Lead a Support Group

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Our Network of Support Educates and Connects Leaders

Are you interested in starting a pulmonary fibrosis support group? The Pulmonary Fibrosis Foundation can provide you with the information and resources you will need to develop and run your support group.  We can assist you in promoting your group to our members and provide you with PFF educational materials to share with your group.

Our Support Group Leader Network provides a forum for pulmonary fibrosis support group leaders to interact, exchange ideas, and discuss best practices. Launched in 2012, the Network assists leaders in gaining the knowledge and resources to establish or host a support group.

For further information, please contact the PFF Help Center at 844.TalkPFF (844.825.5733) or help@pulmonaryfibrosis.org.

Support Group Leader Guide

The Pulmonary Fibrosis Foundation Support Group Leader Guide provides an overview of PF support group basics, meeting fundamentals, and potential meeting topics. This guide was written by support group leaders and provides helpful information, whether you are planning your first PF support group, or developing new meetings for an established group.

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Quarterly Support Teleconferences

The PFF Support Group Leader Network quarterly teleconferences provide up-to-date information from the Foundation and offer a forum for support group leaders to discuss ideas and best practices for leading their groups. In addition to quarterly teleconferences, all support group leaders receive a quarterly Support Group Leader Network eNewsletter.

To join our next PFF Support Group Leader Network teleconference, please contact the PFF Help Center at 844.TalkPFF (844.825.5733) or help@pulmonaryfibrosis.org.

Leanne Storch Support Group Fund

The Leanne Storch Support Group Fund, established in 2012, honors the commitment of Leanne Storch, former executive director of the Pulmonary Fibrosis Foundation, who was diagnosed with pulmonary fibrosis in 2003 and received a lung transplant in 2014. Leanne ran a local support group for 10 years. Leanne passed away in 2019 and the Pulmonary Fibrosis Foundation is proud to honor her legacy with this grant.

The PFF is dedicated to assisting the all-volunteer PF support group community to engage their local PF patients, caregivers and family members, establish new support groups, and host meaningful educational events. The Leanne Storch Support Group Fund 2021 application cycle is now closed.

Groups are limited to one grant per funding year. Support group leaders can request funds to cover expenses such as site rental fees, printing costs, refreshments, and other costs related to starting and/or running a quarterly or monthly PF support group.

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Support Group Leader Network Video Resources

The PFF has curated a list of short videos to help you learn how to start and manage a pulmonary fibrosis support group. Watch these videos to learn tips from other support group leaders.