Virtual Support Communities
Find support. Give support. Get support. Online!
Telephone-based and online support groups are a great way for you, your caregivers, family members, and friends to virtually connect for support and information.
If you are not able to attend an in-person group, or simply want additional interactions between meetings, consider joining one of the Pulmonary Fibrosis Foundation’s online support communities.
The Pulmonary Fibrosis Foundation hosts four monthly telephone-based support groups for patients, caregivers, family members and anyone affected by pulmonary fibrosis: PFF Voices, PFF Caring Conversations, PFF Coloquio and PFF Lung Transplant Community Support Group.
PFF Voices, a group for all members of the PF community, provides a chance to discuss topics and concerns related to the disease.
PFF Caring Conversations, a group created specifically for those caring for individuals with PF, gives participants the opportunity to share experiences and information related to their caregiving role.
PFF Coloquio es un grupo de apoyo para los que son afectados de la fibrosis pulmonar. Este grupo da espacio para discutir temas y preocupación relacionado con la fibrosis pulmonar. Un grupo de apoyo telefónico que se reúne cada segundo martes de cada mes.
Lung Transplant Community Support Group is a support group intended for those who have had, or are awaiting, lung transplant due to pulmonary fibrosis. Our goal is to have open discussion and dialogue around transplant related challenges and celebrations. Meetings will feature guest speakers as well as an open forum approach.
All groups offer members of the PF community a valuable forum to share information and provide support to one another from the comfort of their own home. Registration is not required to participate, and call-in information and meeting times are the same each month.
PFF Voices is a group for all members of the PF community, provides a chance to discuss topics and concerns related to the disease. The group meets on the third Thursday of each month.
Dial:
(571) 317-3116
Access Code:
124-558-453
Time:
11:00 a.m. PT
12:00 p.m. MT
1:00 p.m. CT
2:00 p.m. ET
PFF Caring Conversations is a group created specifically for those caring for individuals with PF, gives participants the opportunity to share experiences and information related to their caregiving role.Meetings are held every first Tuesday.
Dial:
(646) 749-3129
Access Code:
220-929-629
Time:
11:00 a.m. PT
12:00 p.m. MT
1:00 p.m. CT
2:00 p.m. ET
PFF Coloquio es un grupo de apoyo para los que son afectados de la fibrosis pulmonar. Este grupo da espacio para discutir temas y preocupación relacionado con la fibrosis pulmonar. Un grupo de apoyo telefónico que se reúne cada segundo martes de cada mes.
Información de Llamada
Número de teléfono:
1-312-757-3117
1-866-899-4679 (Toll Free)
Código de acceso:
741-967-613
The
Lung Transplant Support Group is a new support group intended for those who have had, or are awaiting, lung transplant due to pulmonary fibrosis. Our goal is to have open discussion and dialogue around transplant related challenges and celebrations. Meetings will feature guest speakers as well as an open forum approach.
Dial:
(571) 317-3116 or
(866) 899-4679 (toll free)
Access Code:
596-329-245
Time:
11:00 a.m. PT
12:00 p.m. MT
1:00 p.m. CT
2:00 p.m. ET
You can also join this meeting via webcam
here.