The PFF Community Registry: Open for enrollment!
The Pulmonary Fibrosis Foundation is leading the fight by funding promising research and we need your help.
One of our key research programs is the PFF Community Registry. We invite eligible participants to join by completing a series of simple surveys. Your survey responses will be used by researchers to better understand how PF and ILD progress over time, respond to treatments, and how the diseases affect individuals. The more individuals who join and provide responses, the closer we come to a cure.
Eligible participants include:
- Patients living with PF and ILD
- Lung transplant recipients who have had PF or ILD
- Caregivers and biological family members of patients with PF or ILD, including those who have passed away
Enrolling in the PFF Community Registry is entirely online. All you need is internet access. Learn more about this groundbreaking program by visiting the PFF Community Registry homepage.
Be part of
Find an event and connect with others in the PF community.
Pulmonary fibrosis patients may find several advantages to joining a clinical trial. Participants may obtain access to a potential new PF medication and receive valuable education about improving their health.
Get involved with the PFF Walk
Join us this year as we walk together toward a cure in Pittsburgh, the NYC Metro area, the San Francisco Bay Area, Chicago, Washington D.C., Dallas, and virtually on National Walk Day!
The Latest News for the PF Community
Explore press releases and articles of interest to PF patients, caregivers and medical professionals.Read more news →
September 05, 2023
PFF Names Dr. Franck Rahaghi New President, CEO and Chief Medical OfficerRead Full Article PFF Names Dr. Franck Rahaghi New President, CEO and Chief Medical Officer
August 30, 2023
Learn the Facts About Interstitial Lung Disease on ILD Day on September 13Read Full Article Learn the Facts About Interstitial Lung Disease on ILD Day on September 13
July 26, 2023
PFF Community Registry Crosses One-Year Mark with Over 1,600 ParticipantsRead Full Article PFF Community Registry Crosses One-Year Mark with Over 1,600 Participants
About the PFFRead our brochure for a snapshot overview of the Pulmonary Fibrosis Foundation.
Pulmonary Fibrosis Information GuideOur comprehensive guide provides reliable information about pulmonary fibrosis, the diagnostic process, treatment options, and more.
Oxygen Basics BookletThis booklet provides an in-depth overview of the the basics of supplemental oxygen, including equipment, getting started, Medicare information, and traveling.