PFF In The Media

  • Sep 21, 2022

    Community Registry Grows Research Abilities Of Pulmonary Fibrosis Foundation

    In July, the Pulmonary Fibrosis Foundation (PFF) launched the PFF Community Registry to begin collecting data directly from patients in the U.S. with pulmonary fibrosis (PF) and interstitial lung disease (ILD)—together with their nonprofessional caregivers and biological family members—as well as lung transplant recipients previously diagnosed with PF or ILD.

    Link to Article
    Source: Clinical Research News
  • Sep 20, 2022

    Being Idiopathic: Solving the Mystery of My Diagnosis

    I’ve spent much of my working life conducting investigations. As a special agent for the Air Force Office of Special Investigations and in a second career providing security and investigative services under contract to the federal government, the cases all had similar objectives.

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    Source: Pulmonary Fibrosis News
  • Aug 31, 2022

    First-time Pulmonary Fibrosis walk planned in honor of Sand Springs man

    A Sand Springs woman is hosting a Pulmonary Fibrosis awareness walk in September in honor of her late husband. Stephanie Hagar wears her husband Michael’s ashes and wedding ring around her neck and has a tattoo in his honor on her wrist.

    Link to Article
    Source: Fox 23 News
  • Aug 30, 2022

    Keck Medicine’s Center for Advanced Lung Disease designated as pulmonary fibrosis care center

    Keck Medicine of USC’s Center for Advanced Lung Disease has been designated as one of 74 sites included in the Pulmonary Fibrosis Foundation Care Center Network. These sites are recognized for their efforts in diagnosing, treating and providing support to those living with pulmonary fibrosis (PF), a life-threatening lung disease that currently has no cure.

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    Source: HSC News
  • Aug 24, 2022

    Pulmonary Fibrosis Foundation’s latest registry offers research opportunities

    The Pulmonary Fibrosis Foundation (PFF) has launched the PFF Community Registry to facilitate research on pulmonary fibrosis (PF) and interstitial lung disease (ILD). The PFF Community Registry collects self-reported data from patients, nonprofessional caregivers and biological family members via a secure online portal.

    Link to Article
    Source: DRUG Discovery & Development
  • Aug 24, 2022

    Pulmonary fibrosis patient makes every breath count

    Forrest Reed always felt extremely healthy for a 70-year-old. He did not require any medications, his blood pressure was low and at his annual physical his doctor thought his lungs sounded fine.

    Link to Article
    Source: UC Davis Health
  • Aug 24, 2022

    Pulmonary fibrosis patient makes every breath count

    Forrest Reed always felt extremely healthy for a 70-year-old. He did not require any medications, his blood pressure was low and at his annual physical his doctor thought his lungs sounded fine. Then he mentioned a dry, recurring cough he had been experiencing for the past couple of months.

    Link to Article
    Source: UC Davis Health
  • Aug 10, 2022

    OU Health joins Pulmonary Fibrosis network

    Americans living with pulmonary fibrosis, a life-threatening lung disease, have gained access to specialized care through the Pulmonary Fibrosis Foundation’s Care Center Network, which recently announced that six new sites, including OU Health in Oklahoma City, have joined. The goal of the network is to help diagnose, treat, and provide support for more than 250,000 Americans living with pulmonary fibrosis.

    Link to Article
    Source: The Journal Record
  • Aug 05, 2022

    Pulmonary Fibrosis Patient Registry Data Reveal PF, ILD Outcome Variations

    Recent studies based on data from the Pulmonary Fibrosis Foundation Patient Registry,1 presented at the American Thoracic Society (ATS) 2022 Conference, “provide important information on potential disparities and differences in the diagnosis, prognosis, and management of patients with pulmonary fibrosis or interstitial lung disease,” said Joyce S. Lee, MD, MS, lead author of 1 of those studies and the senior medical advisor for research and health care quality at the Pulmonary Fibrosis Foundation (PFF).

