Program

Program at a Glance

WEDNESDAY, NOVEMBER 6, 2019

 

Registration
11:00 a.m. - 7:00 p.m.

THURSDAY, NOVEMBER 7, 2019

Registration
7:00 a.m. - 8:30 p.m.

Disease Overview and Introduction to the PFF
1:00 p.m. - 4:00 p.m.

Welcome reception and poster presentation
5:00 p.m. - 8:00 p.m.


FRIDAY, NOVEMBER 8, 2019

Registration
7:00 a.m. - 7:00 p.m.

Plenary Session
8:30 a.m. - 10:30 a.m.

Sessions for professionals 
10:45 a.m. - 12:00 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
10:45 a.m. - 12:00 p.m.

Lunch Break - Clinical Trials Innovation Series
12:00 p.m. - 1:20 p.m.

Sessions for professionals 
1:20 p.m. - 2:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
1:20 p.m. - 2:50 p.m.

Break
2:50 p.m. - 3:15 p.m.

Sessions for professionals 
3:15 p.m. - 4:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
3:15 p.m. - 4:50 p.m.

Cocktail Reception
5:50 p.m. - 6:50 p.m.

Networking Dinner
6:50 p.m. - 8:50 p.m.

SATURDAY, NOVEMBER 9, 2019

Registration
7:00 a.m. - 5:00 p.m.

Plenary Session
8:30 a.m. - 10:30 a.m.

Sessions for professionals 
10:45 a.m. - 12:00 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
10:45 a.m. - 12:00 p.m.

Lunch Break - Clinical Trials Innovation Series
12:00 p.m. - 1:20 p.m.

Sessions for professionals 
1:20 p.m. - 2:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
1:20 p.m. - 2:50 p.m.

Break
2:50 p.m. - 3:15 p.m.

Sessions for professionals 
3:15 p.m. - 4:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
3:15 p.m. - 4:50 p.m.

Pie In The Face for PF

Many of you may be wondering and many may already know what sparked this passion in me to promote pulmonary fibrosis awareness. Its simple, my child.

Pie (Pulmonary Illness Extinction) Persons are challenged to put a pie in their face within 48 hours of nomination. When challenge is completed, donation is made!

My daughter was diagnosed with idiopathic pulmonary fibrosis August of 2013 and was told she had 2-5 years to live. I have always given to many charities/causes over the years but now its personal. When my daughter was diagnosed I had little knowledge of the impact of this disease and as an RN my initial thoughts were" I can fix this." 

The more research I did, the more I realized the seriousness of this disease and how so little is known about it and its causes. My emotions have gone from denial to anger, because no parent should lose a child before themselves. I know many have and my heart has always gone out to them because I could not even imagine what they must have been going through and now I see myself in those same shoes.

As a Christian I pray everyday for a miracle, as a nurse I pray for a cure, as a mother I pray for not only for my child, but for everyone affected by this dreadful disease. All I am asking is for support to my cause. If you cannot donate, please share for awareness and last but definitely not least pray.  For updates, please visit our Facebook page.

Thank you,

United States of America