Cathie Spino, ScD
Director of Statistical Analysis of Biomedical and Educational Research (SABER) School of Public Health, University of Michigan
Joyce Lee, MD, MS
University of Colorado Anschutz Medical Campus,
PFF Senior Medical Advisor, Research and Health Care Quality
Kevin R. Flaherty, MD, MS
University of Michigan Health System,
Steering Committee Chair PFF Registry and PFF Care Center Network
The PFF Registry is developed and managed by a dynamic team comprised of Medical Experts, PFF Staff, and a data coordinating center working in partnership with the Care Center Network across the United States.
William T. Schmidt President and Chief Executive Officer
Scott Staszak Chief Operating Officer
Laura Sadler Chief Marketing Officer
Junelle Speller Vice President, PFF Registry
Kevin R. Flaherty, MD, MS Steering Committee Chair, PFF Care Center Network and PFF Registry
Amy Hajari Case, MD, FCCP Senior Medical Advisor Education and Awareness
Sonye Danoff, MD, PhD Senior Medical Advisor PFF Care Center Network
Joyce S. Lee, MD, MS Senior Medical Advisor Research and Health Care Quality
PFF Registry Steering Committee
Cindy Burg, PharmD, BCPS Senior Medical Science Director, Genentech
Kevin R. Flaherty, MD, MS Chair & Professor of Medicine, Division of Pulmonary
and Critical Care Medicine, University of Michigan
Nishant Gupta, MD Director, University of Cincinnati Interstitial Lung Disease
Nabeel Hamzeh, MD Associate Professor of Internal Medicine - Pulmonary, Critical Care, and Occupational Medicine, University of Iowa Health Care
Muhammad Ishtiaq, PhD Project Manager, SABER, University of Michigan
Lisa Lancaster, MD Associate Professor of Medicine, Vanderbilt Health
Kathleen O. Lindell, PhD, RN Associate Professor, Medical University of South Carolina
Tracy Luckhardt, MD, MS Associate Professor, University of Alabama at Birmingham Medicine
Sydney Montesi, MD Assistant Professor of Medicine, Massachusetts General Hospital
Justin Oldham, MD, MS Assistant Professor of Medicine, University of California at Davis Health
Ganesh Raghu, MD Professor of Medicine & Lab Medicine, University of Washington
William T. Schmidt President and Chief Executive Officer, PFF
Jessica Shore, RN, PhD Vice President, Research and Programs, PFF
Junelle SpellerVice President, PFF
Cathie Spino, ScD Director, SABER, University of Michigan
Scott Staszak Chief Operating Officer, PFF
Jack Stauffer, MD Senior Medical Director, Genentech
Paul Wolters, MD Professor, University of California at San Francisco
Care Center Network
The PFF Care Center Network (CCN) forms the infrastructure of the PFF Registry’s clinical arm. Registry patients receive their care at a PFF Care Center so that trained coordinators oversee data collection to protect the Registry’s integrity. The CCN is a growing group of medical centers that have the necessary resources and specialized staff to provide high-quality care to people with PF. Each Care Center is comprised of experts in pulmonary medicine, rheumatology, radiology, pathology, and nursing who specialize in interstitial lung disease.
Data Coordinating Center
The Registry is managed by the Data Coordinating Center at the Statistical Analysis of Biomedical and Educational Research (SABER) at the University of Michigan. SABER provides the computer infrastructure and houses the Registry’s clinical database and biosamples. Additionally, SABER data scientists work with researchers to hone their ideas and verify that the Registry data can support the proposed study. Support from SABER data scientists continues throughout the research process, up to and including preparing manuscripts for publication.
The Pulmonary Fibrosis Foundation is proud to serve as the leading patient advocacy organization of pulmonary fibrosis and is committed to funding research to find effective therapies and, hopefully one day, a cure. The Pulmonary Fibrosis Foundation has a uniquely qualified team of individuals with broad expertise who are engaged with the PF community and are dedicated to achieving our goals.
Get in touch with us by calling 844.TalkPFF (844.825.5733) or emailing email@example.com.
For PFF Registry-specific questions, email firstname.lastname@example.org.
Learn more about the Pulmonary Fibrosis Foundation at pulmonaryfibrosis.org.
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provide even greater access to investigators as they search for a cure
Your Privacy Matters
The Pulmonary Fibrosis Foundation Registry considers the protection of your privacy to be one of our most important responsibilities. We have set up strict protocols to protect your personal information. To review our policy, click here
PFF Registry News
To view the latest news and updates about the PFF Registry, click here.
To get in touch with the PFF, please email email@example.com.
Patient Powered. Data Driven. Research Results.