Pulmonary fibrosis is a terrible disease. Thanks to the PFF Registry, we have many research projects in the pipeline. The promise of research bodes well for everybody.

Mark McCormick

When Chuck's father was diagnosed with pulmonary fibrosis years ago, we called the PFF. Fifteen years later, the PFF has grown and evolved and has created an important community and scientific resource. That’s why we support the PFF and the PFF Registry.

Chuck and Monica McQuaid
The Chuck and Monica McQuaid Family Foundation



The science of ILD is advancing because of collaborative efforts of the patient community, industry, academia, advocacy groups, and the government all working together to find new approaches and treatments that will help patients. We are proud to support the PFF Registry to help advance science and have a positive impact on the PF community.

Cindy Burg, PharmD, BCPS
Senior Medical Science Director, Respiratory


Every minute counts with PF, so the faster we can go from an idea for a study to answering a question or moving a new drug into the clinic, the better. This efficiency in expediting research is the Registry.

Dana Ball
Executive Director
Three Lakes Foundation



The Pulmonary Fibrosis Foundation would like to thank each of our donors for supporting the PFF Registry.

Become a Sponsor

For more information about sponsoring the PFF Registry, email partnerships@pulmonaryfibrosis.org.


Thank You to Our Partners


Founding Partner



Visionary Partner


Sustaining Partner

Boehringer Ingelheim


Peter L. O’Neill
Memorial Fund


The Gerry and Bill Cowlin Foundation


The Chuck and Monica McQuaid
Family Foundation


Three Lakes

Hales Family
Foundation, Inc.


Donate Today

Your gift to the PFF Registry will enable us to expand patient enrollment and provide even greater access to investigators as they search for answers to PF.

Your Privacy Matters

The Pulmonary Fibrosis Foundation Registry considers the protection of your privacy to be one of our most important responsibilities. We have set up strict protocols to protect your personal information. Review our privacy policy.

PFF Registry News

View the latest news and updates about the PFF Registry.

Contact Us

For information about the PFF Registry, contact registry@pulmonaryfibrosis.org.

PFF Registry

Patient Powered. Data Driven. Research Results.