PFF Summit 2019 Patient Sessions

Thursday > Sessions

Pulmonary Fibrosis Overview and Introduction to the PFF

Leaders: Kate Gates

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Joyce Lee, MD: Overview of Pulmonary Fibrosis | VIEW SLIDES

  
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Wendi Mason, MSN, NP:  Symptom Management | VIEW SLIDES

  
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Erica Farrand, MD: Case Study | VIEW SLIDES

  
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Pauline Bianchi, BSN, RN: Introduction to the PFF and Care Center Network  | VIEW SLIDES

  
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Panel Q&A - Joyce Lee, MD; Wendi Mason, MSN, NP; Erica Farrand, MD; Pauline Bianchi, BSN, RN

 

Friday > Sessions

Moving Forward Together

Summit WatchBill Schmidt, Dana Ball, Dot Delarosa VIEW SLIDES

 

Keynote Address

Summit WatchEdith Perez, MD: Translational Genomics: The Future is Now | VIEW SLIDES

 

Plenary Session I

LEADERS: Greg Cosgrove, MD and Christine Kim Garcia, MD


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Christine Kim Garcia, MD: Impact of telomere length and mutations on treatment and transplant responses in pulmonary fibrosis | VIEW SLIDES

  
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Naftali Kaminski, MD: Cell-based precision medicine approaches to pulmonary fibrosis – Insight from the IPF Cell Atlas VIEW SLIDES

  
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Imre Noth, MD: Integration of genetic information in clinical trial design for precision medicine | VIEW SLIDES

  
Summit WatchPanel Q&A

 

FDA Approved Therapies for IPF

LEADERS: Pauline Bianchi, 


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Prema Menon, MD, PhD: FDA Approved Therapies for IPF | VIEW SLIDES

 

Preparing for the Future

LEADERS: Krishna Thavarajah, MD

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Kathleen O. Lindell, PhD, RN, ATSF, Seth Klein, and Laurie Chandler : Preparing for the Future | VIEW SLIDES

 

Preparing for the Future Grief Writing Workshop : Reclaiming Your Life through Grief Writing Part 1

LEADERS: Laura Devitt

 

Pennie Hunt: A two-part workshop to encourage finding the words for emotions, feelings, and fears and putting them on paper. 


Clinical Trials Innovation Series

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Craig S. Conoscenti, MD, FCCP, ATSF: Boehringer Ingelheim | VIEW SLIDES

  
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Cindy Burg, PharmD, BCPS and Judit Axmann, PhDGenentech | VIEW SLIDES

  
 

FibroGen | This presentation is currently not available.

  
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Paul Ford, MD, PhDGalapagos | VIEW SLIDES

  
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Sangeeta Bhorade, MD: Veracyte | VIEW SLIDES

 

Caregiving

Leader: Kate Gates

Summit WatchMichael Knaapen: Caregiving | VIEW SLIDES
  
Summit WatchDebbie Herndon, Mary Ann Kinsky, and Michael Knaapen: Caregiving Panel 

 

Research and Clinical Trials 101

Leader: Justin Oldham, MD

Summit WatchSonye Danoff, MD: Research and Clinical Trials 101  | VIEW SLIDES

 

Grief Writing Workshop Reclaiming Your Life through Grief Writing: Part 2

LEADERS: Laura Devitt


 

Pennie Hunt: A two-part workshop to encourage finding the words for emotions, feelings, and fears and putting them on paper. 

 

Supplemental Oxygen 101

LEADERS: Amy Case, MD


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Susan Jacobs, RN, MS: Supplemental Oxygen 101 | VIEW SLIDES

  
Summit WatchDillon Becker: Oxygen Equipment Overview 

 

Familial Pulmonary Fibrosis and Genetic Counseling

LEADERS: Soma S. Jyothula, MD

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Jonathan Kropski, MD : Identified Genetic Variants | VIEW SLIDES

  
Summit WatchJanet Talbert, MS, CGC: Genetic Counseling | VIEW SLIDES
  
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Jonathan Kropski, MD and Janet Talbert, MS, CGC: Familial Pulmonary Fibrosis and Genetic Counseling Q&A 

 

Networking Dinner

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Networking Dinner and Honoring Ceremony

 

Saturday > Sessions

Keynote Address

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Bray Patrick-Lake, MFS: Opportunities for Patient Engagement in the Development of Clinical Trials | VIEW SLIDES


Plenary Session II

LEADERS: Ayodeji Adegunsoye, MD & Justin Oldham, MD

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Jeffrey Swigris, DO: Clinician Perspective: Importance of Patient-Related Outcomes | VIEW SLIDES

  
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Ganesh Raghu, MD: Is the Time Right for Changes in PF Clinical Trial Endpoints? | Slides are not currently available for this presentation

  
Summit WatchGreg Cosgrove, MD & Dave Sherry: Patient Perspective 
  
Summit WatchPanel Discussion and Audience Q&A

 

Legislative Advocacy

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Bill Schmidt and Kate Gates: Legislative Advocacy  | VIEW SLIDES

 

Health and Wellness with Pulmonary Fibrosis

Summit WatchCarol Bair, RCP : Pulmonary Rehabilitation | VIEW SLIDES
  
Summit WatchBarbra Swanson, MS, ND, RDN, LD : Nutrition | VIEW SLIDES
  
Summit WatchLisa Lancaster, MD : Management of Associated Conditions | VIEW SLIDES

 

Clinical Trials Innovation Series

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Aryeh Fischer, MD: Bristol-Myers Squibb | VIEW SLIDES

  
Summit WatchJaye Bea Smalley and Zoran Popmihajlov, MD: Celgene | VIEW SLIDES
  
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Sanjeev Khindri, MD, MRCP: Galecto | VIEW SLIDES

  
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Eduard Gorina, MD: Pliant Therapeutics| VIEW SLIDES

  
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Ahmet Tutuncu, MD, PhD: Respivant | VIEW SLIDES


Supplemental Oxygen

LEADER: Sachin Chaudhary, MD

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Susan Jacobs, RN, MS: Supplemental Oxygen 101 | VIEW SLIDES

  
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Dillon Becker: Oxygen Equipment Overview 

 

Mental Health and Chronic Disease

LEADER: Lindsey Bassett

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Deborah Gillman, PhD : Mental Health and Chronic Disease | VIEW SLIDES

 

Fundraising and the PFF

LEADER: PFF Development Team

 Fundraising and the PF Community - How You Can Make an Impact! | VIEW SLIDES

 

The Lung Transplant Experience

LEADERS: Ayodeji Adegunsoye, MD

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Timothy Whelan, MD: The Lung Transplant Experience| VIEW SLIDES

  
Summit WatchDorothy Delarosa: Patient's Perspective | VIEW SLIDES
  
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The Lung Transplant Experience Panel


Emergency Preparedness

LEADER: Mary Strek, MD

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Pam Tishendorf, CRP: Emergency Preparedness | VIEW SLIDES

 

Meditation, Mindfulness, and Movement

LEADER: Lindsey Bassett

 

Renee R. Fletcher, MSN, RN, CNS | VIEW SLIDES

 


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