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Health Provider Resources

The Pulmonary Fibrosis Foundation is focused on our mission to mobilize people and resources to provide access to high quality care and lead research for a cure so people with pulmonary fibrosis will live longer, healthier lives.

By actively engaging in our PFF Care Center Network, Nurses and Allied Health Professionals Network, the Pulmonary Fibrosis Foundation has developed an ongoing dialogue with physicians, researchers, and industry representatives to create a resource library for health providers. This data library will help professionals find resources about PF and provide access to up-to-date information. This creates a collaborative environment that will help us achieve many of our goals.

PFF Position Statements

As the field of pulmonary fibrosis continues to grow, sometimes issues arise where clinicians desire additional perspectives based on the currently available evidence, or in some cases, lack of published research on a particular subject. In a desire to meet these needs, working groups have been developed to provide views on these topics.  

The Position Statements are produced by a group of clinicians in the field utilizing published data and expert opinion.  

  • Surgical Lung Biopsy (August 2019): Surgical lung biopsy (SLB) is an important diagnostic procedure in the evaluation of patients with fibrotic interstitial lung disease (fILD)
  • Stem Cell (March 2019): An update of stem cell/cell based therapies for pulmonary fibrosis beyond the context of clinical trials. A word of caution by the Medical Advisory Board of the Pulmonary Fibrosis Foundation. 
The position statements are intended to be informational in nature and meant to compliment published guidelines and do not replace medical judgment on an individual basis.

Grants

The NIAID/NIH currently has a number of funding opportunities available that may be of interest to the pulmonary research community. The Pulmonary Fibrosis Foundation would like help spread the message of these NIH FOAs, i.e., PAR18-721, PAR18-657, PAR-19-039, and PAR19-040.

Click here to learn more about these opportunities.

EDUCATION MATERIALS

Disease Awareness Poster: Our Disease Awareness Poster provides can be displayed in waiting rooms, offices, or exam rooms to provide a visual overview of pulmonary fibrosis. Each poster is 18x24 inches.To request a hard copy of our Disease Awareness Poster, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.


ILD Nursing and Allied Health Guide: 
The ILD Nursing and Allied Health Guide is a comprehensive resource to help health care professionals learn more about disease identification, interpreting test results, comorbidities, disease management, and advising and supporting patients with pulmonary fibrosis.

ILD Pocket Guide (English) / (Spanish): Our ILD Pocket Guide for physicians can be displayed in waiting rooms, offices, or exam rooms to provide a visual overview of pulmonary fibrosis. To request a hard copy of our ILD Pocket Guide, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

Physician Notepad (English)
/ (Spanish): Our Physician Notepad is offered to clinicians to assist in delivering information to patients at the time of diagnosis. Each sheet provides a brief overview of pulmonary fibrosis, and there is space available to customize information based on each individual’s diagnosis, treatment options, diagnostic tests, and follow-up appointments. To order hard copies of our Notepad, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

Pulmonary Rehabilitation Pocket Guide:
The Pulmonary Rehabilitation Pocket Guide is an educational tool for allied health professionals that work in a pulmonary rehabilitation environment. This pocket guide highlights the differences between pulmonary fibrosis and other forms of chronic lung diseases and offers useful information about pulmonary rehabilitation, physical activity, supplemental oxygen, and disease management for patients with pulmonary fibrosis.

Fact Sheets: Explore this collection of fact sheets to learn about known causes of pulmonary fibrosis, idiopathic pulmonary fibrosis, treatment options, and more. 

 

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