PFF Summit 2017 Patient Sessions

Thursday > Session

Patients and Caregivers: Intro to the PFF, Your Call to Action, and Understanding the Basics of Research

	Kevin Flaherty, MD, MS: Introduction of the PFF and the Care Center Network VIEW SLIDES
	Hal Collard, MD, John Morthanos, and David McNinch: Research 101: Understanding the process, terminology, definitions, and how a drug is brought to market VIEW SLIDES
	Kate Gates, Anne Dimmock, Lisa Boyd, Dot Delarosa, Barbara Murphy: Need Meets Action Part I: Overview of volunteering at the PFF
	Amanda Miller: Need Meets Action Part II: Overview of effective fundraising VIEW SLIDES

Friday > Sessions

Keynote Address

Jim Kiley, : National Heart, Lung, and Blood Institute (NHLBI) support for personalized therapy in lung disease VIEW SLIDES

Plenary Session I: Promise of Genetics and Personalized Medicine in PF

LEADERS: Bill Schmidt and Greg Cosgrove, MD

	Jeff Trent: State-of-the-art approaches to genetic discovery in complex disease VIEW SLIDES
	Jim Loyd, MD: Current status of clinical genetic testing in ILD VIEW SLIDES
	Janet Talbert MS, CGC: A genetic counselor's perspective: Impact of genetic information for patients and families VIEW SLIDES

Kidbilly Music, Presented by Genentech

Kidbilly Perspectives from All: Songwriting for team-building, networking, and emotional healing

Understanding ILD and IPF

LEADERS: Amanda Miller

Kristin Highland, MD: Part I: Overview of ILD, IPF, and connective tissue disease SLIDES AND WEBINAR ARE UNAVAILABLE AT THIS TIME

Mary Beth Scholand, MD: Part II: Understanding your test results: HRCT, 6MWT, PFTs, and oximetry SLIDES AND WEBINAR ARE UNAVAILABLE AT THIS TIME

Quality of Life: Next Steps

LEADER: Amanda Miller

	Josh Mooney, MD, MS: Part I: Evaluation for lung transplantation VIEW SLIDES
	Linda Manning, MD: Part II: Using mindfulness for stress management in chronic disease VIEW SLIDES
	Wendi Mason, MSN: Part III: Treatment of cough VIEW SLIDES

Call to Action Part I

LEADER: Kate Gates

	Kathleen O. Lindell, , RN, John Mulder: Transitioning after the loss of a loved one, after a transplant
	Kate Gates: How to participate in legislative advocacy SLIDES AND WEBINAR ARE UNAVAILABLE AT THIS TIME

Oxygen Therapy, Pulmonary Rehabilitation, and Symptom Management

LEADER: Heather Kundert

	Susan Jacobs, RN, MS: Part I: Living with oxygen therapy and PF; Overview of various types of POCs, compressed gas units, trans-fill systems, and backpacks; How can I be active and travel with O2 (MedJet and other emergency travel services)? SLIDES AND WEBINAR ARE FORTHCOMING
	Trina Limberg, BS, RRT: Part II: Pulmonary rehab: What is it and how can it help me? SLIDES AND WEBINAR ARE UNAVAILABLE AT THIS TIME
	Wendi Mason, MSN: Part III: Symptom management: , dyspnea, and fatigue SLIDES AND WEBINAR ARE UNAVAILABLE AT THIS TIME

What's in the Pipeline? Current Clinical Trials, Potential Therapies, and How the Process Works

LEADER: Greg Cosgrove, MD

	Bill Bradford, MD, : Part I: Understanding how clinical trials work and the therapeutic process to bring a drug to market VIEW SLIDES
	Greg Cosgrove, MD: Part II: Current clinical drug trials in the pipeline for IPF and PF, and an overview of potential therapies moving forward SLIDES AND WEBINAR ARE UNAVAILABLE AT THIS TIME

Call to Action Part II: How to Host a Fundraising Event

LEADER: Seth Klein

Amy Kozyra: How to host a fundraising event VIEW SLIDES

Saturday > Sessions

Keynote Address

Gordon R. Bernard, MD: Re-thinking clinical trials in PF | VIEW SLIDES

Plenary Session and Panel Discussion: Maximizing the Impact of Available Therapies in IPF

LEADERS: Lisa Lancaster, MD

	Kevin Flaherty, MD, MS: PFF Care Center Networks and PFF Patient Registry\| VIEW SLIDES

	Jason Martin, MD: Improving care for PF patients and adherence to treatment plans: A physician family member's perspective \| VIEW SLIDES

	PANEL: Carolyn Adams-Duda, Kevin Flaherty, Jason Martin, Gregory Cosgrove, Maryluz Fuentes

Basics of Genetics and What We Know About Stem Cell Therapy