Clinical trial participants are essential in the quest for new treatments and a cure for pulmonary fibrosis (PF).

Each month, we'll highlight a few of the many trials enrolling volunteers. All past issues are available on the PFF Clinical Trials Blog. To view more trials for various forms of interstitial lung disease (ILD), visit the 🔍  PFF Clinical Trial Finder.

Seeking participants with pulmonary hypertension associated with ILD (PH-ILD)

DeciPHer-ILD

• Study ID: NCT06388421
• Intervention: Observational
• Sponsor: United Therapeutics Corporation
  
• Study Contact: United Therapeutics Global Medical Information (919.485.8350; clinicaltrials@unither.com) 

Learn more about this study 

Seeking participants with idiopathic pulmonary fibrosis (IPF)

A Study of ABBV-142 to Assess Adverse Events and Change in Disease Activity in Adult Participants With IPF

• Study ID: NCT07230288
• Trial Phase: Phase 2a
• Intervention: Subcutaneous injection
• Sponsor: AbbVie
• Study Contact: AbbVie Call Center (844.663.3742; abbvieclinicaltrials@abbvie.com)

Learn more about this study 

Learn more about this drug

Seeking participants with lung disease 

Role of Genetic Factors in the Development of Lung Disease

• Study ID: NCT00001532
• Intervention: Observational
• Sponsor: National Heart, Lung, and Blood Institute (NHLBI)
• Study Contact: Tatyana A Worthy, RN (301.827.1376; worthyt@mail.nih.gov); Joel Moss, MD (301.496.1597; mossj@nhlbi.nih.gov) 

Learn more about this study

Seeking participants with systemic autoimmune rheumatic diseases associated interstitial lung diseases (SARD-ILD)

A Study to Test Whether Nerandomilast Helps People With SARD-ILD

• Study ID: NCT06806592
• Trial Phase: Phase 3
• Intervention: Oral drug
• Sponsor: Boehringer Ingelheim
• Study Contact: Boehringer Ingelheim (800.243.0127; clintriage.rdg@boehringer-ingelheim.com)  

Learn more about this study

Learn more about this drug

Share your research study experience with us

We are interested in learning about your experience participating in research studies for ILD. If you would like to share your journey, please complete the "My research study story" online form. We will select story submissions to feature in the "Putting a face to the science" section of our clinical trials newsletter (see below). This initiative aims to highlight unique perspectives from the PF and ILD community.

Thank you for your consideration and taking the time to share your experience with the PFF and broader community. We sincerely appreciate your contribution to our future newsletters.

Putting a face to the science: living with myositis-associated ILD 

Dionn was devoted to helping others as a social worker, community volunteer, and church member. For years, she would get bronchitis every winter but didn’t think it was a cause for concern. 

When Dionn was finally diagnosed with myositis-associated ILD, telling her family was difficult and for those she loves, hearing the diagnosis was scary. After processing the news together, her family rallied around her and became a strong source of support. Determined not to take anything for granted, Dionn focuses on doing the things she enjoys, including singing, directing her church choir, and serving as the minister of music at her church. She also remains deeply connected to the PF and ILD community through support groups, webinars, and educational resources. She never thought one day she would share her experiences as a PFF Ambassador, but here she is, raising awareness and “crushing life” with her family and friends by her side.

To learn more about myositis-associated ILD, explore the Myositis-Associated ILD Fact Sheet.