Effective Advocacy Changes Lives

With leadership and guidance from the Pulmonary Fibrosis Foundation, pulmonary fibrosis patients and supporters from across the country are playing a major role in driving federal policy outcomes. Together, we are on the path to finding a cure, and your support and advocacy is bringing us closer and closer.

  • Spending by the National Heart Lung and Blood Institute on pulmonary fibrosis research increased from $26,490,331 in fiscal year 2010 to $55,756,802 in fiscal year 2015.
  • The number of federal research grants for pulmonary fibrosis research doubled between fiscal year 2010 and fiscal year 2015.
  • Since Congress added pulmonary fibrosis to its list of eligible diseases, the US Department of Defense has awarded $38 million in new research dollars for PF in veterans under the Congressionally Directed Medical Research Programs (CDMRP).

Other recent advocacy wins fueled by patient, family, and caregiver advocacy include:

  • The Social Security Administration added idiopathic pulmonary fibrosis (IPF) to its listing of diseases eligible for expedited determination of disability under its Compassionate Allowances Program.
  • The Food and Drug Administration has granted “fast track” review status to multiple pulmonary fibrosis drugs.
  • The passage of the 21st Century Cures Act authorized a $4.8 billion increase in the National Institutes of Health budget over the following 10 years.

Be an active Pulmonary Fibrosis Foundation Advocate! Contact your congressional representatives – your Representatives and Senators – or attend one of their Town Hall forums. Ask your officials to support legislation that will enhance pulmonary fibrosis research and quality of life for those with pulmonary fibrosis.

TAKE ACTION NOW

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