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Leanne Storch Support Group Fund

Leanne Storch Support Group Fund

Supporting Pulmonary Fibrosis Foundation support groups

Named for the Foundation’s former Executive Director, who was diagnosed with PF in 2003, the Leanne Storch Support Group Fund honors Leanne’s enduring passion for supporting those affected by pulmonary fibrosis. 

2019 Funding Cycle

The Leanne Storch Support Group Grant application is now closed.

The PFF is dedicated to assisting the all-volunteer pulmonary fibrosis (PF) support group community to engage their local PF patients, caregivers and family members, establish new support groups and host meaningful educational events. The Leanne Storch Support Group Fund enhances the PFF Support Group Leader Network by providing funding to assist the leaders in meeting the objectives of their local groups.

The Leanne Storch Support Group Fund was established in 2012 to further enhance the support group experience. 52 grants were awarded in 2018.

Support group leaders can apply for the following types of grants:

  • $500 grant to establish a new pulmonary fibrosis support group
  • $750 grant to develop an existing pulmonary fibrosis support group to expand and extend their reach

Groups are limited to one grant per funding year. Support group leaders can request funds to cover expenses such as site rental fees, printing costs, refreshments, and other costs related to starting and/or running a quarterly or monthly PF support group.

See guidelines here.

PAST LEANNE STORCH SUPPORT GROUP FUND AWARDEES

2018 LEANNE STORCH SUPPORT GROUP FUND AWARDEES

University of Cincinnati Health Pulmonary Fibrosis Support Group
Cincinnati, Ohio 

Metro East Support Group
Maryville, Illinois

New York Presbyterian Hospital ILD Support Group
New York, New York

Idiopathic Pulmonary Fibrosis Support Group
San Juan Capistrano, California

Garden State Pulmonary Fibrosis Support Group
Cranford, New Jersey

Mid-Missouri Pulmonary Fibrosis Support Group
Columbia, Missouri

Simmons Center Idiopathic Pulmonary Fibrosis Support Group 
Pittsburgh, Pennsylvania 

San Antonio Pulmonary Fibrosis Support Group 
San Antonio, Texas

Integris Pulmonary Rehab Idiopathic Pulmonary Fibrosis Support Group 
Enid, Oklahoma 

Idaho Pulmonary Fibrosis Support Group 

Boise, Idaho 

Breathe Easy Rochester 
Rochester, New York
 
Pulmonary Fibrosis Together Support Group 
Chapel Hill, North Carolina 

A Breath of Hope 
Danville, Kentucky 

Medical University of South Carolina IPF Support Group
Charleston, South Carolina

Phelps Hospital IPF Support Group
Sleepy Hollow, New York

University of Pennsylvania ILD Support Group
Philadelphia, Pennsylvania

Idiopathic Pulmonary Fibrosis Support Group of Montgomery
Montgomery, Alabama

Grand Rapids Pulmonary Fibrosis Support Group
Grand Rapids, Michigan

The Hershey Pulmonary Fibrosis Support Group
Hershey, Pennsylvania

Joe Walsh Memorial Pulmonary Fibrosis Support Group 
Denver, Colorado

Portland Pulmonary Fibrosis Support Group
Portland, Oregon

Capital Region IPF Support Group
Albany, New York

Better Breathers Club IPF Support Group
Albuquerque, New Mexico

The Lung Research Center Pulmonary Support Group
Chesterfield, Missouri

St. Luke’s University Hospital Anderson Campus Pulmonary Fibrosis Support Group
Easton, Pennsylvania

St. Luke’s University Hospital Bethlehem Pulmonary Fibrosis Support Group
Bethlehem, Pennsylvania

Geisinger Medical Center Pulmonary Fibrosis Support Group
Danville, Pennsylvania

Cleveland Clinic Independence Family Health Center Support Group
Independence, Ohio