    Link to Article
    Source: Pulmonology Advisor
  • Aug 05, 2022

    Pulmonary Fibrosis Patient Registry Data Reveal PF, ILD Outcome Variations

    Recent studies based on data from the Pulmonary Fibrosis Foundation Patient Registry,1 presented at the American Thoracic Society (ATS) 2022 Conference, “provide important information on potential disparities and differences in the diagnosis, prognosis, and management of patients with pulmonary fibrosis or interstitial lung disease,” said Joyce S. Lee, MD, MS, lead author of 1 of those studies and the senior medical advisor for research and health care quality at the Pulmonary Fibrosis Foundation (PFF).

    Link to Article
    Source: Pulmonology Advisor
  • Aug 04, 2022

    The Clinical Lab’s Role in Diagnosing Idiopathic Pulmonary Fibrosis

    While the exact cause of idiopathic pulmonary fibrosis is not always known, clinicians have a wealth of diagnostic tools at their disposal to help identify the potential causes of the disease and, if it is indeed idiopathic pulmonary fibrosis, potential treatments to help manage it.

    Link to Article
    Source: Clinical Lab Products
  • Aug 04, 2022

    Registry Launched to Reach More Patients With PF

    The Pulmonary Fibrosis Foundation (PFF) has launched a new initiative in which they hope to capture a far more diverse representation of patients with pulmonary fibrosis (PF) than the current registry allows them to do, a press release from the PFF indicated.

    Link to Article
    Source: Medscape
  • Jul 18, 2022

    Pulmonary Fibrosis Foundation launches community registry for self-reported data

    The Pulmonary Fibrosis Foundation (PFF) has launched the PFF Community Registry, a separate data set of the PFF Registry™ that is provided directly by participants with pulmonary fibrosis (PF), their caregivers and family members. Will collect reported data. members, and lung transplant recipients previously diagnosed with PF.

    Link to Article
    Source: Florida News
  • May 20, 2022

    PFF Highlights Opportunities for Patients on Clinical Trials Day

    May 20 is Clinical Trials Day, a time to recognize the importance of clinical research in advancing public access to innovative medicine and treatments to improve the lives of people worldwide. For the pulmonary fibrosis (PF) community, clinical trials offer answers to questions that could change the future of how PF is treated and help to someday find a cure.

    Link to Article
    Source: Medium
  • May 17, 2022

    Pulmonary Fibrosis Foundation Expands Clinical Trial Resources for Patients

    The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis research, education, and advocacy organization, has developed new materials and tools for people living with pulmonary fibrosis (PF) to learn about and enroll in clinical research studies. The Clinical Trials Guide for Patients provides comprehensive information on the types and phases of clinical trials, and how patients can participate.

    Link to Article
    Source: Newswise
  • May 16, 2022

    Pulmonary Fibrosis Foundation Research Explores Quality and Access to Patient Care

    The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis research education and advocacy organization, announced research results from four studies examining access to care and outcomes for patients living with pulmonary fibrosis (PF) and interstitial lung disease (ILD).

    Link to Article
    Source: Newswise
  • May 09, 2022

    Jane Jackman shares what it's like living with pulmonary fibrosis | Community Voices

    Jane Jackman is a Springfield resident with years of experience working in the medical field as a physician. She spoke to Community Voices about her diagnosis of idiopathic pulmonary fibrosis, which is a disease that causes scarring of the lungs making it increasingly difficult for patients to breath as the disease progresses. Fortunately Jackman received a much-needed lung transplant, and now she speaks on the need for more research and treatment of pulmonary fibrosis.

    Link to Article
    Source: NPR Illinois
  • May 05, 2022

    BROADWAY BELTS FOR PFF! Gala Featuring Julie Halston, Telly Leung, Beth Leavel & More Raises Record $475,000

    The Pulmonary Fibrosis Foundation's 12th annual Broadway Belts for PFF! raised a record $475,000 in a new hybrid format on April 29. The sold-out gala at New York City's Edison Ballroom, live streamed for the first time, is the single largest fundraiser in the Foundation's history.

    Link to Article
    Source: Broadway World