Planning and fundraising are underway for the next phase of the Registry. Your gift to the PFF Registry will enable us to expand patient enrollment and provide even greater access to investigators as they progress toward finding for a cure for PF. The PFF gratefully acknowledges Genentech, a member of the Roche Group, as Founding Partner of the PFF Registry.

Founding Partner


Visionary Partner

United Therapeutics

Sustaining Partner

Boehringer Ingelheim


Lead Supporters

Peter L. O’Neill
Memorial Fund


The Gerry and Bill Cowlin Foundation


The Chuck and Monica McQuaid Family Foundation


Three Lakes Foundation

Hales Family

Foundation, Inc.


The Pulmonary Fibrosis Foundation would like to thank each of our donors for supporting the PFF Registry. To view a complete list of donors, please view the PFF Registry Report. To make a donation, please click here.


Become a Sponsor

For more information about sponsoring the PFF Registry, email

Chuck McQuaid

When Chuck's father was diagnosed with pulmonary fibrosis years ago, we called the PFF. Fifteen years later, the PFF has grown and evolved and has created an important community and scientific resource. That’s why we support the PFF and the PFF Registry.

Chuck and Monica McQuaid
The Chuck and Monica McQuaid Family Foundation


Benjamin Kramer, MD

The science of interstitial lung disease is advancing because of collaborative efforts of the patient community, industry, academia, advocacy groups, and the government all working together to find new approaches and treatments that will help patients. We are proud to support the PFF Registry to help advance science and have a positive impact on the pulmonary fibrosis community.

Benjamin Kramer, MD
Vice President for U.S. Medical Affairs at Genentech


Dana Ball, Three Lakes Foundation

Every minute counts with PF, so the faster we can go from an idea for a study to answering a question or moving a new drug into the clinic, the better. This efficiency in expediting research is the Registry.

Dana Ball
Executive Director, Three Lakes Foundation


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Donate Today

Your gift to the PFF Patient Registry will enable us to expand patient enrollment and provide even greater access to investigators as they search for a cure for PF.


Your Privacy Matters

The Pulmonary Fibrosis Foundation Registry considers the protection of your privacy to be one of our most important responsibilities. We have set up strict protocols to protect your personal information. To review our policy, click here


PFF Registry News

To view the latest news and updates about the PFF Registry, click here.


Contact Us

To get in touch with the PFF, please email