Welcome to the Pulmonary Fibrosis Foundation!
It looks like you don't have flash player 6 installed. Click here to go to Macromedia download page.
WE NEED YOUR HELP BY SEPTEMBER 13TH TO PASS THE PF RESEARCH ENHANCEMENT ACT (S. 3703)
Great News! Senators Patty Murray (D-WA) and Mike Crapo (R-ID) have formally introduced the bi-partisan Senate version of the
PULMONARY FIBROSIS RESEARCH ENHANCEMENT ACT (S.3703) (PFREA). The PFREA was introduced on August 4, 2010, and was referred to the Health, Education, Labor & Pensions (HELP) Committee. The PFREA authorizes $16 million to establish the first national patient registry for pulmonary fibrosis (PF), establish a national PF advisory board, and call for a national PF education and awareness plan for this deadly disease.
Now more than ever, we need PFF Members, friends and families to be active in advocating for passage of the PFREA in BOTH THE HOUSE AND THE SENATE IN THIS SESSION OF CONGRESS!
Click here to read Senator Patty Murray’s floor statement introducing the PFREA today!
Thank you for supporting this cause. The difference between success and failure in passing the PFREA this year is going to be the participation of the PF community! With just a few mouse clicks, you can help us make this historic legislative achievement a reality! Thank you for assisting the PFF in this effort!
"In addition to creating a much needed national registry of patients with PF, this Bill's passage would increase the awareness of the challenges associated with the treatment of this disease, and hopefully encourage continued funding for critically important research in this field." - Ganesh Raghu, Director of the Pulmonary Fibrosis Program, and Medical Director of the Lung Transplant Program at the University of Washington Chest Clinic (Seattle, WA)
ABOUT THE PULMONARY FIBROSIS FOUNDATION
The mission of the Pulmonary Fibrosis Foundation is to find a cure for idiopathic pulmonary fibrosis (IPF) by funding research, advocating for pulmonary fibrosis issues, promoting disease awareness, and providing a compassionate environment for supporting patients and their loved ones. We aim to accomplish this by working with the medical community to drive new research, increase research funding, by representing the needs of our constituents in Washington DC through national advocacy, and by developing caring relationships with patients and their families throughout the course of their disease.
For more information please contact us:
Pulmonary Fibrosis Foundation
811 W Evergreen Avenue Suite 303
Chicago, IL 60642
Phone: 888-PFF-ORG1 (888-733-6741)
Fax: (866) 587-9158
Email: info@pulmonaryfibrosis.org
WHAT'S NEW AT PFF?
If you would like to receive a copy of the Breathe Bulletin through the mail please contact our office
NEXT YEAR
YEAR OF THE LUNG
The Pulmonary Fibrosis Foundation is proud to be a partner in the 2010: Year of the Lung.
FUNDRAISING EVENTS









