Patient Education Materials


COVID-19 Operational Impact:
Please note that PFF staff are working remotely through June 30, 2021. While we are currently accepting requests for hard copies of educational materials, please expect delays in delivery. We thank you for your patience during this time.

Our pulmonary fibrosis patient education materials are available as downloadable PDF files below. Please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or pcc@pulmonaryfibrosis.org to order hard copies.

About the Pulmonary Fibrosis Foundation

Our brochure introduces you to the Foundation and gives readers a glimpse of all the programs and services we offer to help those who have been affected by PF.

Download

To request a hard copy of our About the Pulmonary Fibrosis Foundation brochure, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

FACT SHEETS

Explore this collection of fact sheets to learn about known causes of pulmonary fibrosis, idiopathic pulmonary fibrosis, treatment options, and more. 

Asbestosis (English) (Spanish

Azathioprine - U.S. only (English) (Spanish

Coal Workers Pneumoconiosis (English) (Spanish

"Hot Tub Lung" Hypersensitivity Pneumonitis (English) (Spanish

Hypersensitivity Pneumonitis (English) (Spanish

Idiopathic Non-Specific Interstitial Pneumonia (English) (Spanish

Idiopathic Pulmonary Fibrosis (English) (Spanish

Mycophenolate Mofetil / Mycophenolic Acid - U.S. only (English) (Spanish

Nintedanib (OFEV®) - U.S. only (English) (Spanish

Pirfenidone (Esbriet®) - U.S. only (English) (Spanish

Prednisone - U.S. only (English) (Spanish

Rheumatoid Arthritis-Associated Interstitial Lung Disease (RA-ILD) (English) (Spanish

Scleroderma-Associated Interstitial Lung Disease (SSc-ILD) (English) (Spanish

Friends and Family Cards

Friends and Family Note CardsUse these small note cards to distribute to family and friends to help them understand what a diagnosis of pulmonary fibrosis means. Download the digital version to print at home, or order hard copies by calling the Patient Communication Center.




Place your order for hard copies through the PCC by calling 844.TalkPFF or email pcc@pulmonaryfibrosis.org. Each order comes in a pack of five.

Hard copy edition (Download)
Printable edition (Download)

Life After Lung Transplant

Life After Lung TransplantAfter your lung transplant—major surgery for which you prepared carefully—you’ll likely enjoy a significantly improved quality of life. Most patients who have a transplant due to the effects of pulmonary fibrosis breathe better, increase their activity, and can discontinue supplemental oxygen. Some people continue to work and travel.

But even when surgery results are positive, life after a transplant has its own challenges. To maintain the best possible health and reduce the chance of complications, you’ll need to carefully follow your care team’s instructions throughout your life. This booklet provides an overview of what to expect.

Download

MEDICARE PATIENTS' OXYGEN RIGHTS

CoverThis booklet provides an in-depth overview of your rights when it comes to supplemental oxygen. This list of rights is for patients who have original Medicare. If you have a Medicare Advantage plan, your plan will cover oxygen but there may be differences in how they cover oxygen. Contact your plan for more information.

Download

Oxygen Basics Booklet

Oxygen Information BookletThis booklet provides an in-depth overview of the the basics of supplemental oxygen, including equipment, getting started, Medicare information, and traveling. 

English
Spanish

To request a hard copy of our Oxygen Basics Booklet, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org

PFF Patient Registry Report

Learn about the cutting edge research coming from the PFF Patient Registry.

Spring 2020 - Download
NEW! Fall 2020 - Download

To request a hard copy of our PFF Patient Registry report, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

physician notepad

Physician Notepad pulmonary fibrosisThe Physician Notepad is a great tool to facilitate a conversation between a patient and a healthcare professional. Each sheet has space available to customize information based on each individual’s diagnosis, treatment options, diagnostic tests, and follow-up appointments.


You may preview and download a copy of the Notepad using the link above. To order hard copies of our Notepad, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

Preparing for a Lung Transplant

Preparing for a lung transplantLung transplant—surgery to remove a damaged or diseased lung and replace it with a healthy lung from a deceased donor—is a life-saving treatment for people with late-stage lung disease after other treatments have been exhausted. Studies demonstrate that lung transplantation is associated with a significant improvement in quality of life.

