago, Washington D.C., Dallas, and virtually on National Walk Day!

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The Latest News for the PF Community

Explore press releases and articles of interest to PF patients, caregivers and medical professionals.

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Educational Materials

Find reliable information and trusted resources that can help you learn about pulmonary fibrosis and live better with PF.

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  • About the PFF

    Read our brochure for a snapshot overview of the Pulmonary Fibrosis Foundation.
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  • Pulmonary Fibrosis Information Guide

    Our comprehensive guide provides reliable information about pulmonary fibrosis, the diagnostic process, treatment options, and more.
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  • Oxygen Basics Booklet

    This booklet provides an in-depth overview of the the basics of supplemental oxygen, including equipment, getting started, Medicare information, and traveling.
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