Greater Seattle Pulmonary Fibrosis Support Group
Seattle, Washington

Stanford Pulmonary Fibrosis Support Group
Stanford, California

UVA Interstitial Lung Disease Support Group
Charlottesville, Virginia

Temple Lung Center Pulmonary Fibrosis Support Group
Philadelphia, Pennsylvania

One Breath at a Time
Orlando, Florida

John Muir Restrictive Lung Disease Support Group
Pleasant Hill, California

Central Valley Pulmonary Fibrosis Support Group
Sacramento, California

Oregon Lung Transplant Support Group
Portland, Oregon

Greater Kansas City Pulmonary Fibrosis Support Group
Kansas City, MO

Piedmont Triad Pulmonary Fibrosis Support Group
Greensboro, North Carolina

Pulmonary Fibrosis Support Group of Sterling Heights
Sterling Heights, Michigan

Westgate Interstitial Lung Disease
Glendale, Arizona

Breathe of Life – Pulmonary Fibrosis Support Group
Royal Oak, Michigan  

Rhode Island Pulmonary Fibrosis Support Group
East Providence, Rhode Island

Suburban Lung Associate Pulmonary Fibrosis Support Group
Elk Grove Village, Illinois

Greater Hartford Pulmonary Fibrosis Support Group
West Hartford, Connecticut

Northland Pulmonary Fibrosis Support Group
North Kansas City, Missouri

Lehigh Valley Hospital Pulmonary Fibrosis Support Group
Allentown, Pennsylvania

Robert Wood Johnson Pulmonary Fibrosis Support Group
New Brunswick, New Jersey

Geisinger Medical Center/Wyoming Valley Pulmonary Fibrosis Education Meeting
Wilkes-Barre, Pennsylvania

Pulmonary Fibrosis Hope Support Group
Highland, Indiana

Madison Pulmonary Fibrosis Support Group
Madison, Wisconsin


2017 LEANNE STORCH SUPPORT GROUP FUND AWARDEES

Boston Pulmonary Fibrosis Support Group 
Boston, Massachusetts 

Breathe Easy Rochester 
Rochester, New York 

Breathe Easy Syracuse 
Syracuse, New York 

Breathe Vermont - Pulmonary Fibrosis Support Group
Burlington, Vermont

Cleveland Clinic Independence Family Health Center Support Group
Cleveland, Ohio 

East Valley Interstitial Lung Disease Support Group
Mesa, Arizona

Eastern Florida Pulmonary Fibrosis Support Group
Rockledge, Florida 

Elmhurst Breakfast Club Support Group
Elmhurst, Illinois 

Geisinger Medical Center Patient Education Group
Wilkes Barre, Pennsylvania 

Grand Rapids Pulmonary Fibrosis Support Group
Grand Rapids, Michigan 

Greater Kansas City Pulmonary Fibrosis Support Group
Kansas City, Missouri 

Healthy Living Pulmonary Fibrosis Support Group at University Medical Center
Las Vegas, Nevada 

Idaho Pulmonary Fibrosis Support Group
Boise, Idaho 

Idiopathic Pulmonary Fibrosis Support Group
Albuquerque,  New Mexico 

Idiopathic Pulmonary Fibrosis Support Group
Gainesville, Texas 

Idiopathic Pulmonary Fibrosis Support Group
San Juan Capistrano, California 

Idiopathic Pulmonary Fibrosis Support Group of Greater Tulsa
Tulsa, Oklahoma 

Idiopathic Pulmonary Fibrosis Warriors
Dallas, Texas 

IPF Support Group of Montgomery
Montgomery, Alabama 

Joe Walsh Memorial Pulmonary Fibrosis Support Group
Denver, Colorado

Just Breathe Pulmonary Fibrosis Support Group
Burlington, North Carolina 

Medical University of South Carolina Pulmonary Fibrosis Support Group
Charleston, South Carolina 

Metro East Pulmonary Fibrosis Support Group
Maryville, Illinois 

Mid Missouri Pulmonary Fibrosis Support Group
Columbia, Missouri 

New York Presbyterian Hospital Interstitial Lung Disease Support Group
New York, New York

Port Charlotte Pulmonary Fibrosis Support Group
Port Charlotte, Florida 

Pulmonary Fibrosis Hawai’i
Kailua, Hawai’i 

Pulmonary Fibrosis Support Group
Maywood, Illinois 

Pulmonary Fibrosis Support Group of Greater Washington, D.C.
Falls Church,  Virginia 

