Program

Program at a Glance

WEDNESDAY, NOVEMBER 6, 2019

 

Registration
11:00 a.m. - 7:00 p.m.

THURSDAY, NOVEMBER 7, 2019

Registration
7:00 a.m. - 8:30 p.m.

Disease Overview and Introduction to the PFF
1:00 p.m. - 4:00 p.m.

Welcome reception and poster presentation
5:00 p.m. - 8:00 p.m.


FRIDAY, NOVEMBER 8, 2019

Registration
7:00 a.m. - 7:00 p.m.

Plenary Session
8:30 a.m. - 10:30 a.m.

Sessions for professionals 
10:45 a.m. - 12:00 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
10:45 a.m. - 12:00 p.m.

Lunch Break - Clinical Trials Innovation Series
12:00 p.m. - 1:20 p.m.

Sessions for professionals 
1:20 p.m. - 2:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
1:20 p.m. - 2:50 p.m.

Break
2:50 p.m. - 3:15 p.m.

Sessions for professionals 
3:15 p.m. - 4:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
3:15 p.m. - 4:50 p.m.

Cocktail Reception
5:50 p.m. - 6:50 p.m.

Networking Dinner
6:50 p.m. - 8:50 p.m.

SATURDAY, NOVEMBER 9, 2019

Registration
7:00 a.m. - 5:00 p.m.

Plenary Session
8:30 a.m. - 10:30 a.m.

Sessions for professionals 
10:45 a.m. - 12:00 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
10:45 a.m. - 12:00 p.m.

Lunch Break - Clinical Trials Innovation Series
12:00 p.m. - 1:20 p.m.

Sessions for professionals 
1:20 p.m. - 2:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
1:20 p.m. - 2:50 p.m.

Break
2:50 p.m. - 3:15 p.m.

Sessions for professionals 
3:15 p.m. - 4:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
3:15 p.m. - 4:50 p.m.

Tonga Ridge Memorial Hike for Debbie's Lungs

Debbie Low was the love of my life and my constant companion for 15 years. She was diagnosed with pulmonary fibrosis (PF) following rheumatoid arthritis (RA) in early Spring 2010. She was admitted to the lung transplant list at the UWMC in Seattle in mid-August 2012, but only survived to September 17, 2012.

PF runs in her family. Her father died of it in the late 1960s and her older brother died less than 90 days after her following a bilateral lung transplant at the UWMC in Seattle to treat his IPF.

This eulogy read at her memorial service tells the rest of her story. You can also read her obituary.

Debbie loved hiking in the mountains and was heartbroken when her PF prevented her from doing so. In September 2011, a year before she died, I researched hikes that would be easy enough for her to walk and yet be enjoyable. Tonga Ridge was Debbie's last hike.

This is the third anniversary of her death and the third year I have returned to where we last hiked together to raise funds for the PFF.

Breathe!
John

Tonga Ridge is an easy ridge hike in the Cascades Mountains near Skykomish, WA on the way up to Stevens Pass. Without a lot of work the hiker is rewarded with great views...and huckleberries!

If you are in the Seattle or Everett area please consider joining us. We will meet up on Sunday, September 20, 2015 at the Starbucks in Monroe Plaza on US Route 2.

Skykomish, United States of America