ILD Day

The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, FSR has fostered over $9 million in sarcoidosis-specific research efforts.

Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease of unknown cause characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. Sarcoidosis affects the lungs in approximately 90% of cases, but it can affect almost any organ in the body and in more advanced or chronic cases can impact multiple organs at the same time. Despite increasing advances in research, sarcoidosis remains difficult to diagnose with limited treatment options and no known cure.

The Myositis Association's mission is to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. 

The term myositis is used to refer to a set of autoimmune diseases involving chronic inflammation of the muscles. This often occurs together with other symptoms, such as pain, fatigue, trouble swallowing, and others. 

Our mission is to accelerate early detection and advance treatment options for Myositis through targeted awareness programs for patients and healthcare providers and supporting cutting-edge research – with specialized emphasis on Anti-MDA5 Dermatomyositis and Interstitial Lung Disease. 

Anti-MDA5 Dermatomyositis is a rare autoimmune disease in which the immune system attacks the muscles, skin, and lungs, often causing skin rashes, muscle weakness, and rapidly progressive lung inflammation known as Interstitial Lung Disease (ILD). The disease can be especially serious because the lung involvement may progress quickly, making early recognition, aggressive treatment, and coordinated care across Rheumatology and Pulmonology critical.

The Pulmonary Fibrosis Foundation is committed to accelerating research, empowering our community, and transforming care so that everyone with pulmonary fibrosis can live a better life.  Our ultimate goal is to find a cure for pulmonary fibrosis.

The word "pulmonary" means lung and the word "fibrosis" means scar tissue — similar to scars that form on the skin from an old injury or surgery. Pulmonary fibrosis (PF) is a process that causes lung scarring, in which fibrotic tissue blocks the movement of oxygen from inside the tiny air sacs in the lungs into the bloodstream. 

PF Warriors is a global support network that provides education, inspiration, and hope to individuals and families affected by pulmonary fibrosis. Our mission is to help people facing a life-altering progressive lung condition to live their best possible lives after diagnosis.

Pulmonary fibrosis and other interstitial lung diseases (ILDs) are a group of serious lung conditions that cause scarring and inflammation in the lungs, making it increasingly difficult to breathe and maintain daily activities. These diseases are progressive and life-altering, impacting not only patients but also caregivers and families.

Our mission is to provide hope, support, education, advocacy, and community for people affected by scleroderma, fostering connection and understanding, and to raise awareness and funds that drive research, improve quality of life, and bring the community together in the fight against this rare disease. 

Scleroderma is a rare autoimmune disease that causes the immune system to overproduce collagen, leading to tightening and thickening of connective tissues in the skin and organs. It can affect the skin, blood vessels, lungs, heart, kidneys, and digestive system, leading to chronic pain, disability, internal organ complications, reduced mobility, fatigue, and emotional stress.

The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.

Scleroderma is an autoimmune disorder—a rheumatic disease that causes inflammation in the skin and other areas of the body. The name scleroderma literally means “hard skin” because the inflammation triggers the body’s own immune system to make too much collagen, leading to the hardening and tightening of the skin and connective tissues (ie: fibrosis). In the most serious cases, there can be complications resulting in damage to the heart, lungs, and digestive system.

The Sjögren’s Foundation's mission is to support Sjögren’s patients and their loved ones through education, resources and services; provide credible resources and education for healthcare professionals; serve as the voice for all Sjögren’s patients through advocacy and awareness initiatives; and lead, encourage, and fund innovative research projects to better understand, diagnose and treat Sjögren’s.

The mission of Team Telomere is to empower individuals worldwide impacted by Telomere Biology Disorders with information and support services, to advance improved diagnosis through education and advocacy, and to accelerate the medical and scientific community’s research in finding causes, effective treatments, and a path towards a cure. 

Team Telomere is the leading patient advocacy organization for telomere biology disorders (TBDs) focused ILD/IPF and other complications related to TBDs.

The Wescoe Foundation for Pulmonary Fibrosis supports individuals affected by pulmonary fibrosis by providing education, advocacy, and resources to improve quality of life.