If you or a loved one is living with pulmonary fibrosis (PF) or interstitial lung disease (ILD), you are not alone. At the Pulmonary Fibrosis Foundation (PFF), we are here to guide, support, and empower you at every step of your journey. From trusted medical information to peer-to-peer support and community connection, our mission is to ensure that no one faces these diseases without help and hope.

Whether you're a patient, caregiver, or healthcare provider, we offer resources that can truly make a difference. Together, we’re building a world with better care, better outcomes—and one day, a cure.

Get the Medical Care and Answers You Need

Pulmonary fibrosis can be a complex and overwhelming diagnosis. That’s why the PFF offers a range of support services and medically vetted information to help you understand your condition, make informed decisions, and connect with experts and peers who care.

• PFF Care Center Network: Through this program, you can find an expert doctor. Our national network of over 80 medical centers provides expert diagnosis, treatment, and management of PF. Find a center near you to access comprehensive, coordinated care.

• PFF Patient Communication Center: Get answers to your questions and learn where to find the information you need. Call 844.TalkPFF (844.825.5733) or email help@pulmonaryfibrosis.org.

• Educational Materials & Videos: Explore a wealth of accessible resources at pulmonaryfibrosis.org to learn more about PF, treatment options, clinical trials, and what to expect.

• Clinical Trials Education Center: Learn about the four stages of clinical trials and search for relevant and feasible studies nearby.

• PFF Community Registry: Help researchers find answers to key questions about PF and ILD by completing two surveys per year. Patients, caregivers, biological family members, and lung transplant recipients are invited to join.

Resources for Healthcare Providers and Researcher

We also equip healthcare professionals with the latest tools and information to provide high-quality care to patients living with PF or ILD.

• Clinical resources including diagnostic guidelines, continuing medical education, and patient handouts.

• Access to experts at care centers and in working groups.

• Opportunities for emerging researchers to continue their studies through PFF Scholars.

• Use of longitudinal data from people impacted by PF and ILD through the PFF Registry.

Visit our Healthcare Professionals section at pulmonaryfibrosis.org to explore these resources.

Connection and Community

Across the country, people impacted by pulmonary fibrosis are coming together—raising awareness, supporting one another, and building a compassionate community grounded in shared experience.

• Find a support group near you. 

• Join one of our monthly Zoom support groups – PFF Voices for patients; PFF Caring Conversations for caregivers; and PFF Lung Transplant Community Group for those who are on the journey of a lung transplantation. 

Each year, the PFF hosts events like Pulmonary Fibrosis Awareness Month, the PFF Walk, and Broadway Belts for PFF! that not only generate vital funds and awareness but also create meaningful opportunities to meet others who understand what you’re going through.

Ways to Give Back and Make an Impact

Many in our community find hope through giving—by helping others on similar journeys and by fueling the fight against PF. If you're looking to give back, here are a few ways you can help others receive the same support and care:

• Advocate for better policies and access to care—your voice helps shape the future of treatment and research.

• Fundraise with Team PFF to support patient programs and accelerate research.

• Make a recurring gift or explore workplace giving to provide steady support for the Foundation’s efforts to help those impacted.

• Engage on social media to spread awareness and share information.

Every effort—whether it's sharing a post, attending a webinar, or making a monthly donation—extends the reach of the Foundation’s life-changing work.

We’re Here for You

The Pulmonary Fibrosis Foundation exists to serve, support, and empower the PF community. Whether you’re newly diagnosed, a caregiver, or a provider seeking resources—we are here for you.

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About the Pulmonary Fibrosis Foundation
At the Pulmonary Fibrosis Foundation, we are dedicated to making a difference in the lives of those affected by pulmonary fibrosis (PF), a form of interstitial lung disease (ILD). Pulmonary fibrosis is a process that causes lung scarring, in which fibrotic tissue blocks the movement of oxygen from inside the tiny air sacs in the lungs into the bloodstream. Low oxygen levels, and the stiff scar tissue itself, can cause people with pulmonary fibrosis to feel short of breath, particularly when walking and exercising. Over 250,000 Americans are living with PF today. Approximately 50,000 new cases are diagnosed each year and as many as 40,000 Americans die from idiopathic pulmonary fibrosis (IPF) each year.
As the largest organization committed to raising awareness and providing support, our mission is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and healthcare providers.