Pulmonary Fibrosis Support Group of Peoria
Peoria, Illinois 

Pulmonary Fibrosis Support Group of Sterling Heights
Sterling Heights, Michigan 

San Antonio Pulmonary Fibrosis Support Group
San Antonio, Texas 

Greater Seattle Pulmonary Fibrosis Support Group
Seattle, Washington 

Simmons Center Idiopathic Pulmonary Fibrosis Support Group
Pittsburgh, Pennsylvania 

St. Luke's University Hospital Pulmonary Fibrosis Support Group
Easton, Pennsylvania 

Stanford Pulmonary Fibrosis Support Group
Stanford, California 

The Lung Research Center Pulmonary Support Group
Chesterfield, Missouri 

Torrington Pulmonary Fibrosis Support Group
Torrington, Connecticut 

Tucson Pulmonary Fibrosis Support Group
Tucson, Arizona 

University of Virginia Arlington Interstitial Lung Disease Support Group
Charlottesville, Virginia 

West Texas Pulmonary Fibrosis Support Group
Odessa, Texas 

Westgate Interstitial Lung Disease Support Group
Glendale, Arizona 

2016 LEANNE STORCH SUPPORT GROUP FUND AWARDEES

New Support Group Grants

IPF Support Group
San Juan Capistrano, California

Just Breathe Pulmonary Fibrosis Support Group Burlington, North Carolina IPF Warriors Gainesville, Texas

Statcare IPF Support Group
Knoxville, Tennessee

ILD Support Group
La Jolla, California

A Breath of Hope
Douglasville, Georgia

Oklahoma Pulmonary Fibrosis Support Group
Oklahoma City, Oklahoma

PF Support Group - Boone County
Columbia, Missouri

IPF Support Group--Middle Georgia
Macon, Georgia

Pulmonary Fibrosis Support Group
Albuquerque, New Mexico

Advanced Lung Disease & Lung Transplant Support Group
Baltimore, Maryland

Eastern Florida Pulmonary Fibrosis Support Group
Rockledge, Florida

Port Charlotte Pulmonary Hypertension & Fibrosis Support Group
Port Charlotte, Florida

Gettysburg/Hanover/Adams Co. Area "Each Breath Counts" Support Group
Gettysburg, Pennsylvania

Johns Hopkins/University of Maryland Pulmonary Fibrosis Support Group
Baltimore, Maryland  

PF Warriors of North Texas
Dallas, Texas

Breathe Easy Syracuse
Liverpool, Florida

Pulmonary Fibrosis Support Group of Central Valley, California
Clovis, California

Support Group Development Grants

Joe Walsh Memorial IPF Support Group
Denver, Colorado

Dallas-Fort Worth Breathe
Dallas, Texas

Grand Rapids Pulmonary Fibrosis Support Group
Grand Rapids, Michigan

Portland Pulmonary Fibrosis Support Group
Portland, Oregon

IPF Support Group of Sterling Heights
Sterling Heights, Michigan

San Antonio Pulmonary Fibrosis Support Group
San Antonio, Texas

Greater Kansas City Pulmonary Fibrosis Support Group
Kansas City, Missouri

Pulmonary Fibrosis Support Group - Tucson, Arizona
Tucson, Arizona

Ann Arbor Pulmonary Fibrosis Support Group
Ann Arbor, Michigan

Piedmont Triad Pulmonary Fibrosis Support Group
Greensboro, North Carolina

Oregon Pulmonary Fibrosis Support Group
Tualatin, Oregon

Idaho Pulmonary Fibrosis Support Group
Meridian, Idaho

Stanford Pulmonary Fibrosis Support Group
Stanford, California

Hemet Pulmonary Fibrosis Support Group
Hemet, California

Better Breathers Support Group
Evansville, Indiana

Simmons Center IPF Support Group
Pittsburgh, Pennsylvania

Oahu IPF Support Group
Oahu, Hawaii

Charlotte Hungerford Hospital Torrington Support Group
Torrington, Connecticut

Hampton Roads Pulmonary Fibrosis Support Group
Norfolk, Virginia

Metro East Pulmonary Fibrosis Support Group
Maryville, Illinois

Breathe Easy Rochester Pulmonary Fibrosis Support Group
Rochester, New York

New York Presbyterian ILD Support Group
New York, New York

Seattle Pulmonary Fibrosis Support Group
Seattle, Washington

St. Francis Sleep Allergy and Lung Institute IPF Support Group
Clearwater, Florida

