Pulmonary Fibrosis Foundation


On February 27, 2012
BROADWAY BELTS for PFF!
Get your tickets today – space is limited!

Watch Julie and Ralph’s Story
Broadway Belts 2012 on YouTube.jpg

Hosted by award-winning actress and devoted PFF advocate, Julie Halston, BROADWAY BELTS for PFF! will feature some of Broadway's best and brightest. Last year's sold-out smash featured a surprise appearance by Liza Minnelli!

View more information and order your tickets today.



Save the Date

We are pleased to announce that the IPF Summit 2013
will be held December 5-7, 2013.




Save_the Date_Summit_2013.jpg


To receive information about the IPF Summit 2013, or to be placed on the pre-registration list, please email summit@pulmonaryfibrosis.org or call 888.733.6741.


Watch the IPF Summit 2011 patient sessions on demand
at pulmonaryfibrosis.org/summitwebcast.



Blue-Bar_0_0_0.jpg

FUNDRAISING EVENTS

NEW YORK, NY
FEBRUARY 27TH, 2012

Featuring Broadway's Best and Brightest

SPACE IS LIMITED! Hosted by award-winning actress and devoted PFF advocate, Julie Halston, BROADWAY BELTS for PFF! will feature some of Broadway's best and brightest. Last year's sold-out smash featured a surprise appearance by Liza Minnelli!

PULMONARY FIBROSIS IS A DISEASE YOU CAN LIVE WITH

Hi My name is Donna White and I was diagnosed with Pulmonary Fibrosis in September 2009 during a six day hospital stay. The first time I heard "scarring of the lungs" was while living in California in appoximately 2004. It was during this year I was diagnosed with Pneumonia for the first time.

It all started in October 2009 when I kept dealing with this dry hacking cough. Eventually I went to the doctor and he said it was a touch of bronchitis. He prescribed meds and I began immediately taking them. In a matter of 4 days things had worsened. I just was not feeling good. I woke up on a Saturday morning and of course we all have to go to the restroom. Well when i sat up I felt really light headed. I managed to get to the restroom and nearly passed out there. But I kept telling myself I had to get back to my bedroom. Well I did get to the bedroom just in enough time to grab onto the foot of my bed and then passed out.

“Hi, I’m Bob and I have Pulmonary Fibrosis.”
“Hi, Bob!”
Sounds like a 12-step program. If only it had a success rate like one.
For background, I’m a Marine Veteran, having joined the Corps out of high school in ’64 and volunteered for Vietnam in ’66. Please note there are no Ex-Marines or Former Marines.

Hi, I am Nancy and I am 61-years old and I am here today to explain about pulmonary fibrosis and how it has affected my life in the last few years.

I was seeing a doctor for emphysema for approximately three years, and my symptoms at that time were just shortness of breath. And it didn’t bother me too much on a daily basis as long as I took my medication.

My name is Joan and I was diagnosed with idiopathic pulmonary fibrosis. It was three years ago this coming May that my doctor knew about it.

The first thing down here in Arizona, because I live in another state part time in the summer, I had pneumonia. It started in March and they were giving me three different kinds of antibiotics and I couldn’t shake it.

Hi, I am Dyane. Eight years ago I was diagnosed with pulmonary fibrosis. Most people, when they look up pulmonary fibrosis on the Internet see that it’s usually fatal in two to five years. I am here to share my story with you and how I’ve fought for these eight years and to tell you that there is no expiration date stamped on your behind.

My mother died of pulmonary fibrosis in 1996.

I was diagnosed with PF almost 6 years ago, after having lung surgery to remove some suspicious spots on my lungs. After understanding what my diagnosis meant ( I had never heard of PF prior to that) I spent about three weeks depressed and scared, and telling my loved ones what my final wishes were. I was 45 years old at the time.

One day, I woke up, and realised that I had this day; Today!

I am 31, 32 next week and I have Pulmonary Fibrosis.

Four years ago in April, I became very ill with a kidney stone. The stone was lodged in the tube between the kidney and the bladder causing me to go septic. I was in a coma for two months on life support and also had to be treached. I had kidney failure, respiratory failure, stroke and other conditions.

Please watch video. Thank you.

This website is certified by Health On the Net Foundation. Click to verify.