Patient Education Materials

Our brochure introduces you to the Foundation and gives readers a glimpse of all the programs and services we offer to help those who have been affected by PF.

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Explore this collection of fact sheets to learn about known causes of pulmonary fibrosis, idiopathic pulmonary fibrosis, treatment options, and more. 

Asbestosis

Azathioprine (U.S. only)

Coal Workers Pneumoconiosis

"Hot Tub Lung" Hypersensitivity Pneumonitis

Hypersensitivity Pneumonitis

Idiopathic Non-Specific Interstitial Pneumonia

Idiopathic Pulmonary Fibrosis

Mycophenolate Mofetil / Mycophenolic Acid (U.S. Only)

Nintedanib (OFEV®) (U.S. Only)

Pirfenidone (Esbriet®) (U.S. Only)

Prednisone (U.S. Only)

Rheumatoid Arthritis-Associated Interstitial Lung Disease (RA-ILD)

Scleroderma-Associated Interstitial Lung Disease (SSc-ILD)

The PF Fact Sheet provides an overview of pulmonary fibrosis and statistics associated with this disease.

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Our Pulmonary Fibrosis Information Guide gives patients, caregivers, and medical professionals comprehensive information about pulmonary fibrosis, treatment options, tips for monitoring your health, and ways to maintain your care. This guide is ideal for those who are newly diagnosed or wish to learn more about this disease. Please note that the information provided in this guide is specific to standard practices and resources available within the United States. 

• English
• Spanish
• Brazilian Portuguese
• French
• Hindi
• Simplified Chinese

To request a hard copy of our Pulmonary Fibrosis Information Guide, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

This booklet provides an in-depth overview of the the basics of supplemental oxygen, including equipment, getting started, Medicare information, and traveling. 

English
Spanish

To request a hard copy of our Oxygen Basics Booklet, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org. 

The Physician Notepad is a great tool to facilitate a conversation between a patient and a healthcare professional. Each sheet has space available to customize information based on each individual’s diagnosis, treatment options, diagnostic tests, and follow-up appointments.

• English
• Spanish

You may preview and download a copy of the Notepad using the link above. To order hard copies of our Notepad, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

Newly diagnosed with pulmonary fibrosis? The Foundation has compiled a list of questions that you should ask your doctor during your office visit. 

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The Pulmonary Fibrosis Foundation (PFF) in partnership with the American Association for Respiratory Care (AARC) launched a quick start guide for supplemental oxygen at the American Thoracic Society (ATS) conference in May 2017. The new education resource is intended for  people who have been newly prescribed supplemental oxygen and includes information about oxygen prescriptions, equipment operation, and how to use oxygen safely.



English Brochure                           Printer-friendly version
Spanish Brochure                          Printer-friendly version
Russian Brochure                          Printer-friendly version
Mandarin Chinese Brochure          Printer-friendly version

The Pulmonary Fibrosis Foundation (PFF) launched a guide for traveling with supplemental oxygen. The new education resource is intended for people who have been newly prescribed supplemental oxygen and includes information about traveling on airplanes, as well as a checklist.





English Brochure                       Printer-friendly version
Spanish Brochure        

Learn about the cutting edge research coming from the PFF Patient Registry.

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Our Disease Awareness Poster provides can be displayed in waiting rooms, offices, or exam rooms to provide a visual overview of pulmonary fibrosis. Each poster is 18x24 inches.

To request a hard copy of our Disease Awareness Poster, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

The ILD Nursing and Allied Health Guide is a comprehensive resource to help health care professionals learn more about disease identification, interpreting test results, comorbidities, disease management, and advising and supporting patients with pulmonary fibrosis.

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Our ILD Pocket Guide for physicians can be displayed in waiting rooms, offices, or exam rooms to provide a visual overview of pulmonary fibrosis. To request a hard copy of our ILD Pocket Guide, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

Download in English
Download in Spanish

The Pulmonary Rehabilitation Pocket Guide is an educational tool for allied health professionals that work in a pulmonary rehabilitation environment. This pocket guide highlights the differences between pulmonary fibrosis and other forms of chronic lung diseases and offers useful information about pulmonary rehabilitation, physical activity, supplemental oxygen, and disease management for patients with pulmonary fibrosis.


English
Spanish