Stay tuned for the PFF Summit 2019 program.

To view the PFF Summit 2017 program, click here. The PFF Summit 2017 program included breakout sessions that were designed to suit the needs of different categories of attendees. However, sessions were open to all attendees who were interested. A majority of the sessions were recorded and can be found on our YouTube channel.


Rare Disease Day 2015 - February 28

Rare Disease Day is an annual global event to focus attention on rare diseases as a public health concern.
Patients, their families, and others can show their support by posting stories, videos, and blogs; or they can host or attend events to raise awareness of the challenges associated with living with a rare disease. Throughout the world, supporters will use the same logo, slogan, posters, and messages to promote the purpose of the day.   
Activities include both virtual and in-person events.

Learn More