PFF In The Media

PFF Urges Patients to Use Only FDA-Approved Oxygen Delivery Devices

The Pulmonary Fibrosis Foundation has issued a position statement on non-prescription supplemental oxygen. Patients living with pulmonary fibrosis should have a prescription for oxygen from their healthcare provider and should only use FDA-approved oxygen delivery devices.

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PFF Urges Patients to Use Only FDA-Approved Oxygen Devices

The medical advisory board of the Pulmonary Fibrosis Foundation (PFF) has issued a position statement on non-prescription supplemental oxygen, advising the patient community to use only FDA-approved oxygen delivery devices as prescribed by their doctor.

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PFF Issues Warning About Non-Prescription Supplemental Oxygen

The PFF warns that patients should not purchase an oxygen supply device without a prescription from a health care provider because doing so may lead to serious health problems. It also warns non-FDA approved oxygen delivery systems may not reliably deliver oxygen.

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Pulmonary Fibrosis Foundation’s latest registry offers research opportunities

The PFF Community Registry collects self-reported data from patients, nonprofessional caregivers and biological family members via a secure online portal. Participation is voluntary.

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The Internet Is a Valuable Tool for PF Information, but Always Be Cautious

One of the first sources of reliable information about pulmonary fibrosis (PF) I found was the Pulmonary Fibrosis Foundation (PFF) website. The PFF had curated a collection of resources for patients, caregivers, and the medical community that I found useful.

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Being Idiopathic: Solving the Mystery of My Diagnosis

I’ve spent much of my working life conducting investigations. As a special agent for the Air Force Office of Special Investigations and in a second career providing security and investigative services under contract to the federal government, the cases all had similar objectives.

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Community Registry Grows Research Abilities Of Pulmonary Fibrosis Foundation

In July, the Pulmonary Fibrosis Foundation (PFF) launched the PFF Community Registry to begin collecting data directly from patients in the U.S. with pulmonary fibrosis (PF) and interstitial lung disease (ILD)—together with their nonprofessional caregivers and biological family members—as well as lung transplant recipients previously diagnosed with PF or ILD.

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First-time Pulmonary Fibrosis walk planned in honor of Sand Springs man

A Sand Springs woman is hosting a Pulmonary Fibrosis awareness walk in September in honor of her late husband. Stephanie Hagar wears her husband Michael’s ashes and wedding ring around her neck and has a tattoo in his honor on her wrist.

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Keck Medicine’s Center for Advanced Lung Disease designated as pulmonary fibrosis care center

Keck Medicine of USC’s Center for Advanced Lung Disease has been designated as one of 74 sites included in the Pulmonary Fibrosis Foundation Care Center Network. These sites are recognized for their efforts in diagnosing, treating and providing support to those living with pulmonary fibrosis (PF), a life-threatening lung disease that currently has no cure.

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Pulmonary Fibrosis Patient Registry Data Reveal PF, ILD Outcome Variations

Recent studies based on data from the Pulmonary Fibrosis Foundation Patient Registry,1 presented at the American Thoracic Society (ATS) 2022 Conference, “provide important information on potential disparities and differences in the diagnosis, prognosis, and management of patients with pulmonary fibrosis or interstitial lung disease,” said Joyce S. Lee, MD, MS, lead author of 1 of those studies and the senior medical advisor for research and health care quality at the Pulmonary Fibrosis Foundation (PFF).

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Registry Launched to Reach More Patients With PF

The Pulmonary Fibrosis Foundation (PFF) has launched a new initiative in which they hope to capture a far more diverse representation of patients with pulmonary fibrosis (PF) than the current registry allows them to do, a press release from the PFF indicated.

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The Clinical Lab’s Role in Diagnosing Idiopathic Pulmonary Fibrosis

While the exact cause of idiopathic pulmonary fibrosis is not always known, clinicians have a wealth of diagnostic tools at their disposal to help identify the potential causes of the disease and, if it is indeed idiopathic pulmonary fibrosis, potential treatments to help manage it.

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PFF Highlights Opportunities for Patients on Clinical Trials Day

May 20 is Clinical Trials Day, a time to recognize the importance of clinical research in advancing public access to innovative medicine and treatments to improve the lives of people worldwide. For the pulmonary fibrosis (PF) community, clinical trials offer answers to questions that could change the future of how PF is treated and help to someday find a cure.

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Pulmonary Fibrosis Foundation Expands Clinical Trial Resources for Patients

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis research, education, and advocacy organization, has developed new materials and tools for people living with pulmonary fibrosis (PF) to learn about and enroll in clinical research studies. The Clinical Trials Guide for Patients provides comprehensive information on the types and phases of clinical trials, and how patients can participate.

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Pulmonary Fibrosis Foundation Research Explores Quality and Access to Patient Care

The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis research education and advocacy organization, announced research results from four studies examining access to care and outcomes for patients living with pulmonary fibrosis (PF) and interstitial lung disease (ILD).

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Jane Jackman shares what it's like living with pulmonary fibrosis | Community Voices

Jane Jackman is a Springfield resident with years of experience working in the medical field as a physician. She spoke to Community Voices about her diagnosis of idiopathic pulmonary fibrosis, which is a disease that causes scarring of the lungs making it increasingly difficult for patients to breath as the disease progresses. Fortunately Jackman received a much-needed lung transplant, and now she speaks on the need for more research and treatment of pulmonary fibrosis.

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BROADWAY BELTS FOR PFF! Gala Featuring Julie Halston, Telly Leung, Beth Leavel & More Raises Record $475,000

The Pulmonary Fibrosis Foundation's 12th annual Broadway Belts for PFF! raised a record $475,000 in a new hybrid format on April 29. The sold-out gala at New York City's Edison Ballroom, live streamed for the first time, is the single largest fundraiser in the Foundation's history.

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Broadway Belts for PFF! Raises Record $475,000

The Pulmonary Fibrosis Foundation’s (PFF) 12th annual Broadway Belts for PFF! raised a record $475,000 in a new hybrid format on April 29. The sold-out gala at New York City’s Edison Ballroom, live streamed for the first time, is the single largest fundraiser in the Foundation’s history.

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