The Pulmonary Fibrosis Foundation mobilizes people and resources to provide access to high quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier lives.

Frequently Asked Questions


  • What is the PFF Registry?
  • What Are the Goals of the Registry?
  • What is the Biorepository?
  • What is Observational Research?
  • How Can I Use Registry Data for my Research?
  • Who Manages the PFF Registry?
  • How Can I Share this Information?

Sign Up for PFF Registry Emails

Be the first to know when the PFF Registry opens for enrollment

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Donate Today

Your gift to the PFF Patient Registry will enable us to expand patient enrollment and provide even greater access to investigators as they search for a cure for PF.


Your Privacy Matters

The Pulmonary Fibrosis Foundation Registry considers the protection of your privacy to be one of our most important responsibilities. We have set up strict protocols to protect your personal information. 


To review our policy, click here.