7.23.19 - Updated CCN Header

PFF Care Center Network

Working together to improve patient outcomes.

The Pulmonary Fibrosis Foundation (PFF) is dedicated to promoting earlier recognition and diagnosis of pulmonary fibrosis and ensuring that patients receive the highest quality healthcare. As part of that commitment, over the past three years the PFF has worked with the PF medical community to establish the PFF Care Center Network, where people with PF can find experienced medical professionals who understand their disease and support services to improve the quality of their lives. 

what is a pff care center network site?

The PFF Care Center Network (CCN) is a group of medical centers dedicated to improving the lives of those living with pulmonary fibrosis (PF). Care Centers have expertise in treating adult patients with fibrotic lung diseases and utilize a multidisciplinary approach to deliver comprehensive patient care, engage in patient- oriented PF research, and work with the PFF to provide educational materials and engage the local community through PFF programs.

Interested in becoming a CCN site? Please see requirements.

WHY IS THE PFF CARE CENTER NETWORK IMPORTANT TO THE PF COMMUNITY?

PF Care Centers are designed with patients in mind. Each patient is considered and treated individually. PF Care Centers work with the Pulmonary Fibrosis Foundation to actively engage their local PF communities to provide a range of educational and research activities. PF Care Centers use their local expertise and selected PFF programs to engage the local PF community to further clinical care, research and provide education.

The core team of each center will participate in a PFF-facilitated information session on the programs and materials available to Care Centers.

Each Center will help run a PF patient/caregiver support group that meets at least quarterly.

PFF CCN.2

HOW DOES THE PFF CARE CENTER NETWORK AND THE PFF PATIENT REGISTRY WORK TOGETHER?

In addition to providing outstanding medical care, the Care Center Network forms an infrastructure that facilitates the conduct of high-quality clinical and translational research that is helping us better understand PF, an important step toward a cure.

The PFF Patient Registry is a clinical research registry conducted at 42 out of 68 PFF Care Centers that works toward these goals. You must be a patient at a PFF Care Center in order to participate in the Registry.  

where can i find a PFF care center Network site?

PFF CCN 2019


Find a PFF Care Center Network (CCN) Site
CCN Fact Sheet (includes printable list of sites)


If there is not a CCN site near you, please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or pcc@pulmonaryfibrosis.org to identify regional pulmonary fibrosis centers in your area and to receive current disease education information.

how is the pff care center network funded?

The PFF Care Center Network is funded through the generous support of corporations, foundations, and individuals who have been impacted by PF who realize that the creation of a comprehensive health care network is fundamentally important to improving the lives of individuals with PF. If you would like to contribute to this important program, please donate now.

 

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