Advocates for Pulmonary Fibrosis Heralded with Rare Voice Awards

Paul Fogelberg, longtime PF advocate and Director of Pulmonary Fibrosis Advocates, which is now working with the Pulmonary Fibrosis Foundation, and Sen. Amy Klobuchar, D-Minn., were honored at the Everylife Foundation for Rare Diseases Rare Voice Awards ceremony on November 5 in Washington D.C. The awards are presented annually to celebrate outstanding individuals who give rare disease patients a voice in state and federal policy. 

Award recipients are chosen by committee from nominations from the rare disease community.  Fogelberg and Klobuchar were recognized with bronze “Abbey” awards, named for Abbey Meyers, founder of the National Organization for Rare Diseases (NORD). Fogelberg received the Federal Patient Advocacy award. Klobuchar was presented with the Congressional Leadership award. 

Fogelberg and Klobuchar, recently achieved a unanimous Senate resolution declaring September 2017 as Pulmonary Fibrosis Awareness Month. They have been instrumental in ensuring that Congress recognizes the contribution of patient advocacy groups that are fighting for individuals with all forms of pulmonary fibrosis.