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Virtual Support Communities

Find support. Give support. Get support. Online!

Telephone-based and online support groups are a great way for you, your caregivers, family members, and friends to virtually connect for support and information.

If you are not able to attend an in-person group, or simply want additional interactions between meetings, consider joining one of the Pulmonary Fibrosis Foundation’s online support communities.

The Pulmonary Fibrosis Foundation hosts two monthly telephone-based support groups for patients, caregivers, family members and anyone affected by pulmonary fibrosis: PFF Voices and PFF Caring Conversations.

PFF Voices, a group for all members of the PF community, provides a chance to discuss topics and concerns related to the disease.

PFF Caring Conversations, a group created specifically for those caring for individuals with PF, gives participants the opportunity to share experiences and information related to their caregiving role.

PFF Coloquio es un grupo de apoyo para los que son afectados de la fibrosis pulmonar. Este grupo da espacio para discutir temas y preocupación relacionado con la fibrosis pulmonar. Un grupo de apoyo telefónico que se reúne cada segundo martes de cada mes.

Lung Transplant Support Group is a new support group intended for those who have had, or are awaiting, lung transplant due to pulmonary fibrosis. Our goal is to have open discussion and dialogue around transplant related challenges and celebrations. Meetings will feature guest speakers as well as an open forum approach.

All groups offer members of the PF community a valuable forum to share information and provide support to one another from the comfort of their own home. Registration is not required to participate, and call-in information and meeting times are the same each month. 

PFF Voices

PFF Voices is a group for all members of the PF community, provides a chance to discuss topics and concerns related to the disease. The group meets on the third Thursday of each month.

Dial:
(571) 317-3116

Access Code:
124-558-453

Time:
11:00 a.m. PT
12:00 p.m. MT
1:00 p.m. CT
2:00 p.m. ET

PFF Caring Conversations

PFF Caring Conversations is a group created specifically for those caring for individuals with PF, gives participants the opportunity to share experiences and information related to their caregiving role.Meetings are held every first Tuesday.

Dial:
(646) 749-3129

Access Code:
220-929-629

Time:
11:00 a.m. PT
12:00 p.m. MT
1:00 p.m. CT
2:00 p.m. ET

PFF Coloquio

PFF Coloquio es un grupo de apoyo para los que son afectados de la fibrosis pulmonar. Este grupo da espacio para discutir temas y preocupación relacionado con la fibrosis pulmonar. Un grupo de apoyo telefónico que se reúne cada segundo martes de cada mes.
 
Información de Llamada
Número de teléfono: 
1-312-757-3117
 1-866-899-4679 (Toll Free)
 
Código de acceso:
741-967-613

Lung transplant community support group

The Lung Transplant Support Group is a new support group intended for those who have had, or are awaiting, lung transplant due to pulmonary fibrosis. Our goal is to have open discussion and dialogue around transplant related challenges and celebrations. Meetings will feature guest speakers as well as an open forum approach.

Dial:
(571) 317-3116 or
(866) 899-4679 (toll free)

Access Code:
596-329-245

Time:
11:00 a.m. PT
12:00 p.m. MT
1:00 p.m. CT
2:00 p.m. ET

You can also join this meeting via webcam here.

rare connect

RareConnect
 
Connect with IPF Patients Globally! 
 

The Pulmonary Fibrosis Foundation has partnered with the European Organization for Rare Diseases (EURODIS) and the National Organization for Rare Diseases (NORD) to allow patients with rare diseases to connect globally.

Join the online community at RareConnect and join others living with pulmonary fibrosis. This online community provides members with the ability to globally communicate with other individuals. Members may post in English, German, Spanish, French or Italian. To translate a post that is not in your native language, simply select "request to translate."






 

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