PFF In The Media

West Hartford Resident Lobbies Legislators to Drive Disease Research

In late March, West Hartford resident Malcolm “Mal” Doyle held meetings to educate Connecticut legislators about pulmonary fibrosis (PF) – a progressive, debilitating lung disease that causes scarring in the lungs.

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Pulmonary Fibrosis: A Lung Disease Many Don't Recognize

More than 200,000 people in the United States have pulmonary fibrosis, but more than eight in 10 Americans don't know the symptoms of the lung disease, a new survey finds.

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Pulmonary Fibrosis: A Lung Disease Many Don't Recognize

More than 200,000 people in the United States have pulmonary fibrosis, but more than eight in 10 Americans don't know the symptoms of the lung disease, a new survey finds.

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Pulmonary Fibrosis Foundation

Dr. Gregory P. Cosgrove from the Pulmonary Fibrosis Foundation discusses this progressive, debilitating lung disease.

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Improving Diagnostics for Pulmonary Fibrosis

New diagnostic methods address a source of common urogential health problems.

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Clinic pitches unproven treatments to desperate patients, with tips on raising the cash

By the time he called the Lung Health Institute, Ed Garbutt was desperate. The Dallas computer parts salesman could barely walk the length of his house without gasping for breath. Unable to work, Garbutt, 64, was going broke paying for trips to the emergency room.

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PFF Summit Awards Highlight PF Research

A record-breaking international attendance of 950 pulmonary fibrosis (PF) patients, healthcare professionals, caregivers and scientists honored researchers at the Pulmonary Fibrosis Foundation’s recent PFF Summit in San Antonio.

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The battle to beat the deadly pulmonary fibrosis

Pulmonary fibrosis is a disease that comes with a prognosis of death in just a few years after severe scarring of the lungs.

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$22M NIH Grant Supports Precision Medicine for Pulmonary Fibrosis

The National Institutes of Health and Three Lakes Partners, a philanthropic family organization, has awarded a $22 million grant to support precision medicine research for idiopathic pulmonary fibrosis (IPF).

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Deaths of 9/11 first responders from ground zero-related illnesses are on the rise — and some diseases are just beginning to take their toll

Like most first responders, former New York City detective Tom Frey is a master of understatement — even when it comes to talking about the World Trade Center terror attacks on 9/11, the most devastating assignment of his life.

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9/11 first responder diagnosed with cancer, then pulmonary fibrosis

Tom Frey, 54, is a retired New York Police Department detective who was diagnosed with Hodgkin’s lymphoma linked to the time he spent at the World Trade Center site and the Staten Island landfill after the 9/11 attacks.

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Ailing 9/11 First Responder Revisits Site of Terror Attacks

Tom Frey returned to the site known at one time as Ground Zero for just the third time since he rushed down to help on 9/11, this time bringing with him an oxygen canister — a result of a cancer diagnosis that triggered pulmonary fibrosis. NBC 4 New York’s David Ushery reports.

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September Marks Pulmonary Fibrosis Awareness Month

September has been designated Pulmonary Fibrosis Awareness Month — a time during which researchers and clinicians aim to improve the public’s knowledge about the disease.

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Patient Group Advances Clinical Trials, Diverts Patients From Unregulated Therapies

For a patient with a debilitating disease, such as pulmonary fibrosis (PF), moments of hope can be few and far between.

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Three Lakes Partners And Pulmonary Fibrosis Foundation Partner In Fight Against Pulmonary Fibrosis

The Pulmonary Fibrosis Foundation (PFF) and Three Lakes Partners today marked September’s National Pulmonary Fibrosis Awareness Month with the announcement of a major partnership in the fight against pulmonary fibrosis (PF).

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Charlotte pastor turns near-death experience into chance to help community

A Charlotte pastor is turning his near-death experience into an effort to help his community.

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September is Pulmonary Fibrosis Awareness Month and Dr. Amy Case joined Sasha Rionda to share more about this debilitating lung disease

September is Pulmonary Ffibrosis Awareness Month and Dr. Amy Case joined Sasha Rionda to share more about this debilitating lung disease.

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He Was a First Responder on 9/11—Why He’s Telling His Story Now

Tom Frey spent years recovering victims of the 9/11 attacks. His time working to bring families answers resulted in his own poor health.

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