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Advocate for the Pulmonary Fibrosis Community

As a member of the pulmonary fibrosis community, your voice matters to your officials.

Pulmonary fibrosis (PF) advocacy contributed to the National Institutes of Health more than doubling funding for pulmonary fibrosis research between 2010 and 2015.1 But there is still work to be done. Please help us carry the message to officials that we need continuous PF research funding and improved access to care.

Take Action Now

Ask your officials to fund pulmonary fibrosis research through the Congressionally Directed Medical Research Programs (CDMRP)

Congress is currently considering funding for the Congressionally Directed Medical Research Programs (CDMRP) in the National Defense Authorization Act for Fiscal Year 2018 (H.R.2810). Through the CDMRP’s Peer Reviewed Medical Research Program, Service Members, Veterans, and the PF community have benefited from over $38 million in PF research funding. Please join the Pulmonary Fibrosis Foundation in advocating for funding for the CDMRP by reaching out to your members of Congress today. 

Ask your officials to support funding for the National Institutes of Health

The National Institutes of Health (NIH) is the world’s biggest public funder of medical research. NIH funding has been crucial to the basic research that ultimately resulted in two FDA-approved therapies for idiopathic pulmonary fibrosis (IPF). The NIH is funding research into areas such as familial PF and the benefits of pulmonary rehabilitation for PF patients. But because of inflation, the NIH's purchasing power is less than it was in 2004.2 Ask your members of Congress to support a $2 billion increase for the NIH in fiscal year 2018. 

Keep Updated on Key PFF Initiatives

Stay up to date on the latest advocacy initiatives and opportunities to contact your members of Congress by signing up for advocacy alerts. Coming soon: updates on PF research advocacy and a campaign to improve patients’ access to supplemental oxygen.

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1 The National Heart, Lung, and Blood Institute of National Institutes of Health reports that funding for PF research increased from $26,490,331 in fiscal year 2010 to $55,756,802 in fiscal year 2015.
2 Sources: Research!America; the Rally for Medical Research
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