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Virtual Support Communities

Find support. Give support. Get support. Online!

Telephone-based and online support groups are a great way for you, your caregivers, family members, and friends to virtually connect for support and information.

If you are not able to attend an in-person group, or simply want additional interactions between meetings, consider joining one of the Pulmonary Fibrosis Foundation’s online support communities.
 
CC Voices Graphic

The Pulmonary Fibrosis Foundation hosts two monthly telephone-based support groups for patients, caregivers, family members and anyone affected by pulmonary fibrosis: PFF Voices and PFF Caring Conversations.

PFF Voices, a group for all members of the PF community, provides a chance to discuss topics and concerns related to the disease.

PFF Caring Conversations, a group created specifically for those caring for individuals with PF, gives participants the opportunity to share experiences and information related to their caregiving role.

Both groups offer members of the PF community a valuable forum to share information and provide support to one another from the comfort of their own home. Registration is not required to participate, and call-in information and meeting times are the same each month.  

Call-in information for PFF Voices
Phone Number: 1-571-317-3116
                          1-866-899-4679 (Toll-Free)
Access Code: 124-558-453

Call-in information for PFF Caring Conversations
Phone number: 1-646-749-3129
                          1-877-309-2073 (Toll-Free)
Access code: 220-929-629

Meeting times (both groups)
11:00 a.m. PT
12:00 p.m. MT
1:00 p.m. CT
2:00 p.m. ET

ÚNASE A NUESTRO NUEVO GRUPO DE APOYO ESPAÑOL DESDE CASA

PFF Coloquio_4.14.20

PFF Coloquio es un grupo de apoyo para los que son afectados de la fibrosis pulmonar. Este grupo da espacio para discutir temas y preocupación relacionado con la fibrosis pulmonar. Un grupo de apoyo telefónico que se reúne cada segundo martes de cada mes. La primera reunión tendrá lugar el 14 de Abril a la 1PM CT.
 
Información de Llamada
Número de teléfono: 
1-312-757-3117
 1-866-899-4679 (Toll Free)
 
Código de acceso:
741-967-613

rare connect

RareConnect
 
Connect with IPF Patients Globally! 
 

The Pulmonary Fibrosis Foundation has partnered with the European Organization for Rare Diseases (EURODIS) and the National Organization for Rare Diseases (NORD) to allow patients with rare diseases to connect globally.

Join the online community at RareConnect and join others living with pulmonary fibrosis. This online community provides members with the ability to globally communicate with other individuals. Members may post in English, German, Spanish, French or Italian. To translate a post that is not in your native language, simply select "request to translate."






 

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