Share your story about oxygen


Thank you for sharing your oxygen story

Many patients are unable to receive the oxygen equipment, supplies, and services that they need to maintain their health. The Pulmonary Fibrosis Foundation is currently advocating in favor of the Supplemental Oxygen Access Reform (SOAR) Act, which was introduced in the U.S. Congress in early 2024. The SOAR Act will improve Medicare patients’ ability to access the necessary and appropriate oxygen equipment, supplies, and services. Learn more about the Four Pillars for Supplemental Oxygen Reform that provide the basis of the SOAR Act.

We are asking patients who use oxygen, patients who have used oxygen in the past, as well as their caregivers, family members, and healthcare providers, to share their stories of using supplemental oxygen. We may use some of these stories to highlight the need for reform to how Medicare patients receive supplemental oxygen. Stories may be shared on social media, with government officials, or through other channels to demonstrate the benefits that the SOAR Act would have for the community.

All of the information on this form is optional. However, the more information that we have, the more likely that we will be able to share your story for advocacy purposes. Since the information is to be used for U.S.-based advocacy purposes, please only complete this form if you are a resident of the U.S.


Note: We will only use your email address for communication purposes. We may share your email address with our oxygen advocacy partners, but it will NOT be shared publicly via social media, our website, our partners’ websites, or other public outlets. We will not add your email address to any promotional email lists.

Do we have your permission to share all of the information that you provide on this form? We will not sell your information. Here is a list of ways that this information may be shared: on the Pulmonary Fibrosis Foundation's website; on the websites of partner organizations who are also supporting the Supplemental Oxygen Access Reform (SOAR) Act; on social media; in communications with government officials for advocacy purposes; through traditional media outlets (e.g., newspaper stories, online news websites).
Are you completing this form for yourself or for someone else?
If you are completing this form for someone else and they are currently living, do you have their permission to share their story?
What is your role in the pulmonary fibrosis (PF) community? Please check all that apply.
Is the oxygen user currently on Medicare?

Please pick at least 2-3 of these questions to answer as well. Skip any questions that do not apply to your situation.