Welcome to the Pulmonary Fibrosis Foundation
Living with pulmonary fibrosis (PF) can feel overwhelming — but you’re not alone. The Pulmonary Fibrosis Foundation (PFF) is here to support you, every step of the way. Our programs connect patients and caregivers with trusted information, compassionate communities, and expert medical resources.
Support
Contact the PFF Help Center
Personalized support when you need it most.
The PFF Help Center offers one-on-one assistance for patients, caregivers, family members, and healthcare professionals. Our experienced team can answer questions, share educational materials, and guide you to programs that meet your individual needs. To speak with our PFF Help Center Staff, please call 844.TalkPFF (844.825.5733) or email help@pulmonaryfibrosis.org.
Find a Support Group
Connect with others who understand.
You don’t have to face pulmonary fibrosis alone. Through the PFF’s national network of support groups, you can share your experiences, learn practical tips for living with PF, and find comfort in a community that truly cares. Support groups are held virtually online, in-person, and in hybrid formats. Use our Search Tool to find the support group that is right for you!
Learn About and Find Clinical Trials
Expert care starts here.
Managing pulmonary fibrosis often requires specialized medical care. The Pulmonary Fibrosis Foundation has assembled a list of medical centers with specific expertise in the treatment of pulmonary fibrosis, the PFF Care Center Network (CCN). Our Find Medical Care Search Tool helps you locate experienced pulmonary fibrosis specialists and PFF Care Centers across the country — so you can feel confident in your care.
Research
Find a Clinical Trial
Help advance PF research.
Clinical trials play a vital role in discovering new treatments and improving patient care. Learn how to participate in ongoing studies that may be right for you.
Search clinical trials →
Join the PFF Registry
Your experience matters.
The PFF Community Registry is a series of surveys. Your survey results will go to researchers, who use your responses to better understand pulmonary fibrosis and to answer the most pressing questions. Everyone who has been impacted by PF is encouraged to join.
Meet the PFF Scholars
A fund to support emerging researchers.
The PFF Scholars program is designed to help talented researchers obtain independent funding to continue their studies. The PFF aims to support projects that offer a high likelihood of improving the understanding of pulmonary fibrosis in the areas of basic science, translational research, clinical research, epidemiological research, and health services research.
Meet the new class of PFF Scholars →
Education
Explore the PF Basics
Start with the essentials.
Info for Newly Diagnosed Patients, a curated online program that answers patients' most pressing questions about these diseases. PF Basics consists of six modules that focus on treatment options, medical care, support and resources, living with PF, and research and clinical trials. Each module contains links to more in-depth resources throughout the PFF website.
Learn from Educational Materials & Videos
Learn anytime, anywhere.
Explore a wealth of accessible resources, learn more about PF, treatment options, clinical trials, and what to expect on your journey. The PFF library includes educational materials of booklets and Fact Sheets, short disease information videos, and hour long webinars that dive deeper into topics.
Try our Pulmonary Rehabilitation Toolkit
Stay active and build strength safely.
Discover a structured exercise program designed for people living with chronic lung diseases like PF. Exercise can give you more energy, improve your focus, your mood, and your overall sense of wellbeing.
Join us at the PFF Summit
Connect, learn, and inspire.
Join us at the world’s largest pulmonary fibrosis (PF) and interstitial lung disease (ILD) conference. Held every other year, it unites the community to come together as one to learn about this disease from globally recognized experts.
Find more about the PFF Summit →
Attend the virtual PFF Education Symposium
Stay informed from the comfort of your home.
Focused on the latest advances in research and patient care, our Symposium is created specifically for patients and caregivers. Join the PFF medical team and other experts in the field to discuss disease management topics in a full day of programming.
Get Involved
Be a PFF Advocate
Raise your voice for the PF community.
Advocate for better policies and access to care—your voice helps shape the future of treatment and research. PFF Advocates educate elected officials and their staff on pulmonary fibrosis, their experiences as a part of the PF community, and provide an understanding on why we need Congress' support on issues such as improving patients' access to supplemental oxygen and funding for PF research.
Sign up to advocate for the PF community →
Hear from PFF Ambassadors
Empower others through personal stories.
The PFF Ambassador Programs encourages and empowers patients, caregivers, lung transplant recipients, family members, and those who have lost a loved one to serve as spokespeople for the PF community. PFF Ambassadors offer hope and inspiration to those affected with PF by speaking about their experiences, promoting disease awareness, and sharing available resources. Have a PFF Ambassador speak at your event, connect with them individually, or apply to become one.
Connect with the PFF Ambassador program →
Join us at the PFF Summit
Connect, learn, and inspire.
Join us at the world’s largest pulmonary fibrosis (PF) and interstitial lung disease (ILD) conference. Held every other year, it unites the community to come together as one to learn about this disease from globally recognized experts.
Find more about the PFF Summit →
Attend the virtual PFF Education Symposium
Stay informed from the comfort of your home.
Focused on the latest advances in research and patient care, our Symposium is created specifically for patients and caregivers. Join the PFF medical team and other experts in the field to discuss disease management topics in a full day of programming.
Learn about the PFF Education Symposium →
Participate in PFF Events
Make a difference and meet others who understand.
Each year, the PFF hosts events like Pulmonary Fibrosis Awareness Month, the PFF Walk, and Broadway Belts for PFF! that not only generate vital funds and awareness but also create meaningful opportunities to meet others who understand what you’re going through.
About the Pulmonary Fibrosis Foundation
At the Pulmonary Fibrosis Foundation, we are dedicated to making a difference in the lives of those affected by pulmonary fibrosis (PF), a form of interstitial lung disease (ILD). Pulmonary fibrosis is a process that causes lung scarring, in which fibrotic tissue blocks the movement of oxygen from inside the tiny air sacs in the lungs into the bloodstream. Low oxygen levels, and the stiff scar tissue itself, can cause people with pulmonary fibrosis to feel short of breath, particularly when walking and exercising. Over 250,000 Americans are living with PF today. Approximately 50,000 new cases are diagnosed each year and as many as 40,000 Americans die from idiopathic pulmonary fibrosis (IPF) each year.
As the largest organization committed to raising awareness and providing support, our mission is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and healthcare providers.