Program

Program at a Glance

WEDNESDAY, NOVEMBER 6, 2019

 

Registration
11:00 a.m. - 7:00 p.m.

THURSDAY, NOVEMBER 7, 2019

Registration
7:00 a.m. - 8:30 p.m.

Disease Overview and Introduction to the PFF
1:00 p.m. - 4:00 p.m.

Welcome reception and poster presentation
5:00 p.m. - 8:00 p.m.


FRIDAY, NOVEMBER 8, 2019

Registration
7:00 a.m. - 7:00 p.m.

Plenary Session
8:30 a.m. - 10:30 a.m.

Sessions for professionals 
10:45 a.m. - 12:00 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
10:45 a.m. - 12:00 p.m.

Lunch Break - Clinical Trials Innovation Series
12:00 p.m. - 1:20 p.m.

Sessions for professionals 
1:20 p.m. - 2:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
1:20 p.m. - 2:50 p.m.

Break
2:50 p.m. - 3:15 p.m.

Sessions for professionals 
3:15 p.m. - 4:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
3:15 p.m. - 4:50 p.m.

Cocktail Reception
5:50 p.m. - 6:50 p.m.

Networking Dinner
6:50 p.m. - 8:50 p.m.

SATURDAY, NOVEMBER 9, 2019

Registration
7:00 a.m. - 5:00 p.m.

Plenary Session
8:30 a.m. - 10:30 a.m.

Sessions for professionals 
10:45 a.m. - 12:00 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
10:45 a.m. - 12:00 p.m.

Lunch Break - Clinical Trials Innovation Series
12:00 p.m. - 1:20 p.m.

Sessions for professionals 
1:20 p.m. - 2:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
1:20 p.m. - 2:50 p.m.

Break
2:50 p.m. - 3:15 p.m.

Sessions for professionals 
3:15 p.m. - 4:50 p.m.

Sessions for patients, caregivers, those who have lost a loved one, and transplant recipients
3:15 p.m. - 4:50 p.m.

Rare Disease Day 2015 - February 28

Rare Disease Day is an annual global event to focus attention on rare diseases as a public health concern.
 
Patients, their families, and others can show their support by posting stories, videos, and blogs; or they can host or attend events to raise awareness of the challenges associated with living with a rare disease. Throughout the world, supporters will use the same logo, slogan, posters, and messages to promote the purpose of the day.   
 
Activities include both virtual and in-person events.

Learn More

Worldwide