Planning and fundraising are underway for the next phase of the Registry. Your gift to the PFF Registry will enable us to expand patient enrollment and provide even greater access to investigators as they progress toward finding for a cure for PF. The PFF gratefully acknowledges Genentech, a member of the Roche Group, as Founding Partner of the PFF Registry.


Dana Ball, Three Lakes Foundation
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Every minute counts with PF, so the faster we can go from an idea for a study to answering a question or moving a new drug into the clinic, the better. This efficiency in expediting research is the Registry.

Dana Ball
Executive Director, Three Lakes Foundation

When my father was diagnosed with pulmonary fibrosis years ago, we called the PFF. Fifteen years later, the PFF has grown and evolved and has created an important community and scientific resource. That’s why I support the PFF and the PFF Registry.

Chuck McQuaid
The Chuck and Monica McQuaid Family Foundation

The science of interstitial lung disease is advancing because of collaborative efforts of the patient community, industry, academia, advocacy groups, and the government all working together to find new approaches and treatments that will help patients. We are proud to support the PFF Registry to help advance science and have a positive impact on the pulmonary fibrosis community.

Benjamin Kramer, MD
Vice President for U.S. Medical Affairs at Genentech

The Pulmonary FIbrosis Foundation would like to thank each of our donors for supporting the PFF Registry. To make a donation, please click here.







Boehringer Ingelheim




Peter L. O’Neil
Memorial Fund


The Gerry and Bill Cowlin Foundation


The Chuck and Monica McQuaid Family Foundation


Three Lakes Foundation

Rattner Family
Foundation, Inc.



To view a complete list of donors, please view the PFF Registry Report