PFF Summit 2019 Patient Sessions
Thursday > Sessions
Pulmonary Fibrosis Overview and Introduction to the PFF
Leaders: Kate Gates
 | Joyce Lee, MD: Overview of Pulmonary Fibrosis | VIEW SLIDES |
| Wendi Mason, MSN, NP: Symptom Management | VIEW SLIDES |
| Erica Farrand, MD: Case Study | VIEW SLIDES |
| Pauline Bianchi, BSN, RN: Introduction to the PFF and Care Center Network | VIEW SLIDES |
| Panel Q&A - Joyce Lee, MD; Wendi Mason, MSN, NP; Erica Farrand, MD; Pauline Bianchi, BSN, RN |
Friday > Sessions
Keynote Address
| Edith Perez, MD: Translational Genomics: The Future is Now | VIEW SLIDES |
Plenary Session I
LEADERS: Greg Cosgrove, MD and Christine Kim Garcia, MD
| Christine Kim Garcia, MD: Impact of telomere length and mutations on treatment and transplant responses in pulmonary fibrosis | VIEW SLIDES |
| Naftali Kaminski, MD: Cell-based precision medicine approaches to pulmonary fibrosis – Insight from the IPF Cell Atlas | VIEW SLIDES |
| Imre Noth, MD: Integration of genetic information in clinical trial design for precision medicine | VIEW SLIDES |
| Panel Q&A |
FDA Approved Therapies for IPF
LEADERS: Pauline Bianchi,
| Prema Menon, MD, PhD: FDA Approved Therapies for IPF | VIEW SLIDES |
Preparing for the Future
LEADERS: Krishna Thavarajah, MD
| Kathleen O. Lindell, PhD, RN, ATSF, Seth Klein, and Laurie Chandler : Preparing for the Future | VIEW SLIDES |
Preparing for the Future Grief Writing Workshop : Reclaiming Your Life through Grief Writing Part 1
LEADERS: Laura Devitt
Pennie Hunt: A two-part workshop to encourage finding the words for emotions, feelings, and fears and putting them on paper. |
Clinical Trials Innovation Series
| Craig S. Conoscenti, MD, FCCP, ATSF: Boehringer Ingelheim | VIEW SLIDES |
Genentech | This presentation is currently not available. | |
FibroGen | This presentation is currently not available. | |
| Paul Ford, MD, PhD: Galapagos | VIEW SLIDES |
| Sangeeta Bhorade, MD: Veracyte | VIEW SLIDES |
Caregiving
Leader: Kate Gates
| Michael Knaapen: Caregiving | VIEW SLIDES |
| Debbie Herndon, Mary Ann Kinsky, and Michael Knaapen: Caregiving Panel |
Research and Clinical Trials 101
Leader: Justin Oldham, MD
| Sonye Danoff, MD: Research and Clinical Trials 101 | VIEW SLIDES |
Grief Writing Workshop Reclaiming Your Life through Grief Writing: Part 2
LEADERS: Laura Devitt
Pennie Hunt: A two-part workshop to encourage finding the words for emotions, feelings, and fears and putting them on paper. |
Supplemental Oxygen 101
LEADERS: Amy Case, MD
| Susan Jacobs, RN, MS: Supplemental Oxygen 101 | VIEW SLIDES |
| Dillon Becker: Oxygen Equipment Overview |
Familial Pulmonary Fibrosis and Genetic Counseling
LEADERS: Soma S. Jyothula, MD
| Jonathan Kropski, MD : Identified Genetic Variants | VIEW SLIDES |
| Janet Talbert, MS, CGC: Genetic Counseling | VIEW SLIDES |
| Jonathan Kropski, MD and Janet Talbert, MS, CGC: Familial Pulmonary Fibrosis and Genetic Counseling Q&A |
Networking Dinner
| Networking Dinner and Honoring Ceremony |
> Sessions
Keynote Address
| Bray Patrick-Lake, MFS: Opportunities for Patient Engagement in the Development of Clinical Trials | VIEW SLIDES |
Plenary Session II
LEADERS: Ayodeji Adegunsoye, MD & Justin Oldham, MD
| Jeffrey Swigris, DO: Clinician Perspective: Importance of Patient-Related Outcomes | VIEW SLIDES |
| Ganesh Raghu, MD: Is the Time Right for Changes in PF Clinical Trial Endpoints? | Slides are not currently available for this presentation |
| Greg Cosgrove, MD & Dave Sherry: Patient Perspective |
| Panel Discussion and Audience Q&A |
Legislative Advocacy
| Bill Schmidt and Kate Gates: Legislative Advocacy | VIEW SLIDES |
Health and Wellness with Pulmonary Fibrosis
| Carol Bair, RCP : Pulmonary Rehabilitation | VIEW SLIDES |
| Barbra Swanson, MS, ND, RDN, LD : Nutrition | VIEW SLIDES |
| Lisa Lancaster, MD : Management of Associated Conditions | VIEW SLIDES |
Clinical Trials Innovation Series
| Aryeh Fischer, MD: Bristol-Myers Squibb | VIEW SLIDES |
| Jaye Bea Smalley and Zoran Popmihajlov, MD: Celgene | VIEW SLIDES |
| Sanjeev Khindri, MD, MRCP: Galecto | VIEW SLIDES |
| Eduard Gorina, MD: Pliant Therapeutics| VIEW SLIDES |
| Ahmet Tutuncu, MD, PhD: Respivant | VIEW SLIDES |
Supplemental Oxygen
LEADER: Sachin Chaudhary, MD
| Susan Jacobs, RN, MS: Supplemental Oxygen 101 | VIEW SLIDES |
| Dillon Becker: Oxygen Equipment Overview |
Mental Health and Chronic Disease
LEADER: Lindsey Bassett
| Deborah Gillman, PhD : Mental Health and Chronic Disease | VIEW SLIDES |
Fundraising and the PFF
LEADER: PFF Development Team
| Fundraising and the PF Community - How You Can Make an Impact! | VIEW SLIDES |
The Lung Transplant Experience
LEADERS: Ayodeji Adegunsoye, MD
| Timothy Whelan, MD: The Lung Transplant Experience| VIEW SLIDES |
| Dorothy Delarosa: Patient's Perspective | VIEW SLIDES |
| The Lung Transplant Experience Panel |
Emergency Preparedness
Meditation, Mindfulness, and Movement
LEADER: Lindsey Bassett
Renee R. Fletcher, MSN, RN, CNS | VIEW SLIDES |
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