Care Center Network

Providing expert care in pulmonary fibrosis and interstitial lung disease

The Pulmonary Fibrosis Foundation (PFF) is dedicated to promoting earlier recognition and diagnosis of pulmonary fibrosis and ensuring that patients receive the highest quality healthcare. As part of that commitment, the Foundation has worked with the PF medical community to establish the PFF Care Center Network, where people with PF can find experienced medical professionals who understand their disease and support services to improve the quality of their lives.

View Current List of CCN Sites

More about the PFF Care Center Network

To further serve the community of patients, caregivers and loved ones affected by pulmonary fibrosis, the PFF has undergone a program evaluation of the PFF Care Center Network, specifically in regards to the application and acceptance process of nationwide medical institutions. This does not affect the status of current PFF Care Center Network sites.

The application process to join the Care Center Network (CCN) under full membership criteria reopened in late spring 2022, and interested medical centers were invited to apply.

In 2023, membership and participation opportunities for interested community-based providers from across the country will be released in an effort to increase the reach of PFF resources and impact the delivery of care.

Interested sites may contact us at ccn@pulmonaryfibrosis.org with questions. Thank you for your interest in the PFF Care Center Network program and for your commitment to the pulmonary fibrosis community.

What is a PFF Care Center Network site?

Why is the PFF Care Center Network important to the PFF community?

How do the PFF Care Center Network and the PFF Registry work together?

Where can I find a PFF Care Center Network site?

CCN Committees and Working Groups

CCN Steering Committee

Provide guidance and recommendations to PFF Leadership and collaborate with the CCN sites in achieving the PFF mission. The Committee meets every other month.

Chair:
Sonye Danoff, MD, PhD, Johns Hopkins

Members:
Scott Staszak, PFF Interim CEO and Chief Operating Officer
Jessica Shore, PhD, RN, PFF Vice President of Clinical Affairs and Quality
Joe Lasky, MD, PFF Chief Medical Officer
Amy Case, MD, FCCP, Piedmont Healthcare
Tejaswini Kulkarni, MD, University of Alabama at Birmingham
Jamie Lederer, CRNP, MSN, University of Pennsylvania
Joyce Lee, MD, MS, University of Colorado Anschutz Medical Campus
Anoop Nambiar, MD, University of Texas Health Science Center San Antonio
Lanier O'Hare, CRNP, University of Alabama at Birmingham
Ross Summer, MD, Thomas Jefferson University Hospital
Sherry Manke
Junelle Speller, MBA, PFF Registry Vice President
Kevin Flaherty, MD, MS, University of Michigan Health System
Maryl Kreider, MD, MSCE, University of Pennsylvania
Murali Ramaswamy, MD, LeBauer Healthcare at Cone Health
Sandra Bennett-Pagan
Erica Farrand, MD, University of California at San Francisco
Janell Reichuber, MSN, RN, University of Kansas Hospital
Krishna Thavarajah, MD, Henry Ford Health System
Ingrid Schwab, PFF CCN Manager
Aubrey Trecek, PFF CCN Coordinator

Rural Health Outreach Committee

Goal of the committee is to increase and improve access to pulmonary care for patients living in rural areas and develop for providers caring for patients living with PF tools that are specific for rural areas. Meetings are every other month.

Chairs:
Rebecca Bascom, MD, MPH, Penn State Health
Tejaswini Kulkarni, MD, University of Alabama

CCN Best Practices Committee

Committee members use various sources of data in order to determine ways in which the quality of care provided to patients with ILD can be improved. Meetings are quarterly.

Chairs:
Krishna Thavarajah, MD, Henry Ford Health System
Nitin Bhatt, MD, The Ohio State University

Palliative Care Working Group

Develop and disseminate Palliative Care Position Statements. Meetings are ad hoc during manuscript development.

Chairs:
Sonye Danoff, MD, PhD, Johns Hopkins
Kathleen Lindell, PhD, RN, ATSF, FAAN, Medical University of South Carolina

Pulmonary Hypertension Related ILD Position Statement

Develop and disseminate Pulmonary Hypertension Related ILD Position Statements.

Chairs:
Amy Case, MD, FCCP, Piedmont Healthcare
Steven Nathan, MD, Inova Fairfax Medical Campus

For questions related to CCN Committees and Working Groups: ccn@pulmonaryfibrosis.org

How the PFF Care Center Network is funded

The PFF Care Center Network is funded through the generous support of corporations, foundations, and individuals who have been impacted by PF who realize that the creation of a comprehensive health care network is fundamentally important to improving the lives of individuals with PF. If you would like to contribute to this important program, please donate now.

PFF Care Center Network

Providing expert care in pulmonary fibrosis and interstitial lung disease

More about the PFF Care Center Network

How the PFF Care Center Network is funded

SPONSORED WITH THE GENEROUS SUPPORT OF