Videos

Caregivers share their best tips for taking care of their loved ones and themselves during difficult times.

What is a clinical trial and why should you participate? You can be part of finding treatments and, hopefully, a cure for pulmonary fibrosis.

After caring for his mother who lost her battle with pulmonary fibrosis while awaiting a lung transplant, Jose Vazquez received his own diagnosis of IPF. He shares his struggle to accept the diagnose and the reality of living with the disease.

Después de cuidar a su madre que perdió su batalla contra la fibrosis pulmonar mientras esperaba un trasplante de pulmón, José Vázquez recibió su propio diagnóstico de FPI (Fibrosis Pulmonar Idiopática).

There are a number of treatment options available for pulmonary fibrosis. These may include supplemental oxygen, pulmonary rehabilitation, medication, and in some cases, lung transplantation.

Cindy Chandler became a PFF Advocate after losing her husband and her mother-in-law to pulmonary fibrosis. Now, she describes the effort to build a group of grass-roots advocates across the country as a calling.

Keep it up, you’re doing great! Reminds new leaders how to keep it all going forward by recruiting new members and spreading the word about your group.

Walk, Don’t Run (A Meeting Guide) familiarizes leaders with a successful meeting guide including agendas, introductions, topics, and how to end a meeting.

Details, Details, Details focuses on ways to navigate the details that support group leaders need to consider. Topics include when to send out meeting notifications, how to use educational materials (and where to get them), and how to share responsibilities.