Privacy Policy

Privacy Policy and Legal Disclaimers

The information and advice contained in or made available on or through the Pulmonary Fibrosis Foundation (PFF) website is for informational and/or educational purposes only. It is not intended to be a substitute for professional medical advice. Always consult your personal physician or healthcare provider with any questions you may have regarding your specific medical condition.

Disclaimer of Warranty

The services, information, materials, or data (collectively "Information") made available on the PFF website are provided "AS IS," without warranties of any kind, implied, expressed, or statutory, including but not limited to the warranties of non-infringement of third party rights, title, merchantability, fitness for a particular purpose, and freedom from computer virus, is given with respect to the contents of this website or its hyperlinks to other Internet resources. The PFF makes no representation, warranty, or guaranty with respect to any Information contained in or made available on or through the PFF website, including, without limitation, the content, sequence, timeliness, completeness, reliability, or accuracy of any Information (including any Information regarding the diagnosis, management, or treatment of any medical condition). To the extent permitted by law, the PFF expressly disclaims any representations and warranties, including, without limitation, the implied warranties of merchantability and fitness for a particular purpose.

Donor Privacy Policy

Preserving donor privacy is a key concern of the Pulmonary Fibrosis Foundation (PFF). The PFF adheres to the Donor Bill of Rights developed by the Association of Fundraising Professionals (AFP), the Association for Healthcare Philanthropy (AHP), the Council for Advancement and Support of Education (CASE), and The Giving Institute.

The PFF neither sells nor shares donors' personal information with other organizations, nor does it send donor mailings on behalf of other organizations. If a donor indicates that he or she would no longer like to receive postal mail or e-mail from the PFF, the request will be honored immediately.

The PFF never divulges the amount given when issuing letters of notification that a gift has been made in memory or honor of an individual.

The PFF always honors donors’ requests to remain anonymous. Procedures are in place to ensure that the identities of these individuals remain confidential. 

This policy applies to all donors, regardless of whether they provided their information to the PFF online, over the phone, via mail, or under any other circumstances.

Opt-Out Policy

You may request not to be contacted by the PFF in connection with any new services, updates, programs or promotions. Requests not to be contacted by the PFF should be sent in writing to the Pulmonary Fibrosis Foundation, 230 East Ohio Street, Suite 500, Chicago, IL 60611 or via e-mail to You may also make your request by calling 888.733.6741.

Data Security

We use commercially reasonable efforts to prevent unauthorized access, maintain data accuracy, and ensure the correct use of information.  We have put in place commercially reasonable physical, electronic, and managerial procedures to safeguard and secure the information we collect online.  All media containing credit card information is stored at third-party datacenters with physical access controls in place that meet PCI (payment card industry) standards, and is subject to those third-party policies regarding data privacy and security.

The Foundation does not employ SSL encryption software on our website because we do not collect any personal information directly on our website. If personal information is required to be collected, the user is directed to a third party partner whose site is appropriately encrypted.

Access to our network and servers is limited to Foundation staff; user identification and passwords are strictly controlled, and passwords are required to be changed on a regular schedule. Access to third party database and processing centers is also limited to the appropriate Foundation staff and user identification and passwords are strictly controlled.  Our servers, workstations and online backups are monitored 24/7 by our independent IT consultants and these consultants also monitor our antivirus software and ensure that it is always up to date.  This limited user access and constant system monitoring ensure that information stored on our physical premises is strongly protected.

Below are links to the privacy policies of the third party partners that we use for communicating with our donors or processing our donor records:

Donor Perfect fundraising platform:

Q-Giv online fundraising platform:

MobileCause online fundraising platform:

Constant contact email marketing:


The sites linked to and from the PFF website are not under the control of the PFF, and the PFF does not assume any responsibility or liability for any services, information, products, or materials available at such linked sites. Links are provided for convenience only, and are not intended to be endorsements of the linked sites or the information, content, services, products, or materials contained therein, or referrals by the PFF to such linked sites.

Limitation of Liability

Neither the PFF, its affiliates and agents, nor the officers, employees, and directors of each of them, will be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from your use of this website, including, without limitation, any liability for damage to your computer hardware, software, or data, or business. Except as prohibited by law, the PFF shall have no liability for any loss or injury caused, in whole or in part, by its actions, omissions, or negligence in procuring, compiling, or delivering the Information, or any errors, omissions, or inaccuracies in the Information, regardless of how caused. In addition, the PFF shall have no liability for any decision made, or action taken or not taken, in reliance upon the Information.

