PFF Care Center Network

Working together to improve patient outcomes.

The Pulmonary Fibrosis Foundation (PFF) is dedicated to promoting earlier recognition and diagnosis of pulmonary fibrosis and ensuring that patients receive the highest quality healthcare. As part of that commitment, over the past three years the PFF has worked with the PF medical community to establish the PFF Care Center Network, where people with PF can find experienced medical professionals who understand their disease and support services to improve the quality of their lives. 

NOW THROUGH FEBRUARY 28: Beginning January 22nd, 2018, medical centers that meet the PFF’s standards for patient care, teaching, and research are invited to apply to join the Care Center Network (CCN). The cycle for new applicants will close on February 28th, 2018.

For more information, please click on the "Become a PFF Care Center Network Site" drop-down menu below.

BECOME A PFF CARE CENTER NETWORK SITE

Beginning January 22nd, 2018, medical centers that meet the PFF’s standards for patient care, teaching, and research are invited to apply to join the Care Center Network (CCN). The cycle for new applicants will close on February 28th, 2018.

Launched in 2013 with nine sites, the PFF Care Center Network is currently comprised of 45 medical centers across the U.S. with expertise in accurately diagnosing and treating individuals with interstitial lung disease (ILD).

To be a designated Care Center, sites must:
- Use a multi-disciplinary team with clinical experience in the diagnosis and care of patients 
  living with ILD
- Have access to appropriate consultative personnel
- Have affiliation with or access to a range of outpatient, inpatient, and laboratory facilities,
  including a lung transplant program
- Have accreditation by a CMS-approved entity

PFF Care Centers are part of a collaboration dedicated to improving the lives of patients with ILD and enjoy opportunities to partner with the PFF and other Care Centers to change the landscape of pulmonary fibrosis care and research.

Eligibility requirements and the application to become a PFF Care Center Network site are available here.

To submit your Care Center application, please visit proposalCENTRAL. All applications must be submitted online.

If you have questions about this process, please contact us at CCN@pulmonaryfibrosis.org.

Resources
PFF Care Center Criteria
PFF Care Center Application Checklist
PFF Care Center Application Instructions
PFF Care Center Application

Note: Centers that are accepted will be expected to establish a pulmonary fibrosis patient support group, if one is not already affiliated with the Center. The PFF has many resources to help you develop and run a support group. For further information about these resources, please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or pcc@pulmonaryfibrosis.org.

what is a pff care center network site?

The PFF Care Center Network (CCN) is a growing group of medical centers with expertise in accurately diagnosing and treating people living with PF. Disease management can be complex. The CCN is comprised of centers that have the necessary resources and specialized staff to fully manage the disease. PF Care Centers embrace a multidisciplinary approach to provide the most comprehensive patient care. Experts in pulmonary medicine, rheumatology, radiology, pathology, and nursing specializing in interstitial lung disease comprise the care team at each PF Care Center.

WHY IS THE PFF CARE CENTER NETWORK IMPORTANT TO THE PF COMMUNITY?

Because of the CCN’s multidisciplinary approach, patients benefit from a more accurate diagnosis, recommendations for continuing care, assistance in locating essential social services, and the opportunity to participate in collaborative research. Each patient is considered and treated individually. PF Care Centers work with the Pulmonary Fibrosis Foundation to actively engage their local PF communities to provide a range of educational and research activities. The sites are involved with other PFF Signature Programs and have established and maintain PF support groups to allow the local PF community to connect with and learn from others impacted by the disease.

HOW DOES THE PFF CARE CENTER NETWORK AND THE PFF PATIENT REGISTRY WORK TOGETHER?

In addition to providing outstanding medical care, the Care Center Network forms an infrastructure that facilitates the conduct of high-quality clinical and translational research that is helping us better understand PF, an important step toward a cure. The PFF Patient Registry is a clinical research registry conducted at PFF Care Centers that works toward these goals. At the moment, you must be a patient at a PFF Care Center in order to participate in the Registry.

where can i find a PFF care center Network site?

​Find a PFF Care Center Network (CCN) Site
Download PFF Care Center Network Factsheet (includes a printable list of sites)


If there is not a CCN site near you, please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or pcc@pulmonaryfibrosis.org to identify regional pulmonary fibrosis centers in your area and to receive current disease education information.

how is the pff care center network funded?

The PFF Care Center Network is funded through the generous support of corporations, foundations, and individuals who have been impacted by PF who realize that the creation of a comprehensive health care network is fundamentally important to improving the lives of individuals with PF. If you would like to contribute to this important program, please donate now.

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