The PFF Community Registry: Open for enrollment!
The Pulmonary Fibrosis Foundation is leading the fight by funding promising research and we need your help.
One of our key research programs is the PFF Community Registry. We invite eligible participants to join by completing a series of simple surveys. Your survey responses will be used by researchers to better understand how PF and ILD progress over time, respond to treatments, and how the diseases affect individuals. The more individuals who join and provide responses, the closer we come to a cure.
Eligible participants include:
- Patients living with PF and ILD
- Lung transplant recipients who have had PF or ILD
- Caregivers and biological family members of patients with PF or ILD, including those who have passed away
Enrolling in the PFF Community Registry is entirely online. All you need is internet access. Learn more about this groundbreaking program by visiting the PFF Community Registry homepage.
Have you already enrolled? If so, you can log in to access your account.
Be part of
Find an event and connect with others in the PF community.
Robert Wood Johnson Hospital - Rahway Pulmonary Fibrosis Support Group
Join the Rahway Pulmonary Fibrosis Support Group virtual meeting from 3:30-4:30 p.m. Eastern Time.View Full Details
PFF Caring Conversations Support Group
Are you caring for a person who is living with pulmonary fibrosis? This monthly support group provides a safe and welcoming space for caregivers to connect, share experiences, and gain valuable insights. Each month, we gather to discuss topics that matter most to you, offering support and understanding in the journey of caring for a loved one with pulmonary fibrosis.View Full Details
Ann Arbor Pulmonary Fibrosis Support Group
We are a community dedicated to providing support, encouragement, and resources for individuals and families affected by pulmonary fibrosis. Topic: Clinical TrialsView Full Details
Pulmonary fibrosis patients may find several advantages to joining a clinical trial. Participants may obtain access to a potential new PF medication and receive valuable education about improving their health.
Get involved with the PFF Walk
Join us this year as we walk together toward a cure in Pittsburgh, the NYC Metro area, the San Francisco Bay Area, Chicago, Washington D.C., Dallas, and virtually on National Walk Day!
The Latest News for the PF Community
Explore press releases and articles of interest to PF patients, caregivers and medical professionals.Read more news →
January 22, 2024
Pulmonary Fibrosis Foundation Unveils Groundbreaking Research by PFF ScholarsRead Full Article Pulmonary Fibrosis Foundation Unveils Groundbreaking Research by PFF Scholars
December 08, 2023
Pulmonary Fibrosis Foundation’s PFF Summit 2023 Advances Research, Urges Clinical Trial Participation To Accelerate New TherapiesRead Full Article Pulmonary Fibrosis Foundation’s PFF Summit 2023 Advances Research, Urges Clinical Trial Participation To Accelerate New Therapies
January 17, 2024
Broadway Stars Take Center Stage in 14th Anniversary Benefit for Pulmonary FibrosisRead Full Article Broadway Stars Take Center Stage in 14th Anniversary Benefit for Pulmonary Fibrosis
About the PFFRead our brochure for a snapshot overview of the Pulmonary Fibrosis Foundation.
Pulmonary Fibrosis Information GuideOur comprehensive guide provides reliable information about pulmonary fibrosis, the diagnostic process, treatment options, and more.
Oxygen Basics BookletThis booklet provides an in-depth overview of the the basics of supplemental oxygen, including equipment, getting started, Medicare information, and traveling.