Share your story

Share Your Story


We welcome patients, caregivers, transplant recipients, those who have lost a loved one, and healthcare professionals to share their stories with the pulmonary fibrosis (PF) community

Our goal is to help others understand the impact of PF and idiopathic pulmonary fibrosis (IPF) and engage with individuals who may be interested in joining our efforts. We hope to share as many stories as possible year round through social media.

We also accept photo submissions. If you'd prefer to share a photo that captures a memorable moment, such as a positive doctor's visit, a vacation or outing, holidays with family, or any other unique experience, you can submit a photo with a short caption. 

Your story may be up to 500 words (maximum). If you are interested in sharing your story or photo, please email us at

For story and photo submissions, please include the following details:

  • Name
  • Age
  • Where You Live
  • Who Has/Had PF
  • Date of Diagnosis
  • 1-2 Photos

Need help getting started? Consider answering one of the following questions:

  • Share a moment of kindness that moved you during this journey. Perhaps someone showed compassion or kindness when you needed it most.
  • What is the one truth you would like to tell other about your experience with PF/IPF?
  • How has your life changed since learning of this diagnosis?
  • Have there been any good changes in your life since learning of this diagnosis?
  • Is there something you or your loved one aren't able to do since learning of this diagnosis that makes living with PF/IPF more challenging than people realize?
  • Moving forward, how do you plan to remain engaged with the PF/IPF community?
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