Life With Pulmonary Fibrosis

The Pulmonary Fibrosis Foundation is pleased to announce our new
Life With Pulmonary Fibrosis video series!

Launched in May 2018, this video series will discuss a variety of topics, ranging from education, stories from real people living with pulmonary fibrosis and idiopathic pulmonary fibrosis, information and services provided by the Foundation, and much more.

A new video will be released each week! Check back frequently for new videos, or subscribe to our YouTube channel to receive a notification when a new video is released. You may also follow us on Facebook for new video announcements.

Please note that any information contained in these presentation are for informational and/or educational purposes only. It is not intended to be a substitute for professional medical advice. Always consult your personal physician or health care provider with any questions you may have regarding your specific medical condition.



PFF Patient Communication Center
© Pulmonary Fibrosis Foundation

It’s here - a comprehensive resource for patients, caregivers and healthcare providers. The PFF Patient Communication Center (PCC) provides essential information including where to find specialized medical centers, how to join or start a support group, and other support services in your area. The PCC is available by phone at 844.TalkPFF (844.825.5733) and email, pcc@pulmonaryfibrosis.org.

Life With Pulmonary Fibrosis


What is Pulmonary Fibrosis?
Presented by Dr. David Lederer, MD
PFF Senior Medical Advisor, Education and Awareness
© Pulmonary Fibrosis Foundation

Dr. David Lederer explains that the big picture of lung disease is vast and includes a family of diseases called interstitial lung diseases (ILD), which consist of more than 100 different diseases. These diseases are grouped together because they share two common features - inflammation and scar tissue, which occur in the walls of the tiny air sacs of the lungs.

The difference between interstitial lung disease and pulmonary fibrosis is that interstitial lung diseases include all of the diseases in which there is inflammation or scar tissue in the walls of the air sacs. Pulmonary fibrosis is not a specific disease but is a general term that refers to any kind of ILD in which scar tissue is present in the walls of the air sacs.


 
Portrait of PF: Heather Kagel
© Pulmonary Fibrosis Foundation

Meet Heather Kagel, who was diagnosed with idiopathic pulmonary fibrosis (IPF) five years ago after experiencing breathlessness and a cough that wouldn’t go away. Heather has a genetic mutation that caused her IPF as well as oral cancer. While the disease has slowed her down, Heather tries to stay active and positive. She attends a monthly support group and participates in programs like the PFF Walk and PFF Summit. Heather has found hope in meeting others with IPF and talking about how to best live with the disease.
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