PFF In The Media

National Donor Day: Receiving the Gift of Life – and a Breath of Fresh Air – Thanks to Organ Donation

National Donor Day (Feb. 14) was created more than 20 years ago to focus on five points of life: organs, tissues, marrow, platelets, and blood. Many groups use this day to sponsor blood and marrow drives and organ/tissue donation sign-up events.

Link to Article

The PFF Celebrates Black History Month with Inspiring Stories, Highlights Need for Diversity in Research

This year’s theme for Black History Month is “Black Health and Wellness,” which provides an important opportunity to consider how to decrease health disparities in care. In the case of pulmonary fibrosis (PF) — a progressive, debilitating lung disease that causes scarring in the lungs — recent studies suggest the need for additional research with diverse patient populations to better understand the disease and treatment options.

Link to Article

International Quality of Life Month: How Patients with PF Live Life to the Fullest

Living with a disease like pulmonary fibrosis (PF) can be isolating, and without adequate supportive care resources, patients living with all forms of PF may not have the tools to live life to the fullest.

Link to Article

Pulmonary Fibrosis Foundation Educates Patients on Supportive Care and Treatments for International Quality of Life Month

Living with a disease like pulmonary fibrosis (PF) can often be isolating, and without adequate supportive care resources, patients living with all forms of PF may not have the tools to maximize quality of life. There are several supportive care and therapy treatments that can be transformative in the lives of patients and, more importantly, can offer them the hope, determination, and inspiration to live each day to the fullest.

Link to Article

Woman walks from Wisconsin to Port Aransas

PORT ARANSAS, Texas — It was a successful completion of the journey of a lifetime. As Mary Hesch completed a 1,450 mile walk from Wisconsin. The walk ended in Port Aransas.

Link to Article

Woman concludes 1,400-mile walk in Port Aransas to raise awareness of pulmonary fibrosis

Mary Hesch started a 107-day walking journey in Stevens Point, Wisconsin, on Sept. 15 to raise awareness of pulmonary fibrosis and money for the Pulmonary Fibrosis Foundation. Surrounded by her family and friends, Hesch finished the five-state, 1,400-mile trek Dec. 30, 2021, on the beach in Port Aransas.

Link to Article

The Insidious Interstitial Lung Disease

Interstitial lung disease (ILD) is an umbrella term for a large collection of connected lung problems that affect the interstitium, the tissue surrounding air sacs, blood vessels, and airways in the lungs.

Link to Article

Woman walks over 1,400 miles to honor her late mother and raise awareness of pulmonary fibrosis

Along a windy stretch of Texas highway, a woman walks with purpose. Mary Hesch is on a 1,439-mile pilgrimage from central Wisconsin to the Texas coast -- all of it on foot -- to honor her mother and raise awareness of the lung disease that took her life.

Link to Article

Air pollution has various effects in fibrotic ILD

There is evidence to indicate that airborne pollutants are associated with preclinical ILD — in other words, interstitial lung abnormalities and possibly the incidence of idiopathic pulmonary fibrosis.

Link to Article

Four potential pulmonary fibrosis therapies to watch

The drug development landscape in idiopathic pulmonary fibrosis is changing rapidly. “There are probably 30 or 40 different compounds in development,” said Dr. Toby Maher, a presenter at the Pulmonary Fibrosis Foundation (PFF) Summit held last month.

Link to Article

Treatment options expanding for progressive fibrosing ILD

A speaker at the PFF Summit highlighted recent trials and therapeutic updates for progressive fibrosing interstitial lung disease. Read more to learn about the latest news about treatment options for ILD.

Link to Article

Prioritizing Self-care

November’s National Family Caregivers Month allows us to share appreciation for those unsung heroes who make a difference for patients every day.

Link to Article

Couple speaks out on pulmonary fibrosis experiences, caregiving

Gary Cunningham and his wife, Marianne Sarazin, are spreading the word about pulmonary fibrosis and how to manage it. The couple recently gave presentations at the Pulmonary Fibrosis Foundation’s virtual summit.

Link to Article

Sterling Heights man to speak at Pulmonary Fibrosis Foundation summit

Gary Cunningham, who suffered from idiopathic pulmonary fibrosis, a common type of pulmonary fibrosis, will speak at the Summit on Nov. 13, the final day of the event. Cunningham’s only treatment option was to receive a double lung transplant, which he received in July 2019.

Link to Article

West Hartford Man Makes It His Goal to Make a Difference After Devastating Diagnosis

Nobody wants to learn that they have a life-threatening disease, but when one West Hartford man got that news, he not only decided to fight, but also took action to help others. This week, Mal Doyle will participate in the PFF Summit 2021.

Link to Article

Pinpoint These Symptoms for Respiratory Care Week

National Respiratory Care Week marks an important time to raise awareness about little-known lung diseases like PF

Link to Article

Pulmonary Fibrosis Foundation Position Statement Recommends Addressing Palliative Care Early in Patient Journey

The Pulmonary Fibrosis Foundation (PFF) has issued a position statement that recommends healthcare providers address the incorporation of palliative care early in the medical journey of patients living with pulmonary fibrosis (PF).

Link to Article

Pulmonary Fibrosis Foundation Position Statement Addresses Palliative Care Early in Patient Journey

The Pulmonary Fibrosis Foundation (PFF) has issued a position statement that recommends healthcare providers address the incorporation of palliative care early in the medical journey of patients living with pulmonary fibrosis (PF).

Link to Article