Your Privacy and Security

Collection and Use of Your Information: PFF collects  only such personal information as may be provided by you.  This traditionally includes your name, address, telephone number, and email address, which we may request when you register for PFF programs, activities, webinars, and other activities. PFF may also request health information, such as when PFF asks whether you are a PF patient, family member or caregiver. At your option, you may also provide additional information, including date of birth, and specific interests. PFF’s policy concerning donor information is stated above under the heading  “Donor Privacy Policy.”

PFF may use the personal information it collects for the following activities and services:

  • send you donation solicitations or follow-up communications related to PF or PF-related developments, events, or updates
  • engage in fundraising through avenues including website, email, mail, and other solicitations
  • enable individuals to sign up for events such as the PFF Walk, Broadway Belts for PFF!, and other fundraising events
  • communicate with you regarding conferences or other PFF events that may be of interest to you, such as the PFF Summit
  • help connect the PF community through PFF platforms that foster communications between people with PF, families, caregivers and/or researchers who want to interact with others via blogs, forums, mentoring, or events
  • help people with PF find clinical trials
  • help people with PF and their caregivers connect with the PFF Care Centers
  • conduct surveys of visitors to the PFF website and potential users of PFF services
  • process donations to PFF
  • communicate with volunteers
  • engage people with PF to inform research being conducted in the PF community via focus groups, surveys, or other means
  • improve PFF’s operation and services
  • protect our rights and the rights of others, including to detect and prevent fraud, protect, enforce, or defend the legal rights, privacy, safety, or property of our services, our employees or agents, or other users and to comply with applicable law
  • other uses as may be consented to by you

The PFF will not sell information the PFF collects about you, or that you provide to the PFF, to any third party, although the PFF may disclose such information to its employees, officers, directors, agents, and representatives, and with third party vendors who provide services on the PFF's behalf such as processing payments or orders. In addition, the PFF may disclose such information where required by law or legal process. By interacting with this Site, the User acknowledges that he or she has read this privacy policy, understands it, agrees to its terms. To review or change the information you have voluntarily supplied the PFF, please send an email to

Forums and Public Areas Disclaimer

If you use an online support group (the Forums and Public Areas) on or available through the PFF site, you are solely responsible for your own communications, the consequences of posting those communications, and your reliance on any communications found in such Forums and Public Areas. In using such Forums and Public Areas, you agree to the following Terms and Conditions of Use:

(a) You represent and warrant that you are at least 18 years of age and that you will not permit the posting of questions or comments by persons under 18 years of age without the consent of their parents. [If an age restriction is applicable.

(b) You agree that you will not upload, post, transmit, distribute, or otherwise publish on the PFF's website [or in its online sponsored support groups] any information or materials which (1) restrict or inhibit other Users from using the or enjoying the PFF's website or the Forums and Public Areas or which, in the judgment of the PFF, exposes the PFF or any of its vendors, partners, or suppliers to any liability or detriment of any type (2) are unlawful, obscene, derogatory, defamatory, threatening, harassing, abusive, slanderous, hateful, or embarrassing to any other person or entity as determined by the PFF in its sole discretion; (3) names, email addresses, telephone numbers, or any other confidential or personally identifiable information of yourself or any person(s) or entities; (4) posting material that infringes on the copyrights or other intellectual property rights of others or on the privacy or publicity rights of others or using the website for any purpose violation of local, state, federal, or international laws; (5) posting advertisements or solicitations of business or posting links to other websites or individuals, without prior written permission from the PFF and the persons or websites in question; (6) posting chain letters or pyramid schemes; (7) impersonating another person or entity, registering under more than one name and/or email address or allowing any other person or entity to use your identification for posting or viewing comments; (8) distributing viruses or other harmful computer code; (9) posting the same note more than once, violating the CAN-SPAM Act or otherwise engaging in any activity that would amount to "spamming"; or (10) after receiving a warning, continuing to disrupt the normal flow of dialogue, or posting comments that are not related to the topic being discussed (unless it is clear the discussion is free-form).

(c) You agree that you will not upload or transmit any communications or content of any type that infringes upon or violates any rights of any party. By submitting communications or content to any part the the PFF website, you agree that such submission is non-confidential for all purposes.


The PFF does not sponsor, endorse, or approve any specific commercial product or service mentioned on the the PFF website or on any websites linked to by the PFF website.

Advertising Policy

This site does not accept paid advertising, and does not host or receive funding from advertising or from the display of commercial content.

Use of Name and Logos

Use and display of the name Pulmonary Fibrosis Foundation, PFF, Team PFF, and all logos are restricted by law and may be used only as authorized.