PFF Support Group Network

The Pulmonary Fibrosis Foundation Support Group Leader Guide provides an overview of PF support group basics, meeting fundamentals, and potential meeting topics. This guide was written by support group leaders and can provide useful information, whether you are planning your first PF support group, or developing new meetings for an established group.

The PFF Support Group Network quarterly teleconferences provide up-to-date information from the Foundation and offer a forum for support group leaders to discuss ideas and best practices for meetings. In addition to quarterly teleconferences, quarterly eNewsletters are sent to all support group leaders.

To join our next PFF Support Group Network teleconference, please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or pcc@pulmonaryfibrosis.org. 

The Leanne Storch Support Group Fund, established in 2012, honors the commitment of Leanne Storch, former executive director of the Pulmonary Fibrosis Foundation, who was diagnosed with pulmonary fibrosis in 2003 and received a lung transplant in 2014. Leanne ran a local support group for 10 years and continued to be a passionate advocate for the PF community. The Pulmonary Fibrosis Foundation is sad to report that Leanne passed away in 2019 but her spirit and work will live on through the Leanne Storch Support Group Fund.

The PFF is dedicated to assisting the all-volunteer PF support group community to engage their local PF patients, caregivers and family members, establish new support groups and host meaningful educational events. The Leanne Storch Support Group Fund enhances the PFF Support Group Network by providing funding to assist the leaders in meeting the objectives of their local groups.

For more information and to apply for a Leanne Storch Support Group Fund, click here.

Life with Pulmonary Fibrosis | Why Join a Support Group

Session III: Maintaining and Growing Your Group - February 22, 2016

Session II: Getting Your Support Group Started - December 14, 2015 

Session I: Identifying Resources for Success - October 7, 2015