W.P.P.A. Pulmonary Fibrosis Support Group
Hudson, Florida

IPF Support Group at Vanderbilt
Nashville, Tennessee

Westgate ILD Support Group
Glendale, Arizona

Temple Lung Center PF Support Group
Philadelphia, Pennsylvania

Medical University of South Carolina Pulmonary Fibrosis Support Group
Charleston, South Carolina

Wescoe Foundation for PF: PF Support Group
Easton, Pennsylvania

2015 LEANNE STORCH SUPPORT GROUP FUND AWARDEES

   New Support Group Grants

Boston Pulmonary Fibrosis Support Group
Boston, Massachusetts

Suffolk County Pulmonary Fibrosis Support Group
Stony Brook, New York

North Puget Sound PF Support Group
Everett, Washington

VA IPF Support Group
Miami, Florida

Spectrum Health PF Support Group
Grand Rapids, Michigan

Advanced Lung Disease Support Group of Long Island
New Hyde Park, New York

Second Wind Foundation Breathe Easy Support Group
Hooksett, New Hampshire

Southwest Louisiana PF Support Group
DeRidder, Louisiana

Hemet Pulmonary Fibrosis Support Group
Hemet, California

Charlotte Hungerford Hospital PF Support Group
Torrington, Connecticut

Hampton Road PF Support Group
Norfolk, Virginia

Metro East PF Support Group
Highland, Illinois

Lafayette PF Support Group
Lafayette, Louisiana

New Britain PF Support Group
New Britain, Connecticut

St. Louis PF Support Group
St. Louis, Missouri    

UHN ILD Support Group
Toronto, Canada

St. Francis Sleep, Allergy & Lung IPF Support Group

Clearwater, Florida

Wescoe Foundation for Pulmonary Fibrosis: PF Support Group
Easton, Pennsylvania

Support Group Development Grants

Joe Walsh Memorial IPF Support Group
Denver, Colorado

Portland PF Support Group
Portland, Oregon

IPF Support Group of Sterling Heights
Sterling Heights, Michigan

San Antonio PF Support Group
San Antonio, Texas

PMHC IPF Support Group
Sleepy Hollow, New York

Greater Kansas City PF Support Group
Kansas City, Missouri

PF Support Group: Tucson, Arizona
Tucson, Arizona

The Quest for Breath University of Michigan IPF Support Group
Ann Arbor, Michigan

IPF Support Group of Montgomery
Montgomery, Alabama

Idaho Pulmonary Fibrosis Support Group

Boise, Idaho

Living with PF: Stanford Support Group
Stanford, California

Simmons Center IPF Support Group
Pittsburgh, Pennsylvania

Better Breathers Club
Plymouth, Massachusetts

Garden State Pulmonary Fibrosis Support Group
Morristown, New Jersey

PFF Piedmont Triad Support Group
Greensboro, North Carolina

PF Support Group of Minnesota
Minneapolis, Minnesota

Yale IPF Support Group
Orange, Connecticut

The Airbenders

Louisville, Kentucky

Breakfast Club of IL PF Support Group
Elmhurst, Illinois

ILD Patient and Family Support Group
New York, New York

IPF Support Group of Utah
Salt Lake City, Utah

Valparaiso PF Support Group
Valparaiso, Indiana

Atlanta/Austell PF Support Group
Atlanta, Georgia

MUSC IPF Support Group
Charleston, South Carolina

Eastern Idaho PF Support Group
Idaho Falls, Idaho

Seattle PF Support Group
Seattle, Washington

Temple Lung Center PF Support Group
Philadelphia, Pennsylvania

2014 LEANNE STORCH SUPPORT GROUP FUND AWARDEES

Inland Empire Pulmonary Fibrosis Support Group
Fontana, California

Breakfast Club Pulmonary Fibrosis Support Group
Elmhurst, Illinois

The University of Louisville Pulmonary Fibrosis Support Group
Louisville, Kentucky

