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Virtual Support Communities

Find support. Give support. Get support. Online!

Telephone-based and online support groups are a great way for you, your caregivers, family members, and friends to virtually connect for support and information.

If you are not able to attend an in-person group, or simply want additional interactions between meetings, consider joining one of the Pulmonary Fibrosis Foundation’s online support communities.
 
PFF Voices and PFF Caring Conversations

The Pulmonary Fibrosis Foundation hosts two monthly telephone-based support groups for patients, caregivers, family members and anyone affected by pulmonary fibrosis: PFF Voices and PFF Caring Conversations.

PFF Voices, a group for all members of the PF community, provides a chance to discuss topics and concerns related to the disease.

PFF Caring Conversations, a group created specifically for those caring for individuals with PF, gives participants the opportunity to share experiences and information related to their caregiving role.

Both groups offer members of the PF community a valuable forum to share information and provide support to one another from the comfort of their own home. Registration is not required to participate, and call-in information and meeting times are the same each month.  

Call-in information for PFF Voices
Phone Number: 1-571-317-3116
Access Code: 124-558-453

Call-in information for PFF Caring Conversations
Phone number: (646) 749-3129
Access code: 220-929-629

Meeting times (both groups)
11:00 a.m. PT
12:00 p.m. MT
1:00 p.m. CT
2:00 p.m. ET


rare connect

RareConnect
 
Connect with IPF Patients Globally! 
 

The Pulmonary Fibrosis Foundation has partnered with the European Organization for Rare Diseases (EURODIS) and the National Organization for Rare Diseases (NORD) to allow patients with rare diseases to connect globally.

Join the online community at RareConnect and join others living with pulmonary fibrosis. This online community provides members with the ability to globally communicate with other individuals. Members may post in English, German, Spanish, French or Italian. To translate a post that is not in your native language, simply select "request to translate."






 

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