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Our Online Support Communities

Virtual Support Communities

Find support. Give support. Get support.

Telephone-based and online support groups are a great way for you, your caregivers, family members, and friends to virtually connect for support and information.

If you are not able to attend an in-person group, or simply want additional interactions between meetings, consider joining one of the Pulmonary Fibrosis Foundation’s online support communities.

Join Our Teleconnect Support Group, PFF Voices!

PFF Voices is the Pulmonary Fibrosis Foundation’s telephone-based support group for pulmonary fibrosis patients, caregivers, family members and anyone else affected by this disease. This group meets once per month over the phone in a conference call setting. Each monthly meeting provides a chance to discuss different topics related to pulmonary fibrosis, share personal stories, ask questions and provide support to one another.

Meetings are held on the third Thursday each month at 1:00 p.m. CT. Contact the PFF Patient Communication Center at 844.TalkPFF or pcc@pulmonaryfibrosis.org for more details and to confirm meeting details.

Call-in information for PFF Voices Meeting

Phone Number: 1-571-317-3116
Access Code: 124-558-453

 

patients like me

Patients Like Me


About PatientsLikeMe


PatientsLikeMe is a patient network that improves lives and a real-time research platform that advances medicine. Through the network, patients connect with others who have the same disease or condition and track and share their own experiences. In the process, they generate data about the real-world nature of disease that help researchers, pharmaceutical companies, regulators, providers, and nonprofits develop more effective products, services, and care. With more than 400,000 members, PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 70 research studies. 

rare connect

RareConnect
 
Connect with IPF Patients Globally! 
 

The Pulmonary Fibrosis Foundation has partnered with the European Organization for Rare Diseases (EURODIS) and the National Organization for Rare Diseases (NORD) to allow patients with rare diseases to connect globally.

Join the online community at RareConnect and join others living with pulmonary fibrosis. This online community provides members with the ability to globally communicate with other individuals. Members may post in English, German, Spanish, French or Italian. To translate a post that is not in your native language, simply select "request to translate."






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