The Registry has encouraged me to become a patient advocate in the fight against PF. It makes me feel like I am contributing as an active partner in research, because we as patients have the most to gain and the most to lose.


Rick Rudell
PFF Patient, Ambassador
and Support Group Leader

Sign Up for PFF Registry Emails

Be the first to know when the PFF Registry opens for enrollment


Your Role in the PF Community* (Check all that apply)
I consent to receive email communications regarding: (Check all that apply)
Please note, CAPTCA codes are case-sensitive.

Donate Today

Your gift to the PFF Patient Registry will enable us to expand patient enrollment and provide even greater access to investigators as they search for a cure for PF.

Your Privacy Matters

The Pulmonary Fibrosis Foundation Registry considers the protection of your privacy to be one of our most important responsibilities. We have set up strict protocols to protect your personal information. To review our policy, click here

PFF Registry News

To view the latest news and updates about the PFF Registry, click here.

PFF Registry

Patient Powered. Data Driven. Research Results.