Learning about and preparing for lung transplant can be an overwhelming process. This booklet is designed to help PF patients considering lung transplant learn what’s involved and how to get started. Referral and transplantation criteria can vary by transplant center.

Download

pulmonary fibrosis information guide

Pulmonary Fibrosis Information GuideOur Pulmonary Fibrosis Information Guide gives patients, caregivers, and medical professionals comprehensive information about pulmonary fibrosis, treatment options, tips for monitoring your health, and ways to maintain your care. This guide is ideal for those who are newly diagnosed or wish to learn more about this disease. Please note that the information provided in this guide is specific to standard practices and resources available within the United States. 

To request a hard copy of our Pulmonary Fibrosis Information Guide, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

PULMONARY FIBROSIS QUICK FACTS

PF Fact SheetThe PF Fact Sheet provides an overview of pulmonary fibrosis and statistics associated with this disease.

Download Fact Sheet

QUESTIONS FOR YOUR DOCTOR

Newly diagnosed with pulmonary fibrosis? The Foundation has compiled a list of questions that you should ask your doctor during your office visit. 

English
Spanish

QUICK START GUIDE FOR SUPPLEMENTAL OXYGEN

Quick Start Guide to Supplemental OxygenThe Pulmonary Fibrosis Foundation (PFF) in partnership with the American Association for Respiratory Care (AARC) launched a quick start guide for supplemental oxygen at the American Thoracic Society (ATS) conference in May 2017. The new education resource is intended for  people who have been newly prescribed supplemental oxygen and includes information about oxygen prescriptions, equipment operation, and how to use oxygen safely.



English Brochure                           Printer-friendly version
Spanish Brochure                          Printer-friendly version
Russian Brochure                          Printer-friendly version
Mandarin Chinese Brochure          Printer-friendly version

To request a hard copy of our Quick Start Guide for Supplemental Oxygen, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

TRAVELING WITH SUPPLEMENTAL OXYGEN

Traveling With O2The Pulmonary Fibrosis Foundation (PFF) launched a guide for traveling with supplemental oxygen. The new education resource is intended for people who have been newly prescribed supplemental oxygen and includes information about traveling on airplanes, as well as a checklist.





English Brochure                      Printer-Friendly Brochure
Spanish Brochure        

To request a hard copy of our Traveling With Supplemental Oxygen brochure, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

.

BELOW: FOR HEALTHCARE PROFESSIONALS

DISEASE AWARENESS POSTER

Understanding Pulmonary FibrosisOur Disease Awareness Poster provides can be displayed in waiting rooms, offices, or exam rooms to provide a visual overview of pulmonary fibrosis. Each poster is 18x24 inches.

To request a hard copy of our Disease Awareness Poster, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

ILD Nursing and Allied Health Guide

ILD Nursing and Allied Health GuideThe ILD Nursing and Allied Health Guide is a comprehensive resource to help health care professionals learn more about disease identification, interpreting test results, comorbidities, disease management, and advising and supporting patients with pulmonary fibrosis.

Download

 

ILD Pocket Guide

ILD guide coverOur ILD Pocket Guide for physicians can be displayed in waiting rooms, offices, or exam rooms to provide a visual overview of pulmonary fibrosis. To request a hard copy of our ILD Pocket Guide, please contact the PFF Patient Communication Center at 844.Talk.PFF or pcc@pulmonaryfibrosis.org.

Download in English
Download in Spanish

 

Pulmonary Rehabilitation Pocket Guide

About Pulmonary RehabThe Pulmonary Rehabilitation Pocket Guide is an educational tool for allied health professionals that work in a pulmonary rehabilitation environment. This pocket guide highlights the differences between pulmonary fibrosis and other forms of chronic lung diseases and offers useful information about pulmonary rehabilitation, physical activity, supplemental oxygen, and disease management for patients with pulmonary fibrosis.


English
Spanish

Rheumatology Pocket Guide

Rheumatology pocket guideThe Rheumatology Pocket Guide is an educational tool for rheumatologists to help familiarize them with signs of interstitial lung disease in patients with connective tissue disease. The guide contains information about symptoms, prevalence, risk factors, and common HRCT patterns in connective tissue disease-related interstitial lung disease (CTD-ILD), as well as an emphasis on the importance of multidisciplinary discussion for patients suspected to have CTD-ILD.



Download



 

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