Care Center Network

Providing expert care in pulmonary fibrosis and interstitial lung disease

The Pulmonary Fibrosis Foundation (PFF) is dedicated to promoting earlier recognition and diagnosis of pulmonary fibrosis and ensuring that patients receive the highest quality healthcare. As part of that commitment, the Foundation worked with the PF medical community to establish the PFF Care Center Network in 2013, where people with PF can find experienced medical professionals who understand their disease and support services to improve the quality of their lives.

View Current List of CCN Sites

More about the PFF Care Center Network

First established in 2013, and thanks to ongoing efforts and collaboration of the PFF and the PF healthcare community, the PFF Care Center Network (CCN) has grown to include both Care Centers and Clinical Associates. All members of the CCN have expertise in treating adult patients with fibrotic lung diseases. Patients living with PF can find experienced medical professionals who understand their disease and support services to improve the quality of their lives. Clinical Associate members are community-based institutions that partner with Care Centers in order to share resources they may not otherwise have access to. Clinical Associates join the CCN with the goal to grow into a Care Center member or to remain a Clinical Associate indefinitely. Through the CCN, Care Centers and Clinical Associates collaborate to promote and provide quality care to those living with PF. The diagram to the right illustrates the focus of the patient within the relationships between the PFF, CCN and community.

Interested in becoming part of the CCN? Please read our criteria to learn more about the CCN membership categories.

Read the criteria to become a CCN

How Can an Institution Join the CCN?

Why is the PFF Care Center Network important to the PF community?

How do the PFF Care Center Network and the PFF Registry work together?

Where can I find a PFF Care Center Network site?

CCN Committees and Working Groups

* Membership of CCN Working Groups and Committees is composed of PFF staff and leadership, healthcare providers from the Network, and community stakeholders. Individuals whose primary employment is with pharmaceutical companies are typically excluded.

For a list of completed projects, current initiatives, and goals as of December 2024, please view our CCN Working Groups Report 2024

CCN Steering Committee

Provide guidance and recommendations to PFF Leadership and collaborate with the CCN sites in achieving the PFF mission. The Committee meets quarterly.

Chair:
Sonye Danoff, MD, PhD, Johns Hopkins

Members:
Scott Staszak, PFF CEO
Jessica Shore, PhD, RN, PFF Senior Vice President of Clinical Affairs and Quality
Amy Hajari Case, MD, FCCP, PFF Chief Medical Officer & Piedmont Healthcare
Tejaswini Kulkarni, MD, University of Alabama at Birmingham
Jamie Lederer, CRNP, MSN, University of Pennsylvania
Joyce Lee, MD, MS, University of Colorado Anschutz Medical Campus
Hyun Kim, MD, University of Minnesota
Anoop Nambiar, MD, University of Texas Health Science Center San Antonio
Lanier O'Hare, CRNP, University of Alabama at Birmingham
Ross Summer, MD, Thomas Jefferson University Hospital
Amy Gietzen, PFF Volunteer
Rick Tidwell, PFF Volunteer
Kevin Flaherty, MD, MS, University of Michigan Health System
Maryl Kreider, MD, MSCE, University of Pennsylvania
Murali Ramaswamy, MD, LeBauer Healthcare at Cone Health
Erica Farrand, MD, University of California at San Francisco
Janell Reichuber, MSN, RN, University of Kansas Hospital
Krishna Thavarajah, MD, Henry Ford Health System
Ingrid Schwab, PFF CCN Manager
Aubrey Trecek, PFF Senior Coordinator of Clinical Affairs

Rural Health Outreach Committee

Goal of the committee is to increase and improve access to pulmonary care for patients living in rural areas and develop for providers caring for patients living with PF tools that are specific for rural areas. Meetings are every other month.

Chairs:
Ryan Boente, MD, Indiana University
Hyun Kim, MD, University of Minnesota

CCN Best Practices Committee

Committee members use various sources of data in order to determine ways in which the quality of care provided to patients with ILD can be improved. Meetings are quarterly.

Chairs:
Krishna Thavarajah, MD, Henry Ford Health System
Nitin Bhatt, MD, The Ohio State University

ILD Fellows Curriculum Working Group

Develop a curriculum for ILD Fellow subspecialty training.

Chairs:
Tristan Huie, MD, National Jewish Health
Maryl Kreider, MD, MSCE, Penn Medicine

Pulmonary Hypertension Related to ILD Position Statement

Develop and disseminate Pulmonary Hypertension Related ILD Position Statements.

Chairs:
Amy Hajari Case, MD, FCCP, PFF Chief Medical Officer & Piedmont Healthcare
Steven Nathan, MD, Inova Fairfax Medical Campus

Nurse and Allied Health Network (NAHN)

See more information about the NAHN here.

For questions related to CCN Committees and Working Groups: ccn@pulmonaryfibrosis.org

How do I make a request for a Letter of Support?

PFF Walk 2025 Care Center Network Partners

The annual PFF Walk is funded in part through the generous support of our PFF Care Center Network partners. For more information on the PFF Walk, please visit our PFF Walk event page.

How the PFF Care Center Network is funded

The PFF Care Center Network is funded through the generous support of corporations, foundations, and individuals who have been impacted by PF who realize that the creation of a comprehensive health care network is fundamentally important to improving the lives of individuals with PF. If you would like to contribute to this important program, please donate now.

PFF Care Center Network

Providing expert care in pulmonary fibrosis and interstitial lung disease

More about the PFF Care Center Network

PFF Walk 2025 Care Center Network Partners

Care Center Network Partners

How the PFF Care Center Network is funded

Sponsored with the generous support of