Pulmonary Fibrosis Foundation


Announcing the PFF Patient Communication Center

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Now Serving Our Community

The PCC will serve as the information hub for the PF patient, caregiver, and health care professional communities. PCC staff will:

  • Make available the most up-to-date medical information
  • Provide information about how to find support services, available treatments, and clinical trials
  • Distribute PFF patient education materials

The PFF Patient Communication Center is staffed Monday through Friday 9:00 a.m. – 5:00 p.m. (Central Time). The toll-free number is 844.TalkPFF (844.825.5733).

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Announcing the PFF Care Center Network and PFF Patient Registry

At the biennial PFF Summit the Pulmonary Fibrosis Foundation (PFF) announced its plans to establish the PFF Care Center Network (CCN) and the PFF Patient Registry. These initiatives will improve the health and quality of life of patients suffering from pulmonary fibrosis (PF) and will help provide critical insights enabling the medical research community to develop more effective therapies.


LEARN MORE ABOUT THE PFF CARE CENTER NETWORK

LEARN MORE ABOUT THE PFF PATIENT REGISTRY

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Read the New Issue of the Breathe Bulletin


Breathe Bulletin 2013 Summer/Fall


Watch TV Segment Featuring Pulmonologist Dr. Erica Herzog and Her Patient with IPF, John Morthanos


In recognition of Rare Disease Day on February 28, Boehringer Ingelheim sponsored TV and radio interviews with John Morthanos, who has idiopathic pulmonary fibrosis (IPF), and his physician Dr. Erica Herzog of Yale University to raise awareness of IPF. In September 2012, John was one of the lucky patients with IPF to receive a single-lung transplant. Although IPF is the leading reason for lung transplants, the procedure remains uncommon because patients are either too old, too ill or don’t survive long enough to undergo the procedure. Viewers are encouraged to visit www.pulmonaryfibrosis.org for more information.

Watch them discuss IPF on NewsWatch, a national news program that airs in more than 100 cities across the U.S.


Join the PFF's Support Community on Inspire

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Learn More about Inspire's Features and How to Join

FUNDRAISING EVENTS

BOSTON, MA
APRIL 21ST, 2014 (ALL DAY)

Support Sarah Manning as she trains and runs in the Boston Marathon in memory of her mother, her aunt, and uncle all of whom have passed from pulmonary fibrosis.

CONROE, TX
MAY 4TH, 2014 (ALL DAY)

I started making bows because they are cute & I want to use the money to help the PFF.

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SPOKANE, WA
MAY 4TH, 2014

My father, P. Michael McKeehan, an avid runner, passed away from pulmonary fibrosis July 19, 2012. My Dad began running in the early seventies and kept going until the effects of his disease forced him to quit in the early 2000's.

BURLINGTON, MA
MAY 8TH, 2014

Are you ready to have some fun and arise funds and awareness for pulmonary fibrosis?
Please join the Tighe Family at the 2nd Annual Zumba For A Cure: Battle for Breath on May 8th.

Date May 8, 2014

Location Miss Louise's School of Dance located at 33 Winn Street in Burlington, MA

Time 7:30 - 9pm

INDIANAPOLIS, IN
MAY 17TH, 2014 (ALL DAY)

Kate, Jack and Gia have been impacted by pulmonary fibrosis and have teamed up with Lemonade Day which is a nationwide, educational initiative which teaches children how to start, own and operate their own business in an effort to spread awareness of PF and raise funds to help find better treatments and a cure.

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