IPF Support Group of The Berkshires
Pittsfield, Massachusetts

Michigan IPF Support Group
Ann Arbor, Michigan

Pulmonary Fibrosis Support Group

Sterling Heights, Michigan

Pulmonary Fibrosis Support Group of Minnesota
Minneapolis, Minnesota

The Greater Kansas City Pulmonary Fibrosis Support Group
Kansas City, Missouri

Winthrop University Pulmonary Fibrosis Support Group

Mineola, New York

New York Presbyterian ILD Patient and Family Support Group
New York City, New York

Phelps Memorial Hospital Center’s Pulmonary Fibrosis Support Group
Sleepy Hollow, New York

Simmons Center for ILD IPF Support Group
Pittsburgh, Pennsylvania

Dallas/Fort Worth Breathe Support Group
Dallas, Texas

San Antonio Pulmonary Fibrosis Support Group
San Antonio, Texas

IPF Support Group of Greater Washington, D.C.
Falls Church, Virginia

Breath Matters Support Group

Richmond, Virginia

2013 LEANNE STORCH SUPPORT GROUP FUND AWARDEES

Piedmont Atlanta Hospital’s Pulmonary Fibrosis Support Group
Atlanta, Georgia
Program: Global Pulmonary Fibrosis Awareness Day Symposium in 2014

IPF Support Group of the Berkshires
Pittsfield, Massachusetts
Program: 2014 Monthly Support Group Meetings

Calgary Pulmonary Fibrosis Support Group
Calgary, Alberta
Program: 2014 Monthly Support Group Meetings

Minnesota Pulmonary Fibrosis Support Group 
Minneapolis, Minnesota
Program: 2014 Monthly Support Group Meetings

Middle Tennessee Idiopathic Pulmonary Fibrosis Support Group
Nashville, Tennessee
Program: 2014 Support Group Meetings

New York Presbyterian ILD Support Group
New York, New York
Program: 2014 Support Group Meetings

Simmons Center IPF Support Group
Pittsburgh, Pennsylvania
Program: “Dealing with the Impact of IPF & Moving Forward” meeting November 2013

Central Valley Pulmonary Fibrosis Support Group
Sacramento, California
Program: 2014 Support Group Meetings

Stanford University Medical Center, Living with Pulmonary Fibrosis Support Group
Stanford, California
Program: 2014 Support Group Meetings

Pulmonary Fibrosis Foundation Support Group
Elmhurst, Illinois
Program: 2014 Monthly Support Group Meetings

Breath Matters Support Group
Richmond, Virginia
Program: 2014 Monthly Support Group Meetings

2012 LEANNE STORCH SUPPORT GROUP FUND AWARDEES

University of Pittsburgh Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease at UPMC Support Group
“Stem Cell Research & IPF” meeting on November 5, 2012

Eastern Idaho Pulmonary Fibrosis Support Group
Eastern Idaho Regional Medical Center
2012 and 2013 Support Group Meetings & Newsletters

Minnesota Pulmonary Fibrosis Support Group in conjunction with The University of Minnesota
Pulmonary Fibrosis Patient Education Day October 6, 2012

IPF Support Group of Montgomery
Baptist Medical Center South
“Acute Respiratory Failure, Mechanical Ventilation, and ICU Admission: The Implications” March 2013 meeting

Edwards Hospital Pulmonary Fibrosis Support Group
Edwards Hospital, Naperville, IL
“Massage Therapy and Nutrition for Pulmonary Fibrosis Patients” meeting

Pulmonary Fibrosis Support Group in San Antonio
Church Triumphant Church Hall, San Antonio, TX
2012 and 2013 Support Group Meetings

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