PFF Care Center Network

PFF Care Center Network

The Future of Patient Care

The PFF Care Center Network (CCN) is a growing group of medical centers that have experience and expertise in treating patients with fibrotic lung disease and are dedicated to improving the lives of those living with PF.


what is a pff care center network site?

Pulmonary fibrosis management can be complex. The PFF Care Center Network (CCN) provides the necessary resources for patients to obtain medical expertise and specialized staff to fully manage their disease. CCN sites embrace a multidisciplinary approach that delivers comprehensive patient care. Experts including those in pulmonary medicine, rheumatology, radiology and pathology, all specializing in interstitial lung disease, comprise the care team at each CCN site.

WHY IS THE PFF CARE CENTER NETWORK IMPORTANT TO THE PF COMMUNITY?

Health care experts at CCN sites have extensive experience in the treatment of PF and are dedicated to the care of patients with this disease. The specific cause of PF, whether environmental, related to another illness, unknown (idiopathic), or otherwise, can significantly impact the progression of the disease and treatment options, so it is important that each patient be considered and treated individually. Because of the CCN sites’ multidisciplinary approach, patients benefit from a more accurate diagnosis, recommendations for continuing care, assistance in delivering essential social services, and the opportunity to participate in collaborative research.

CCN sites will work with the PFF to actively engage their local PF communities, and promote quality of life, instructional, and research objectives with their activities. The sites will be involved with other PFF Signature Programs, including providing pulmonary fibrosis support groups to allow local communities to connect with and learn from others impacted by the disease.

HOW DOES THE PFF CARE CENTER NETWORK AND THE PFF PATIENT REGISTRY WORK TOGETHER?

The CCN and Registry are related and enhance each other. The CCN provides the infrastructure to execute Registry activities. All data entered into the Registry will come through a CCN site. The CCN promotes high-quality, comprehensive patient care, and ensures standard data collection procedures and controls for maximum data integrity. The CCN’s broader goal is to improve the quality of life for patients with PF. The CCN and Registry will work in tandem to address the complex problems related to fibrotic lung disorders.

where can i find a PFF care center Network site?

Find a PFF Care Center Network (CCN) Site
Download PFF Care Center Network Factsheet (includes a printable list of sites)


If there is not a CCN site near you, please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or pcc@pulmonaryfibrosis.org to identify regional pulmonary fibrosis centers in your area and to receive current disease education information.

how is the pff care center network funded?

The PFF Care Center Network is funded through the generous support of corporations, foundations, and individuals who have been impacted by PF who realize that the creation of a comprehensive health care network is fundamentally important to improving the lives of individuals with PF. If you would like to contribute to this important program, please donate now.

become a pff care center network site

The PFF Care Center Network Selection Committee will consider applications for inclusion in the Network for those facilities that meet the established guidelines for patient care, teaching, and research, and fulfill geographic and consumer need. The application process to become a PFF Care Center Network site is now open. Due to overwhelming interest the deadline to submit an application has been extended to 5:00 p.m. ET on August 14, 2015.

View PFF Care Center Network Guidelines

Apply Now

For more information or questions, call the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or email ccn@pulmonaryfibrosis.org.

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