SUpport Group Leader Program

PFF Support Group Leader Network

We Strengthen our network of support through education and discussion

The PFF Support Group Leader Network provides a forum for pulmonary fibrosis support group leaders to interact, exchange ideas, and discuss best practices. Launched in 2012, the Networkassists leaders in gaining the knowledge and resources to establish or host a support group.

Are you interested in starting a pulmonary fibrosis support group? The Pulmonary Fibrosis Foundation has many resources to provide you with all the information you will need to develop and run your support group.  We can assist you in promoting your group to our members and provide you with PFF educational materials. For further information, please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or pcc@pulmonaryfibrosis.org.

SUPPORT GROUP LEADER GUIDE

The Pulmonary Fibrosis Foundation Support Group Leader Guide provides an overview of PF support group basics, meeting fundamentals, and potential meeting topics. This guide was written by support group leaders and can provide useful information, whether you are planning your first PF support group, or developing new meetings for an established group.

Download Guide

QUARTERLY SUPPORT TELECONFERENCES

The PFF Support Group Leader Network quarterly teleconferences provide up-to-date information from the Foundation and offer a forum for support group leaders to discuss ideas and best practices for meetings. Following each teleconference, an eNewsletter is distributed to all support group leaders summarizing the meeting discussion. 

To join our next PFF Support Group Leader Network teleconference, please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or pcc@pulmonaryfibrosis.org. You can download the slides of our recent quarterly teleconferences and read the archive of eNewsletters below. 

Slides

LEANNE STORCH SUPPORT GROUP FUND

The Leanne Storch Support Group Fund, established in 2012, honors the commitment of Leanne Storch, former executive director of the Pulmonary Fibrosis Foundation, who was diagnosed with pulmonary fibrosis in 2003 and received a lung transplant in 2014. Leanne ran a local support group for 10 years and continues to be a passionate advocate for the PF community. 

The PFF is dedicated to assisting the all-volunteer PF support group community to engage their local PF patients, caregivers and family members, establish new support groups and host meaningful educational events. The Leanne Storch Support Group Fund enhances the PFF Support Group Leader Network by providing funding to assist the leaders in meeting the objectives of their local groups.

For more information and to apply for a Leanne Storch Support Group Fund, click here.

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