Joyce Lee, MD, MS
University of Colorado Anschutz Medical Campus,
PFF Senior Medical Advisor, Research and Health Care Quality
Joseph Lasky, MD
PFF Chief Medical Officer
Tulane University Medical School
Cathie Spino, ScD
Director of Statistical Analysis of Biomedical and Educational Research (SABER) School of Public Health, University of Michigan
PFF Registry Management
The PFF Registry is developed and managed by a dynamic team comprised of medical experts, PFF staff, and a data coordinating center working in partnership with the Care Center Network across the United States.
PFF Patient Registry
The PFF Patient Registry is administered at participating PFF Care Centers across the United States. The Care Center Network (CCN) is a group of medical centers dedicated to improving the lives of those living with pulmonary fibrosis (PF).
Data Coordinating CenterThe data coordinating center (DCC) at the Statistical Analysis of Biomedical and Educational Research (SABER) at
the University of Michigan provides statistical expertise, project management and study coordination, database development and management, and regulatory support of the PFF Registry.
PFF Registry Staff
Misha Cadet, MPH, PMP, Project Manager, PFF Registry *SRC
Kevin Flaherty, MD, MS, Steering Committee Chair PFF Registry
Joseph Lasky, MD, PFF Chief Medical Officer *SC
Amy Case, MD, FCCP, Senior Medical Advisor, Education and Awareness *SC
Sonye Danoff, MD, PhD, Senior Medical Advisor, PFF Care Center Network *SC
Joyce Lee, MD, MS, Senior Medical Advisor, Research and Health Care Quality
Jessica Shore, PhD, RN, PFF Vice President, Clinical Affairs and Quality
Bill Schmidt, President and Chief Executive Officer, PFF *SC
Scott Staszak, Chief Operating Officer, PFF *SC
Seth Klein, Chief Development Officer, PFF *SC
SC= Steering Committee SRC= Scientific Review Committee
PFF Registry Steering Committee
Nishant Gupta, MD, Care Center Network Investigator, Director, University of Cincinnati Interstitial Lung Disease program
Lisa Lancaster, MD, Care Center Network Investigator, Associate Professor of Medicine, Vanderbilt Health
Tracy Luckhardt, MD, MS, Care Center Network Investigator, Associate Professor, University of Alabama at Birmingham Medicine
Sydney Montesi, MD, Care Center Network Investigator, Assistant Professor of Medicine, Massachusetts General Hospital
David O'Dwyer, MB, PhD, University of Michigan
Anna Podolanczuk, MD, MS, Weill Cornell
Meredith Broderick, PharmD, Director of Medical Affairs, United Therapeutics
Cindy Burg, PharmD, BCPS Senior Medical Science Director, Genentech
PFF Scientific Review Committee
Mary Strek, MD, Interim Chair, Co-Director, Interstitial Lung Disease Clinic, University of Chicago Medicine
Aman Pande, MD, Cleveland Clinic
Kerri Aronson, MD, Cornell Weil
Srihari Veeraraghavan, MD, Emory University
Brand Bemiss, MD, Loyola University of Chicago
Chao He, MD, University of Alabama at Birmingham
Tejaswini Kulkarni, MD, University of Alabama at Birmingham
Said Chaaban, MD, University of Kentucky
Chad Newton, MD, University of Texas Southwestern
Giselle Kolenic, MA, DCC Director of PFF Registry, SABER
The Pulmonary Fibrosis Foundation is proud to serve as the leading patient advocacy organization of pulmonary fibrosis and is committed to funding research to find effective therapies and, hopefully one day, a cure. The Pulmonary Fibrosis Foundation has a uniquely qualified team of individuals with broad expertise who are engaged with the PF community and are dedicated to achieving our goals.
Get in touch with us by calling 844.TalkPFF (844.825.5733) or emailing firstname.lastname@example.org.
For PFF Registry-specific questions, email email@example.com.
Learn more about the Pulmonary Fibrosis Foundation at pulmonaryfibrosis.org.
Your gift to
the PFF Registry will enable us to expand patient enrollment and
provide even greater access to investigators as they search for a cure
Your Privacy Matters
PFF Registry News
View the latest news and updates about the PFF Registry.
For information about the PFF Registry, contact firstname.lastname@example.org.
Patient Powered. Data Driven. Research Results.