Videos

The Ground Rules provides an overview about the basic rules of a support group. You’ll learn how to promote an environment of respect and privacy and how to accommodate the needs of different members.

The Registry, launched in 2016, is a collection of comprehensive anonymized data from patients living with pulmonary fibrosis (PF).

People living with PF can find relief with palliative care. Palliative care is an approach to managing the symptoms experienced by people affected by a serious illness to help them achieve their best quality of life.

Pulmonary rehabilitation is a structured exercise program designed for people living with chronic lung diseases like pulmonary fibrosis. Exercise can give you more energy and improve your focus, mood, and overall sense of wellbeing.

We need you! Learn how to make a difference in the lives of people living with pulmonary fibrosis by starting a support group. The PFF provides five easy steps to help you get started and provide you with the resources to keep things running throughout the year.

When oxygen levels drop to 88% or below, healthcare providers may order supplemental oxygen. Using oxygen can help you reduce breathlessness and reduce stress on other organs while maintaining an active lifestyle.

Gary and Marianne were married just two and a half years when Gary was diagnosed with idiopathic pulmonary fibrosis. They found hope and inspiration in their local support group and are now leaders of the group.

No one needs to go through the journey with pulmonary fibrosis alone. Meeting others living with PF and becoming part of your local PF community can offer friendship and support.

Dr. David Lederer explains that each patient’s journey with PF is unique. When thinking about the future, your doctor may be able to give you an idea of what the progression of your disease might look like.