Pulmonary fibrosis is a terrible disease. Thanks to the PFF Registry, we have many research projects in the pipeline. The promise of research bodes well for everybody.

Mark McCormick
Patient

When Chuck's father was diagnosed with pulmonary fibrosis years ago, we called the PFF. Fifteen years later, the PFF has grown and evolved and has created an important community and scientific resource. That’s why we support the PFF and the PFF Registry.

Chuck and Monica McQuaid
The Chuck and Monica McQuaid Family Foundation

 

The science of ILD is advancing because of collaborative efforts of the patient community, industry, academia, advocacy groups, and the government all working together to find new approaches and treatments that will help patients. We are proud to support the PFF Registry to help advance science and have a positive impact on the PF community.

Jack Stauffer, MD
Senior Medical Director
Genentech

 

Every minute counts with PF, so the faster we can go from an idea for a study to answering a question or moving a new drug into the clinic, the better. This efficiency in expediting research is the Registry.

Dana Ball
Executive Director
Three Lakes Foundation

 

Donors

The Pulmonary Fibrosis Foundation would like to thank each of our donors for supporting the PFF Registry.

Become a Sponsor

For more information about sponsoring the PFF Registry, email partnerships@pulmonaryfibrosis.org.

 

Thank You to Our Partners

 

Founding Partner

.

 

Visionary Partner

.

Sustaining Partner

Boehringer Ingelheim

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Peter L. O’Neill
Memorial Fund

 

The Gerry and Bill Cowlin Foundation

 

The Chuck and Monica McQuaid
Family Foundation

 

Three Lakes
Foundation

Hales Family
Foundation, Inc.

Goldhirsh-Yellin
Foundation

Donate Today

Your gift to the PFF Registry will enable us to expand patient enrollment and provide even greater access to investigators as they search for answers to PF.

Your Privacy Matters

The Pulmonary Fibrosis Foundation Registry considers the protection of your privacy to be one of our most important responsibilities. We have set up strict protocols to protect your personal information. Review our privacy policy.

PFF Registry News

View the latest news and updates about the PFF Registry.

Contact Us

For information about the PFF Registry, contact registry@pulmonaryfibrosis.org.

PFF Registry

Patient Powered. Data Driven. Research Results.