At the PFF Summit in November, we unveiled the Pulmonary Fibrosis Foundation’s (PFF) five- year strategic plan, The PFF is ME. The plan reflects our collective purpose and shared determination to find a cure for pulmonary fibrosis. It is a roadmap shaped by your voices and grounded in the real, lived experience of people affected by pulmonary fibrosis (PF) and interstitial lung disease (ILD).

Over the course of a year, nearly 350 patients, caregivers, healthcare providers, advocates, and supporters came together to share their expertise and insights. What emerges from this collaborative effort are four pillars that will guide our work over the next five years. Our priorities reflect the needs of our community and the impact we can make together.

Accelerate Research

• Our first pillar is about acceleration. We must fuel research that leads to new treatments, better symptom management, and improved quality of life for people living with PF and ILD. While scientific innovation is essential, progress also depends on the willingness of patients and families to participate and share their experiences. Research advances when our community is engaged.

Expand Access to Expert Care

• PF is a life-threatening condition, and access to expert care can make a difference. We must ensure that every patient, regardless of where they live, can see specialists who understand the disease and can guide them through treatment options. This is both a challenge and an opportunity for our community. No one should be left navigating PF alone.

Improve the Lives of Patients Right Now

• While we work toward long-term solutions, we must also focus on today. This pillar is about making a difference here and now through trusted education, expanded support services, better symptom management, and stronger connection among patients and families.

Bring the Community Together

• Our shared vision only becomes possible when we work together. This pillar reflects the importance of fostering connection, understanding, and collective action. Through support groups, local and national events, advocacy efforts, and community engagement, we build strength by uniting voices and experiences across the PF community.

Because of you, no one affected by PF has to face this disease alone. The PFF is here to educate, connect patients with care and clinical trials, and offer support throughout every step of the journey. But it is your engagement, your stories, and your partnership that make this work possible.

For many of us at the PFF, this mission is deeply personal. I lost my mother to idiopathic pulmonary fibrosis in 2015, and experienced firsthand the uncertainty and heartache that come with a PF diagnosis. That loss strengthened my resolve to help patients and families nationwide.

The PFF is ME – and it’s you. Together, we must bring this plan to life, maximize our impact and create a better future for everyone living with PF.

I encourage you to read the full strategic plan to learn more about the goals guiding our work through 2029, and the ways you can help bring this vision to life.

Thank you for helping make progress possible.