CHICAGO, Jan. 23, 2019 – Pulmonary fibrosis patients, their loved ones and care team can now connect through a platform jointly launched by the Pulmonary Fibrosis Foundation (PFF) and Responsum Health. Responsum for PF, a personalized newsfeed, support resource, and data organizing tool for individuals living with pulmonary fibrosis (PF), is a free service. The platform enables patients to easily access trusted, comprehensive, and understandable content at responsumhealth.com/pulmonary-fibrosis.
Responsum for PF features a searchable database of over 500 article summaries, curated for the pulmonary fibrosis community. Patients can contact their healthcare providers directly from Responsum for PF to ask questions regarding articles or news featured on the platform, which will aid in shared decision making. Responsum for PF also provides useful health data tools including a shareable Patient One-Sheet and Patient Services, Inc.’s patient assistance program.
“Our goal is to ensure that every patient has access to the most accurate information available so that they can make informed decisions about their treatment and their life choices,” said Gregory P. Cosgrove, MD, PFF Chief Medical Officer. “Responsum for PF minimizes the risk that the information patients find online is outdated, inaccurate or misleading.”
Responsum for PF was built by a team of patient engagement experts and based on over four years of patient interviews and input.
“While the Internet offers the promise of unfettered access to massive amounts of information, patients can easily find themselves overwhelmed by too much or underserved by inaccurate, inappropriate or overly complex content. Responsum solves that problem,” said Andrew M. Rosenberg, Founder and CEO of Responsum Health. “We all agree that a better informed patient makes for better outcomes, and that is our number one goal.”
More than 200,000 Americans are living with pulmonary fibrosis, a deadly and complex disease which causes progressive scarring in the lungs. Fifty thousand new cases are diagnosed each year. There is no known cure.
CONTACT: Dorothy Coyle, Pulmonary Fibrosis Foundation 773-332-6201
Andrew Rosenberg, Responsum, 202-247-6301
About the Pulmonary Fibrosis Foundation
The Pulmonary Fibrosis Foundation (PFF) mobilizes people and resources to provide access to high quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier lives. The PFF collaborates with physicians, organizations, patients, and caregivers worldwide. The PFF has a three-star rating from Charity Navigator and is a Better Business Bureau accredited charity. For more information, visit pulmonaryfibrosis.org or call 844.TalkPFF (844.825.5733) or 312.587.9272 from outside the U.S.
About Responsum Health
Responsum is a revolutionary patient engagement platform that monitors, searches and curates the Internet and then generates a personalized Newsfeed of article summaries vetted by the Pulmonary Fibrosis Foundation (PFF). Responsum wraps the Newsfeed into a comprehensive platform that enables patients to comment on and rate the articles, as well as share with their professional care team and loved ones. Responsum also enables patients to better organize their health information, find local patient support groups and services, and use a legislative advocacy tool for policies that impact their health care. For more information, visit Responsumhealth.com/pulmonary-fibrosis.