About Pulmonary Fibrosis

Patients diagnosed with pulmonary fibrosis (PF) or idiopathic pulmonary fibrosis (IPF), and their family members, often feel confused, concerned, and overwhelmed. Patients may find themselves frustrated by the lack of available information. Physicians often don’t have the necessary time or resources to explain the details of the disease to their patients or to help patients deal with the trauma of being told that they have an incurable illness.

The Pulmonary Fibrosis Foundation is deeply aware of these concerns. We strive to provide patients, family members, and health care providers with the resources necessary to more fully understand PF and IPF, and to provide patients with the tools necessary to live with their disease and improve their quality of life. It is important to note that care for PF or IPF is individualized, and disease progression varies greatly in patients—your physician may have discussed this challenge with you. Therefore, it is important for patients to understand their condition and ask their physicians important questions to ensure they are being treated appropriately based on their individual symptoms. This section of our website is intended to help patients achieve this goal.

Please remember that this information is a brief overview and is for educational purposes only. It is not intended to be a substitute for professional medical advice. Always consult your personal physician or health care provider with any questions you may have regarding your specific medical condition.

Also please know that we are here to help you. You may contact the Pulmonary Fibrosis Foundation with any questions or concerns you have about PF during the course of your care. Our staff can be reached at 888.733.6741 or by email at info@pulmonaryfibrosis.org.